caregiving

Journal article from Families, Systems, and Health, examines changes in family caregiver roles during the pandemic, specifically those helping people with chronic conditions and disabilities to navigate healthcare needs. Caregivers reported whether they were helping “more,” “less,” or the “same” with ten health care activities (e.g., filling prescriptions, attending medical appointments) now, compared to before the coronavirus pandemic.

This study explored the impact of the pandemic on the mental health and well-being of Latinx caregivers of children with IDD. Specifically, researchers (1) identified which social determinants of health are correlated with maternal caregivers perceived general health, mental health, and well-being; (2) explored the impact of the pandemic on families’ overall eating and physical activity routines; and (3) identified emergent themes from caregivers’ experiences during the pandemic.

In this archived webinar, parents with disabilities discuss the challenges of parenting during the pandemic and share their strategies and solutions to meet those challenges and support their families during this very difficult time.

This study compared family caregivers with non-caregivers on physical, psychosocial, and financial well-being outcomes during the pandemic and determine family caregivers most at risk for adverse outcomes. The study found that the challenges of caregiving are exacerbated by the COVID-19 pandemic. Family caregivers reported increased duties, burdens, and resulting adverse health, psychosocial, and financial outcomes. Results were generally consistent with caregiver stress-health process models. Family caregivers should receive increased support during this serious public health crisis.

Infographic presenting the results of a survey of family caregivers. Caregivers reported increased caregiving duties, providing care became more difficult physically and emotionally, caregivers experienced increased mental health and financial stress, and they experienced lack of access to health care and in-home services.

A sortable, searchable table of information about vaccine eligibility for unpaid family caregivers in each state.  Users can sort the table and also search within it to easily find the information that you’re looking for. The table is updated weekly on Mondays.

Report of a survey of caregivers and non-caregivers to understand the impact of the pandemic. Family caregivers reported more negative effects from the pandemic than non-caregivers. They were more likely to be experiencing isolation, food insecurity, and financial hardship, among other issues. Family caregivers also reported that the pandemic had increased their caregiving responsibilities, and that providing care was more emotionally, physically, and economically difficult.