News and Notes 45 December 5

This issue includes a presentation on sleep problems and Sleep Apnea in persons with SCI, preparation of a factsheet on Itchy Skin After Burn Injury, AAPD Summer Internship Program, interview with George H. Kraft by KUOW on MS, research presented at The International Society for Quality of Life Research conference, and a debut of websites highlighting research activities.

Date sent: 
NARIC news: 

We're currently at the Marriott Renaissance in Arlington for the 2012 National Employment Conference with our friends from the NIDRR-funded AbleData project. The conference agenda (DOC) is packed with interesting sessions on vocational rehabilitation, transition, technology, collaborating with business, and more! The conference runs through Friday afternoon. We're looking forward to seeing you there!  

Resource Highlight: 

Sleep Problems and Sleep Apnea in Persons with SCI
The NIDRR-funded Northwest Regional Spinal Cord Injury System (H133N110009) presents Sleep Problem and Sleep Apnea in Persons with Spinal Cord Injury, the latest in its SCI Forum Series. This presentation reviews the causes and consequences of sleep problems, including a detailed discussion of sleep apnea, and explains treatments that can improve health and well-being.

NIDILRR News and Events: 

NIDRR Research Presented at International Society for Quality of Life Research Conference
Researchers from the NIDRR-funded Rehabilitation Research and Training Center on Improving Measurement of Medical Rehabilitation Outcomes (H133B090024) shared several presentations at this year's International Society for Quality of Life Research annual conference in Budapest. Topics included measuring economic and financial quality of life, developing environmental factor items for persons with spinal cord injury, brain injury, and stroke, and evaluating environmental barriers and facilitators to community participation. Visit the center's publications website for copies of the presentations (see the first three under Presentations). 

News items: 

Multiple Sclerosis Research in the News
George H. Kraft, MD, co-principal investigator of the NIDRR-funded Multiple Sclerosis Rehabilitation Research and Training Center (H133B080025), was interviewed by KUOW in Seattle about the prevalence and causes of multiple sclerosis (MS), for a story titled "Search for Cause of High Rates of MS in Northwest Could Lead to New Treatments." Dr. Kraft discussed the genetics of MS as well as the history of MS research. 

NIDRR Projects Debut New Websites
Two NIDRR-funded centers debuted new websites highlighting research activities and featuring helpful resources for consumers.The Multiple Sclerosis Rehabilitation Research and Training Center (MS RRTC) (H133B980017) website includes a news blog, Facebook and Twitter pages, and new evidence-based factsheets on how to live well with MS. The New England Regional Spinal Cord Injury Center (NERSCIC) launched a redesigned site (H133N120002) which incorporates the SCI care, research, education, and community activities of the NERSCIC network sites, including Boston University Medical Campus, Gaylord Hospital, and the Hospital for Special Care. A library of recorded webcasts is also available on the new site.


Consumer Input Needed for Burn Injury Factsheet
The NIDRR-funded Northwest Regional Burn Model System (H133A120024) and the Model Systems Knowledge Translation Center are preparing a new consumer factsheet on Itchy Skin After Burn Injury. Individuals with burn injury and family members are invited to test the content in advance of publication. Contact for information on how to participate. 

Elsewhere in the Community: 

AAPD Summer Internship Program
The American Association of People with Disabilities (AAPD) is now accepting applications for its 2013 Summer in Washington Internship Program. AAPD places students and recent graduates with all types of disabilities in paid ten-week summer internships in Congressional offices, federal agencies, and nonprofit and for-profit organizations. AAPD provides accessible housing, a living stipend, and travel to and from Washington, DC for all summer interns. The application deadline is 5:00pm EST, January 11, 2013.