This page lists by topic area a collection of organizations, journals, and online resources that provide information about treatment, support, or services for people with disabilities, as well as their families and professionals who support them.
Intellectual and Developmental Disabilities
- Office of Intellectual and Developmental Disabilities (OIDD).
OIDD within the Administration on Disabilities is dedicated to ensuring that individuals with developmental disabilities and their families are able to fully participate in and contribute to all aspects of community life in the United States and its territories.
Phone: (202) 619-0724.
Email: aclinfo@acl.hhs.gov.
- American Association on Intellectual and Developmental Disabilities (AIDD).
AAIDD promotes progressive policies, research, effective practices and universal human rights for people with intellectual and developmental disabilities.
Phone: (202) 387-1968.
- Children/Adults with Attention Deficit Disorder (CHADD).
CHADD improves the lives of people affected by ADHD through collaborative leadership, advocacy, research, education, and support.
Phone: (301) 306-7070.
Fax: (301) 306-7090.
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD).
NICHD provides information on their research, clinical trials at the Institute and other centers, and links to resources and publications. Trained information specialists direct people to health information, related resources, and ordering materials.
Toll Free: (800) 370-2943; available Monday through Friday, 8:30 am to 4:30 pm ET.
Fax: (866) 760-5947.
Email: NICHDInformationResourceCenter@mail.nih.gov.
- National Association of Councils on Developmental Disabilities (NACDD).
National Association of Councils on Developmental Disabilities (NACDD).NACDD's mission is to provide support and assistance to member Councils to promote a consumer and family centered system of services and supports for individuals with developmental disabilities.
Phone: (202) 506-5813.
Email: info@nacdd.org. - National Association of States Directors of Developmental Disabilities Services (NASDDDS).
NASDDS represents the nation’s agencies in each state, Puerto Rico, and the District of Columbia that provide services to children and adults with intellectual and developmental disabilities (IDD) and their families. NASDDDS promotes systems innovation and the development of national policies that support home and community-based services for people with IDD and their families.
Phone: (703) 683-4202.
Email: cmcgraw@nasddds.org.
Contact form. - National Down Syndrome Society (NDSS).
NDSS empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Toll free: (800) 221-4602; available Monday to Friday from 9 am to 5 pm, ET.
Fax: (646) 870-9320.
Email: info@ndss.org.
- The Arc.
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full participation in the community throughout their lifetimes.
Toll Free: (800) 433-5255.