News and Notes 41 November 7

This issue includes consumer factsheets for SCI, TBI, and Burn Injury in Spanish, a survey of mothers with physical disabilities, National Family Caregivers Month, APMR special issue focuses on evidence-based practice, announcement of 2012 scholarships for students of parents with disabilities, Snow World video game helping with pain management, PAS discuss the potential of managing long term care costs.

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NARIC news: 

This week we will celebrate the 22nd anniversary of the signing of the Americans with Disabilities Act!Join the celebration by posting your memories of that day in 1990 or sharing what the ADA has meant to you on our Facebook page! Are you interested in ADA research and resources? Check out the top 1,000 reports, books, and articles indexed in REHABDATA.

Resource Highlight: 

Consumer Factsheets in Spanish
The NIDRR-funded Model Systems Knowledge Translation Center (H133A110004) has translated all of the Model Systems' factsheets for spinal cord injury, traumatic brain injury, and burn injury into Spanish. More than 40 individual factsheets are available, with Spanish versions linked in PDF format. For a quick list of the Spanish editions, see this NARIC Spotlight blog post.

News items: 

APMR Special Issue Focuses on Evidence-Based Practice
The August supplemental issue of Archives of Physical Medicine and Rehabilitation (APMR) focuses on developing and using evidence to improve rehabilitation practice. This issue features seven articles produced by NIDRR-funded projects (H133A120164). Abstracts for each article are available from APMR.

2012 Scholarships for Students of Parents with Disabilities Announced
The NIDRR-funded National Center for Parents with Disabilities and Their Families (H133A110009) announced the winners of its 2012 scholarship competition. Each award is a $1,000 college scholarship for an outstanding high school senior or college student who has at least one parent with a disability. Sixteen winning essays were selected from more than 700 applications. The next round of applications will be announced in January 2013. 

Video Game Helps with Pain Management
SnowWorld, a video game tested for its early efficacy by the NIDRR-funded University of Washington Burn Model System (2002-2007) (H133A070047), is helping patients manage pain during treatment for burns and other painful conditions. Participants who played the game, highlighted by Buzz60, found that throwing virtual snowballs at snowmen and penguins helped manage pain as well or better than morphine, without the risks of addiction. NPR’s All Things Considered interviewed one veteran who forgot his pain in its “cold, cool, and cartoony” world. In a second story, researchers noted the therapy also relieved stress for nurses and therapists who know their treatments are causing pain.

Long-Term Care Costs in Focus
H. Stephen Kaye, PhD, principal investigator for the NIDRR-funded Rehabilitation Research and Training Center on Personal Assistance Services in the 21st Century (H133A130004), discussed the potential of managed long term supports and services, and his research on the impact of expansion of home and community services in "With Medicaid, Long-Term Care of Elderly Looms as a Rising Cost" in the New York Times. The article appeared on page A1 of the Sept 7th edition.

Grantee event: 

Save the Date: Transition Age Youth and Emerging Adult Mental Health Research and Policy Mini-Conference
The NIDRR-funded Transitions RTC: Learning and Working During the Transition to Adulthood (H133B090018) is collaborating with the Child and Family Studies Division of Florida Mental Health Institute at the University of South Florida to organize a mini-conference on transition age youth and emerging adults within the 26th Annual Children’s Mental Health Research and Policy Conference March 3rd to 6th, 2013 in Tampa, FL. Submission of papers, symposia, and posters is encouraged, indicate Topic Area #13 “Innovative Approaches for Older Youth and Young Adults.” Deadline for submission has been extended to November 12th.


Survey of Mothers with Physical Disabilities
The NIDRR-funded National Center for Parents with Disabilities and Their Families (H133A080034) is conducting a national survey of mothers with physical disabilities who have at least one child 36 months of age or younger. You must be 18 years of age or older. Eligible participants who complete the survey will have a chance to win a $250 gift certificate. The deadline for completing the survey is December 17, 2012.

Elsewhere in the Community: 

National Family Caregivers Month
November is National Family Caregivers Month. More than 65 million Americans provide daily care and support to their loved ones, often while experiencing their own health crises. Throughout the month, organizations such as the National Family Caregiver Association and the Family Caregiver Alliance National Center on Caregiving will offer programs and materials to celebrate family caregivers and educate the community about their important role in continuity of care.