Continuing the ADA Anniversary Celebration. Moderating effects of informal care on the relationship between ADL limitations and adverse outcomes in stroke survivors. Top ADA frequently asked questions. Health Care Hero Award. Webinar: Leveraging observational data in the BMS database. Webinar: Accessible storytelling for film and video. Disability and aging and work needs survey. Protection and advocacy organizations. Stroke rehab advances.
NARIC News:
We continue our celebration of the Americans with Disabilities Act (ADA) by exploring some of the communities or situations where you might not expect the ADA to apply. Some people may not know they have rights under the law, such as older adults, cancer survivors, or people who experience migraines. Others may not know whether they have responsibilities they need to address, such as social media content creators, gig economy workers, or volunteer-run organizations. As we've noted all month, the ADA National Network can help you understand whether you have rights or responsibilities under the law. We shared some more of their resources covering the law in areas people might not immediately associate with the ADA in our Spotlight blog.
This Just In:
Moderating effects of informal care on the relationship between ADL limitations and adverse outcomes in stroke survivors. Stroke, Volume 55(6), Pgs. 1554-1561. NARIC Accession Number: J94469.
New to the NARIC collection, this NIDILRR-funded study investigated whether the amount of informal caregiving received (hours per week) moderated the relationship between limitations in activities of daily living (ADL) and adverse outcomes, including falls, overnight hospital stays, and physical function decline experienced by stroke survivors. The study used data for community-dwelling participants who had at least one formal or informal caregiver and reported stroke in the prior year. Results showed almost 73 percent of stroke survivors experienced at least 1 adverse outcome 2 years after the stroke. The relationships between informal caregiving hours and adverse outcomes and between ADL limitations and adverse outcomes were positive. Those who received the lowest amount of informal caregiving had a rate of 0.12 more adverse outcomes per ADL than those who received the highest amounts. Findings suggest that informal caregiving hours moderated the relationship between ADL limitations and adverse outcomes in this sample of community-based stroke survivors. Access the full abstract and ordering information in REHABDATA.
Resource Highlight:
Top ADA Frequently Asked Questions
The NIDILRR-funded ADA Network Knowledge Translation Center (90DPAD0004) updated the 13 most frequently asked questions (FAQs) about the Americans with Disabilities Act (ADA) as part of their redesigned website. The questions touch on a wide array of ADA-related topics, including the definition of disability under the ADA, service animals, reasonable accommodations, and the responsibilities of public and private colleges to students with disabilities, among others. The Center also features a searchable FAQ knowledge base to search by keyword, topic, and audience.
News from the NIDILRR Community:
NIDILRR Investigator Receives Health Care Hero Award
Nancy Chiaravalloti, PhD, principal investigator for the NIDILRR-funded Northern New Jersey Traumatic Brain Injury System Center (NNJTBIS) (90DPTB0032), was recognized as a Health Care Hero by NJBIZ, the leading publisher of business news in New Jersey. The awards recognize excellence, promote innovation, and honor those making a significant impact on the quality of health care. Dr. Chiaravalloti received the award in the Innovation category for work that has shaped evidence-based approaches to cognitive rehabilitation, influenced clinical practice, and expanded access to effective, non-pharmacologic treatments for individuals living with TBI and other neurological conditions.
Events:
Webinar: To Confound or Not to Confound - Leveraging Observational Data in the BMS Database to Emulate Randomized Trials
The NIDILRR-funded Burn Model System (BMS) National Data and Statistical Center (90DPBU0009) will host a webinar, To Confound or Not to Confound: Leveraging Observational Data in the BMS Database to Emulate Randomized Trials, August 20th, 1 - 2 pm ET. Presenters will address how to design research questions and avoid possible drawbacks when emulating randomized trials using the BMS database. Registration is free and required.
Webinar: Accessible Storytelling for Film and Video
The NIDILRR-funded Great Lakes ADA Regional Center (90DPAD0012) will host a webinar, Accessible Storytelling for Film and Video, August 20th, 2 - 3:30 pm ET. Presenters will explore three key Americans with Disabilities Act (ADA) video accessibility requirements: closed captions, visual description, and transcripts. Presenters will discuss best practices for creating high-quality media accessibility assets, do-it-yourself tools for institutions, and concrete steps that media producers and others can take to produce films and videos with accessibility in mind. Registration is free and required.
Opportunity to Participate:
Disability and Aging and Work Needs Survey
The NIDILRR-funded project Technologies to Support Aging Among People with Long-Term Disabilities (TechSAge) (90REGE0021) seeks participants aged 50 and older with vision, mobility, or hearing difficulties who are currently working and/or volunteering for at least 20 hours per week for the Disability and Aging and Work Needs Identity Survey (DAWN-IS). The survey assesses how older workers with disabilities identify as an older worker and/or a person with a disability in the context of their job. For more information, contact dawn-study@illinois.edu or 217/300-5445.
Elsewhere at ACL:
ACL Seeks Feedback on Protection and Advocacy Organizations
The Administration for Community Living (ACL) invites individuals to complete a brief survey about their awareness of Protection and Advocacy (P&A) organizations and, if applicable, any experiences with their services. P&A organizations play an important role in protecting the rights of people with disabilities by providing advocacy, information and referral, investigations, legal assistance, training, and other supports. Feedback from the surveys will help ACL identify opportunities to increase awareness of these services, improve accessibility, and strengthen the P&A network. The survey closes August 7th.
Elsewhere in the Community:
NIH Spotlights Advances in Stroke Rehabilitation
The National Institutes of Health (NIH) published an article, Boosting Stroke Recovery: Advances in Rehabilitation Therapy, in a recent issue of NIH News in Health. The article explains how a stroke can impact physical and cognitive function and outlines the benefits of rehabilitation to build back skills. It highlights recent research advancing rehabilitation in muscle use and language recovery.