SCI Advocates and SCI Practitioners Share Their Strategies for Successfully Navigating the Complex Healthcare System

A spinal cord injury (SCI) is damage to the spinal cord or the spinal nerve roots within the spinal canal and resulting in temporary or permanent loss of movement and/or feeling. Individuals with SCI often experience complex health issues making them high users of primary care. At the same time, they face many barriers to receiving quality healthcare such as inaccessible medical offices or equipment, problems with transportation, lack of SCI knowledge among primary healthcare providers, issues with insurance and benefits, and difficulties coordinating services among multiple providers.


To Improve IDEA, Parents Draw from Experience.

IEP, LRE, FAPE. These acronyms are part of the Individuals with Disabilities Education Act (IDEA), landmark federal legislation that ensures children with disabilities in the US have equal opportunity to receive a free and appropriate public education. IDEA gives parents a central role in advocating for their child’s access to the services and supports they need from preschool through graduation. While parents are at the heart of the process, in the last reauthorization of IDEA, less than 4 percent of the comments collected from the public came from individual parents.

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