News and Notes 44 November 28

This issue includes Power Wheelchair Pressure Relief video, a study on SCI care, The World We Want discussion hosted by UNICEF and IDA, summaries to help Clinicians choose outcome measures, report on the rights of parents with disabilities featured on The Talk of the Nation, and a webcast with Maurice Sholas, MD, PhD, discussing Staying the Course: Mentorship to Be a Research Success.

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NARIC news: 

Here at NARIC, we continue to recognize National Family Caregivers Month. We receive many requests from family members helping care for loved ones living far from home. How do you provide care and support from across the country? Start by finding out what help is available locally, and organize neighbors and friends in the area. The Handbook for Long-Distance Caregivers (PDF) from the Family Caregiver Alliance provides excellent guidance and resources for families starting this journey. Our Librarians Picks: Caregiving brochure (PDF) has additional resources. 

Resource Highlight: 

Power Wheelchair Pressure Relief
The NIDRR-funded Rehabilitation Research and Training Center on Secondary Conditions in the Rehabilitation of Individuals with Spinal Cord Injury (H133B090002) offers Power Wheelchair Pressure Relief Video and Factsheet. The 5-minute video features several methods to relieve pressure from the buttocks and bony areas such as tilting, reclining, and leaning. Feedback and comments are welcome. 

News items: 

Tearsheets to Help Clinicians Choose Outcomes Measures
The NIDRR-funded project Rehabilitation Research and Training Center on Improving Measurement of Medical Rehabilitation Outcomes (H133B090024), in collaboration with the Archives of Physical Medicine & Rehabilitation (APMR), has begun the publication of one-page instrument summaries designed to address the use of an outcome measure in a specific patient population for clinicians. The tearsheets appear in the Organization News section of APMR in odd-numbered months throughout the year (by subscription only) and will be indexed in REHABDATA. The first tearsheet, appearing in the September issue, featured the 6-Minute Walking Test. November's issue featured the Executive Function Performance Test.

National Report on the Rights of Parents with Disabilities Featured on Talk of the Nation
Ella Callow, JD, Legal Program Director of the NIDRR-funded National Center for Parents with Disabilities and Their Families (H133A080034), appeared on NPR's Talk of the Nation discussing Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children. In addition to writing several sections, Dr. Callow was instrumental in providing the legal foundation for the report, which was prepared by the National Council on Disability and submitted to Congress and the White House in September.

Grantee event: 

Webcast: Staying the Course: Mentorship to Be a Research Success
The NIDRR-funded Project Empowerment: Building Research Infrastructure Capacity (H133A080060) presents a webcast with Maurice Sholas, MD, PhD, current Medical Director of Rehabilitation Services at Children’s Healthcare of Atlanta, discussing Staying the Course: Mentorship to Be a Research Success. The webcast will take place December 5th, 2pm EST. Registration is free but required. The archived version will be available for future viewing as well.


The NIDRR-funded Northwest Regional Spinal Cord Injury (SCI) System (H133N110009) is studying the effects of collaborative care for SCI to manage physical inactivity, chronic pain, and depression. Participants must be 18 or older, outpatients at Harborview or the University of Washington Medical Center, and experiencing significant problems in one or more of these three areas. To learn more, call 206/744-3608 or send an email to

Elsewhere in the Community: 

The World We Want 2015
UNICEF and the International Disability Alliance host weekly discussions on equality and people with disabilities for The World We Want 2015. The purpose is to gather views from a broad range of stakeholders on how to ensure inequalities in regards to persons with disabilities are addressed in the post-2015 development agenda. The results of the discussion will be incorporated into a report on "Addressing Inequalities in the Post-2015 Development Agenda," to be presented at a high-level leadership meeting in February 2013 in Copenhagen. The report will also be transmitted to the High-Level Panel on Post-2015, appointed by the UN Secretary-General. Learn how to participate in the discussion.