A traumatic brain injury (TBI) can result in lasting brain damage from an accident or other head trauma. A TBI may be mild, moderate, or severe. TBI survivors may develop physical or cognitive disabilities and sometimes need help with daily living tasks like shopping, transportation, and keeping track of appointments. Often, the TBI survivor’s spouse or a close family member or friend takes on much of this caregiving responsibility. Becoming a caregiver for a TBI survivor can be challenging, especially in the first months after the TBI.
A spinal cord injury (SCI) is damage anywhere along the spinal cord, usually from an accident or other trauma. SCI can cause a loss of feeling and movement below the point of damage. As a result, people with SCI may need help with basic daily activities such as bladder and bowel care, dressing, and bathing, as well as more complex tasks like shopping and transportation. Often, a spouse or other close family member takes on most of this caregiving responsibility. Most past research has focused on the burdens and stresses of being a caregiver to a person with SCI.
More than 65 million people in the US serve as caregivers to family members who have a disability or are seniors in need of assistance, according to the Family Caregiver Alliance, and the number of caregivers is expected to grow in the coming years. These caregivers include families of adults with intellectual and developmental disabilities (IDD), many of whom are also experiencing age-related disabilities. For adults with IDD, families are the single largest provider of care with more than half of adults with IDD living at home with family.
Los miembros de la familia constituyen una parte importante de cuidadores de personas con impedimentos. Estos cuidadores a menudo se quedan afuera de la ecuación de la rehabilitación. RehabWire para este Invierno 1999 discute los problemas que enfrentan a los cuidadores familiares y las soluciones y los recursos que los abordan.
Family members make up a significant portion of caregivers to people with disabilities. These caregivers are often left out of the rehabilitation equation. RehabWire for this Winter 1999 discusses the problems faced by family caregivers and solutions and resources to address them.
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