News and Notes 282 September 27
NARIC offers new video, Get to Know NARIC, showing how to navigate inside its website, including the REHABDATA and NIDILRR Program Databases; Research in Focus discusses problem-solving styles of adolescents with TBI facing social situations; Parents Empowering Parents: National Research Center for Parents with Disabilities and their Families debuts website featuring training and technical assistance to support parents with disabilities and their families, as well as disability professionals and researchers; amantadine-related research from Brain Research in Aggression and Irritability Network (BRAIN): Building Evidence-Based Approaches to Managing Traumatic Brain Injury (TBI) is highlighted in latest episode of APMR's RehabCast podcast; Spaulding Hospital-New England Regional Spinal Cord Injury Center to host webcast, Intermittent Low Oxygen Therapy (iLOT): A Breath-Taking Approach to Improve Function After Spinal Cord Injury (SCI); Southwest ADA Regional Center seeks participants for survey on the use of assistance animals by people with disabilities in public settings; Administration for Community Living (ACL) issues brief, Educating Adults About Chronic Disease Self-Management.
As a News and Notes reader, you know that we share many resources from the NIDILRR grantee community -- from upcoming events and ready-to-download publications to research-based news and achievements. You can find much more information about the NIDILRR community at our website, where you can search the NIDILRR Program Database and look for grantee-produced articles in the REHABDATA indexing database. Learn more about NARIC, our website, and how to get the most out of our advanced search functions in this new video, Get to Know NARIC!
Research In Focus:
For Adolescents with Traumatic Brain Injury, Problem-Solving Styles Matter in Social Situations
Young people with traumatic brain injury (TBI) may find social situations challenging, and how they approach those challenges matters, in this week's Research In Focus.
National Research Center for Parents with Disabilities
The NIDILRR-funded Parents Empowering Parents: National Research Center for Parents with Disabilities and their Families (DPGE0001) debuted a new website featuring training and technical assistance to support parents with disabilities and their families, as well as disability professionals and researchers. The Parents section features articles and advice for people with disabilities who are or would like to become parents, parenting "know-how" videos featuring advice from parents with disabilities, and articles for parents seeking to advocate for their rights. The Professionals section includes resources for child welfare and social workers, legal professionals, and researchers on working with parents with disabilities and their families, including recommendations for clinicians.
Model Systems Research Highlighted in RehabCast
Research from the NIDILRR-funded Brain Research in Aggression and Irritability Network (BRAIN): Building Evidence-Based Approaches to Managing Traumatic Brain Injury (TBI) (90DP0036) was highlighted in the latest episode of the RehabCast podcast from the Archives of Physical Medicine and Rehabilitation (APMR). The host discussed the article Potential impact of amantadine on aggression in chronic traumatic brain injury (abstract), published in the September/October 2017 issue of the Journal of Head Trauma Rehabilitation, including the theory behind the use of amantadine in TBI and the results reported in the study. RehabCast is available on multiple platforms.
Online KT Conference: Knowledge Translation Outcome Measurement
The NIDILRR-funded Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) (90DP0027) will host an online conference, Knowledge Translation Outcome Measurement, October 30th, November 1st, and November 3rd. This year's online conference is designed for researchers and others to learn about major strategies in the planning and implementation of effective and efficient KT measurement approaches. Presentations will cover overcoming barriers to outreach, tools for tracking implementation, and strategies for measuring impact. Registration is free and required by October 26th.
Webcast: Intermittent Low Oxygen Therapy (iLOT) - A Breath-Taking Approach to Improve Function After SCI
The NIDILRR-funded Spaulding Hospital-New England Regional Spinal Cord Injury Center (90SI5012) will host a webcast, Intermittent Low Oxygen Therapy (iLOT): A Breath-Taking Approach to Improve Function After Spinal Cord Injury (SCI), October 5th, 6:30-8pm ET, part of the Knowledge in Motion (KiM) lecture and webcast program. Presenters will discuss the use of iLOT, in combination with other cutting-edge SCI rehabilitation technologies, as a way to stimulate greater recovery than exercise alone. The KiM program is designed for individuals living with SCI, their family members, friends, and healthcare professionals with the ultimate goal of presenting SCI research using language that can be understood without a medical or scientific background. Previous KiM programs are available online. Registration is free and required.
Assistance Animal Survey
The NIDILRR-funded Southwest ADA Regional Center (90DP0092) is conducting a survey to learn more about the use of service animals and other assistance animals by people with disabilities in public settings. The survey is open to US residents 18 and over who use a service animal and parents of a child with a disability who uses a service animal. The information gathered will be used by researchers to understand what access issues people may experience with their animals, as well as to develop and improve the information, support, and guidance needed for the community to improve access for assistance animal teams. These findings will also be used to improve the trainings and technical assistance that the Southwest ADA Regional Center provides to the public on this topic. All personal data collected in the survey will be kept anonymous and confidential. For questions or additional information, contact Marisa Demaya at firstname.lastname@example.org.
Educating Adults About Chronic Disease Self-Management
The Administration for Community Living (ACL) has issued a brief, Educating Adults About Chronic Disease Self-Management (DOC). This issue brief describes the presence of chronic conditions in the US population, discusses self-management programs generally, and then focuses on those programs that rely on peer leaders who educate small groups about chronic disease self-management. Next, the issue brief covers the research underpinning the successful testing, implementation, and scaling-up of this type of program in the US. Finally, the issue brief offers options for states and localities to consider related to implementing and sustaining chronic disease self-management programs.