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Physical and Mobility Disabilities

This page lists by topic area a collection of organizations, journals, and online resources that provide information about treatment, support, or services for people with disabilities, as well as their families and professionals who support them.

On this page:

Not finding what you need? Search our Community Resources Database or get help from an information specialist.

Amputation

Burn Injuries

  • American Burn Association (ABA).
    The ABA and its members dedicate their efforts to promoting and supporting burn-related research, education, care, rehabilitation, and prevention.
     
  • Children’s Burn Foundation.
    Children’s Burn Foundation is a nonprofit organization dedicated to providing support services for child burn survivors, ages 0-18, and their families. The Full Recovery Program for child burn survivors is a blend of medical care, psycho-social support services, and daily living support to help young burn survivors achieve their full potential.
    Email: info@childburn.org.
    For general inquiries and information, fill out their contact form.
     
  • Model Systems Knowledge Translation Center (MSKTC) – Burn Injuries.
    MSKTC summarizes research, identifies health information needs, and develops information materials for individuals living with burn injury and people who support them. The evidence-based materials are available in a variety of platforms: consumer-oriented factsheets; slideshows on topics related to living with a burn injury; and the hot topic modules consists of resources to help individuals with burn injuries navigate employment and exercise after burn injury.
    Phone: (202) 403-5600.
    TTY: (877) 334-3499.
    Email: msktc@air.org.
     
  • Phoenix Society for Burn Survivors.
    The Phoenix Society for Burn Survivors is a national nonprofit organization dedicated to empowering anyone affected by a burn injury through peer support, education, and advocacy. Their Resource Library offers articles on a wide variety of topics including personal stories, practical tools, and information to support the journey of recovery. Burn recovery programs support survivors and families physically, socially, and emotionally throughout the healing process.
    Toll free: (800) 888-2876.
    Phone: (616) 458-2773.
    Email: info@phoenix-society.org.
    Contact Form.

Cancer and Oncology

  • American Cancer Society (ACS).
    ACS helps to improve the lives of people with cancer and their families through advocacy, research, and patient support to ensure that everyone has an opportunity to prevent, detect, treat, and survive cancer. ACS programs and services include free rides to treatment, free lodging during treatment, ACS CARES, free smoking cessation support, and many ways to connect with survivors for support.
    Toll free: (800) 227-2345.
     
  • American Institute for Cancer Research (AICR).
    AICR supports research from around the world on cancer prevention and survival through diet, weight, and physical activity to help people make informed lifestyle choices to reduce their cancer risk.
    Toll Free: (800) 843-8114.
    Fax: (202) 328-7226.
    Contact form.
     
  • CancerCare.
    Professional oncology social workers at CancerCare provide free emotional and practical support for people with cancer, caregivers, loved ones, and the bereaved. Their services include resource navigation, counseling, and support groups over the phone, online, and in-person, along with educational workshops, publications, and financial and co-payment assistance.
    Toll Free: (800) 813-HOPE (4673).
    Email: info@cancercare.org.
     
  • Cancer Hope Network (CHN).
    CHN provides free one-on-one emotional peer support for adult cancer patients and their loved ones and provides connections and resources to more than 50,000 individuals facing cancer. 
    Toll Free: (877) HOPENET (467-3678); available Monday through Friday from 9am to 5:30pm ET.
    Email: info@cancerhopenetwork.org.
     
  • National Cancer Institute (NCI).
    NCI is the federal government’s principal agency for cancer research and training. NCI leads, conducts, and supports cancer research across the US to advance scientific knowledge and help all people live longer and healthier lives. NCI provides evidence- and research-based information related to causes and risk factors, symptoms, how cancer is diagnosed, and more for people with cancer and their families and provides resources to help researchers conduct their work and apply for funding and training opportunities.
    Toll Free: (800) 4-CANCER (422-6237).
    Email: NCIinfo@nih.gov.
    Live chat.

Paralysis

  • National Paralysis Resource Center (NPRC).
    NPRC is a free, comprehensive, national source of information support for people living with paralysis and their caregivers and fosters involvement in the community and promotes health and improvement of a person’s quality of life.
    Toll Free: (800) 539-7309; Information specialists are available Monday to Friday from 7 am to 12 am ET.
     
  • Paralyzed Veterans of America (PVA).
    PVA provides advocacy and information association with brochures covering such topics as accessibility, legislation, assistive technology, and sports. The website includes SCI related news, research and treatment guides, chapter information and Internet links.
    Toll Free: (800) 424-8200; (800) 795-4327 (TTY).
    Email: info@pva.org.

Spina Bifida

Spinal Cord Injury (SCI)

  • Christopher and Dana Reeve Paralysis Resource Center (PRC).
    PRC promotes the health and wellbeing of people living with paralysis and their families through comprehensive information resources and referral services.
    Toll free: (800) 225-0292; available Monday through Friday from 9 am to 5 pm ET.
    Email: InfoSpecialist@Reeve.org.
     
  • FacingDisability.com.
    Provides medical information and resources and connects people with spinal cord injuries and their families with others with similar experiences.
    Phone: (312) 284-2525.
    Fax: (312) 284-2530.
    Email: info@facingdisability.com.
     
  • Model Systems Knowledge Translation Center (MSKTC) – SCI.
    The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs and develops information materials for individuals living with spinal cord injury (SCI) and the people who support them. The evidence-based materials are available in a variety of platforms: consumer-oriented PDF factsheets; slideshows on topics related to living with an SCI; and the hot topic module consists of resources to help individuals with SCI diagnose, manage, and treat their pain.
    Phone: (202) 403-5600; (877) 334-3499 (TTY).
    Email: msktc@air.org.
     
  • Northwest Regional Spinal Cord Injury System (NWRSCIS).
    NWRSCIS is a regional center of spinal cord injury care, research, and education in the Department of Rehabilitation Medicine at the University of Washington. Improves the lives of people with spinal cord injuries through care, research, and education.
    Phone: (206) 616-2183.
    Fax: (206) 685-2183.
    Email: nwrscis@u.washington.edu.
     
  • Spinal Cord Injury at Craig Hospital.
    Craig Hospital’s website offers educational information to assist SCI survivors, caregivers, and researchers in the areas of health maintenance, lifestyle choices, and improving quality of life.
    Phone: (303) 789-8000.
    Email: rehab@craighospital.org.
    • Nurse Advice Line: (800) 247-0257 or (303) 789-8508; provides answers to non-emergency calls about SCI or brain injury; Available Monday to Friday.
       
  • Spinal Cord Injury Information Network.
    The Network disseminates information based on research activities surrounding the prevention and treatment of secondary complications of SCI. The website contains an extensive variety of reports and fact sheets.
    Phone: (205) 934-3283.
     
  • United Spinal Association.
    The United Spinal Association serves as a comprehensive information source for anyone affected by spinal cord injury (SCI). Referrals and consultations are available through the national office or one of the state chapters. The website includes fact sheets, rehabilitation centers by state, and state chapter information, among others.
    Email: askus@unitedspinal.org.
    • New Mobility is the magazine from United Spinal Association, which shares the exploration and enjoyment of life as a wheelchair user.