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Perceived impact of the COVID-19 pandemic among people with spinal cord injury: A descriptive study

This article in Archives of Rehabilitation Research and Clinical Translation describes the self-reported impact of the COVID-19 pandemic on the lives of persons with spinal cord injury (SCI). In interviews with more than 350 adults with traumatic SCI, the authors found that the COVID-19 pandemic had multiple negative impacts. Of particular importance were reduced access to healthcare and declines in quality and stability of attendant care, with greater reliance on family.

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Family Caregivers Navigating the Health Care System: Evolving Roles During the COVID-19 Pandemic

Journal article from Families, Systems, and Health, examines changes in family caregiver roles during the pandemic, specifically those helping people with chronic conditions and disabilities to navigate healthcare needs. Caregivers reported whether they were helping “more,” “less,” or the “same” with ten health care activities (e.g., filling prescriptions, attending medical appointments) now, compared to before the coronavirus pandemic.

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Achieving Equity in a Time of Scarcity: Lessons from the COVID-19 Vaccine Experience

This archived webinar from the Americans with Disabilities Act (ADA) National Network Learning Series reviewed the experiences of Medicaid beneficiaries and people with disabilities in California and nationally related to vaccine prioritization and deployment. Presenters reflected on lessons for policy and practice that will support greater equity moving forward. The webinar featured Andy Imparato, executive director of Disability Rights California, and MaryBeth Musumeci, associate director at the Program on Medicaid and the Uninsured at the Kaiser Family Foundation (KFF)

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Access to COVID-19 Vaccines: Issues and Barriers for Persons with Disabilities

In this archived webinar, speakers addressed policies regarding the determination of who is eligible to receive the vaccines during the various phases of the rollout and the disparities that exist. In addition, this session discussed how the ADA applies to the state/local governments and private organizations administering the vaccinations, web based and telephone systems used to search/locate and schedule a vaccine appointment, vaccination site accessibility, effective communication with recipients and modifications in policies, practices and procedures.

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Self-Management Education and Support Referral Algorithm

Self-Management Education and Support Referral Algorithm is designed to help primary care providers follow guidelines recommended by the Institute of Medicine to choose a self-management program to meet their patients’ needs at different stages of emotional distress. The algorithm identifies what kinds of knowledge patients need, the self-management programs that provide it, and how to locate these programs in their local communities.

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America at a glance: Early fears realized as COVID-19 surges in rural counties

This research brief uses map data to explore the growing strain on healthcare in rural communities that have a disproportionate share of those living with disability, advanced age, and health complications, and those living in congregate settings.

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COVID-19 and disability in rural areas: Rural/urban differences in trust in sources and preventative practices

This research brief describes results of a survey conducted in the Spring to explore rural and urban differences in COVID-19 health risks, adherence to public health recommendations, and trust in different information sources.Summary findings: Rural respondents reported higher rates of COVID-19 health risk factors, but less adherence to public health recommendations. Overall, individuals with health risk factors reported adopting fewer public health recommendations than individuals without health risk factors. Service providers and Dr.

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