News and Notes 99 January 29

February is Age-Related Macular Degeneration/Low Vision Awareness Month, in observation of which the NARIC collection can be searched for extensive publications on blindness and low vision; Presentations from Conference on Prevention and Management of Secondary Health Conditions in People After SCI; caregivers of individuals with TBI sought for survey regarding their health information needs; free web guide called I Have Alzheimer's Disease launched by the Alzheimer's Association; several NIDRR researchers contribute to a new World Health Organization report on SCI; NIDRR-funded Charmtech Labs exhibits Capti, a cross-platform application providing universal access to digital content, at this year's Consumer Electronics Show (CES '14); multiple Tech4POD presentations and exhibits offered at  the 2013 meeting of the American Academy for Cerebral Palsy and Developmental Medicine; Southeast ADA National Network Regional Center's monthly ADA Live! webcast series features service animals.

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NARIC news: 

February is Age-Related Macular Degeneration/Low Vision Awareness Month, sponsored by Prevent Blindness. According to the National Eye Institute, more than 3 million Americans have low vision, meaning that even with corrective lenses, medication, or surgery, these people may find everyday tasks difficult to do. The NARIC collection includes extensive publications on blindness and low vision from NIDRR-funded projects and other sources. You may choose to narrow your search to low-vision topics, like these documents on macular degeneration from the NIDRR projects and other sources

Resource Highlight: 

Presentations from SOS Conference on Prevention and Management of Secondary Health Conditions in People After SCI
The NIDRR-funded Rehabilitation Research and Training Center (RRTC) on Secondary Conditions in the Rehabilitation of Individuals with Spinal Cord Injury (SCI) (H133B090002) at MedStar National Rehabilitation Hospital has posted six video presentations from the 2013 State of Science (SOS) Conference on Prevention and Management of Secondary Health Conditions in People after SCI, jointly sponsored by the RRTC at MedStar National Rehabilitation Hospital and the RRTC on Secondary Conditions in Individuals with SCI (H133B090005) at the Medical University of South Carolina (MUSC). A comprehensive report of the meeting (PDF) is also available from MUSC. 

News items: 

NIDRR Researchers Contribute to WHO Report on SCI
Researchers from several NIDRR-funded projects contributed to International Perspectives on Spinal Cord Injury (SCI), a new report from the World Health Organization (WHO) and the International Spinal Cord Society (ISCOS). Among those contributing as editors, advisors, authors, or peer reviewers were: Cathy Bodine, PhD, from the Rehabilitation Engineering Research Center for Cognitive Rehabilitation (H133E090003); Diana Cardenas, MD, from the South Florida Regional Spinal Cord Injury Model System Center (H133N110003); Susan Charlifue, PhD, and Gale Whiteneck, PhD, from the Rocky Mountain Regional Spinal Injury System Center (H133N110006); Yu-Ying Chen, MD, PhD, from the National Spinal Cord Injury Statistical Center (H133A110002); Marcel Dijkers, PhD, from the Mt. Sinai Advanced Rehabilitation Research Training project (H133P100016); John Stone, PhD, from the Center for International Rehabilitation Research Information and Exchange (CIRRIE) (H133A100021); and Denise Tate, PhD, and Martin Forchheimer, from the University of Michigan Spinal Cord Injury Model System Center (H133N110002). The report covers understanding of SCI from a global perspective, prevention, health care and rehabilitation needs, attitudes and relationships, creating enabling environments, education and employment, and the future of SCI. The full report is available free of charge (PDF). 

Capti Debuts at CES '14
Capti, mobile technology developed by Charmtech Labs LLC under several NIDRR-funded small business innovation research grants (H133S130028, H133S120055, H133S120067), debuted at this year’s Consumer Electronics Show (CES '14) and was featured in the Chicago Tribune and Inside Mobile Apps, among other outlets. Project Director Yevgen Borodin, PhD, was also interviewed about Capti by the Radioactive Broadcast Network and by IEEE. Capti is a cross-platform application that facilitates universal access to digital content for people with visual, learning, and cognitive disabilities, as well as people without disabilities. Capti is available free from the iTunes App Store

Prosthetics and Orthotics in Focus at AACPDM
The NIDRR-funded Rehabilitation Engineering Research Center on Technology for Children with Orthopedic Disabilities (Tech4POD) (H133E100007) offered multiple presentations and exhibits at the 2013 meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM). Project staff offered a workshop, posters, exhibits, and presentations on emerging mobility technologies and RERC developments and accomplishments. A list of presentations and related links are available from the NARIC Spotlight Blog. 

Grantee event: 

Webcast: ADA Live - Service Animals
The NIDRR-funded Southeast ADA National Network Regional Center (H133A110021) continues its monthly ADA Live! series with Service Animals, February 5th, 1-1:30 EST. Center staff will discuss the definition of a service animal and some of the issues involving access for individuals with disabilities using service animals in places of public accommodations. No registration is required and questions may be submitted in advance


Survey of Caregiver Health Information Needs
The NIDRR-funded Model Systems Knowledge Translation Center (MSKTC) (H133A110004) is recruiting caregivers of individuals with traumatic brain injury (TBI) for an interview survey regarding their health information needs. Participants should be 18 or older and the primary caregiver of a person who sustained a TBI in the last five years. Participants will be compensated $20. Contact Mahlet Megra at 202/403-5531 or email to schedule an interview. 

Elsewhere in the Community: 

I Have Alzheimer's Disease
The Alzheimer's Association has launched I Have Alzheimer's Disease, a free web guide developed with input from people living with Alzheimer's disease and their caregivers. The guide is designed to empower those in the early stages of Alzheimer's to move past the feeling of isolation that often comes with a diagnosis and on to planning, preparing, and receiving support after diagnosis. The guide includes videos and links to local resources.