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Experiences of Individuals Self-Directing Medicaid Home and Community-Based Services During COVID-19

This Disability and Health journal article describes a study which sought to investigate the experiences of individuals self-directing during COVID-19. In particular, researchers used semi-structured interviews to explore the following areas: 1) How have individuals maintained access to HCBS and workers?; 2) How have individuals maintained safety against COVID-19?; and 3) How have individuals maintained their health and well-being?

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Impact of COVID-19 on the Mental Health and Well-Being of Latinx Caregivers of Children with Intellectual and Developmental Disabilities

This study explored the impact of the pandemic on the mental health and well-being of Latinx caregivers of children with IDD. Specifically, researchers (1) identified which social determinants of health are correlated with maternal caregivers perceived general health, mental health, and well-being; (2) explored the impact of the pandemic on families’ overall eating and physical activity routines; and (3) identified emergent themes from caregivers’ experiences during the pandemic.

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Coping with COVID: Parenting with a Disability During a Pandemic

In this archived webinar, parents with disabilities discuss the challenges of parenting during the pandemic and share their strategies and solutions to meet those challenges and support their families during this very difficult time.

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Family Leisure Planning and COVID-19

The guide shares information about the benefits of engaging in family leisure and includes resources for planning memorable activities at home. The guide also provides comics that serve as examples of family leisure planning during the COVID-19 pandemic.

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Elder Abuse in the Time of COVID-19—Increased Risks for Older Adults and Their Caregivers

This article outlines how the current pandemic may impact older adults, their caregivers, and the caregiving context to increase elder abuse risk and present interventions for healthcare providers to consider that may help to reduce this risk. This was published in the August 2020 issue of the American Journal of Geriatric Psychiatry.

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How to Videos for Handwashing

The center has set up a collection of hand hygiene videos for families and professionals supporting individuals with ASD. How to: Teaching Handwashing explains how to cover hand hygiene, learning styles and challenges to consider, and examples of teaching strategies. How to: Handwashing for Individuals with ASD demonstrates hand hygiene in simple, straightforward language and images.

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Parents Chime In: Our Self-Care Strategies While Supporting Loved Ones with Mental Health Conditions During a Pandemic

Members of this center's Family Advisory Board share their advice on taking care of themselves and their family while they take care of a loved one with mental health conditions. This factsheet also includes links to organizations and other publications.

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