Skip to main content

Autoimmune and Other Chronic Conditions

This page lists by topic area a collection of organizations, journals, and online resources that provide information about treatment, support, or services for people with disabilities, as well as their families and professionals who support them. 

On this page:

Not finding what you need? Search our Community Resources Database or get help from an information specialist.

Arthritis

  • Arthritis Foundation.
    The Arthritis Foundation provides information and ways for people with arthritis to connect with others, advocates at the state and federal levels, and shares research.
    Helpline: (800) 283-7800.

Celiac Disease

  • Beyond Celiac.
    Beyond Celiac is a patient advocacy and research-driven organization that works to drive diagnosis, advance research, and accelerate the discovery of new treatments, and a cure. Beyond Celiac provides information for people with celiac disease and their families, works with researchers, and works with restaurants and other businesses and organizations to help people with celiac disease live health lives, free from social stigma and fear of gluten exposure.
    Toll free: (800) 856-6692.
    General Phone: (215) 325-1306.
     
  • Celiac Disease Foundation.
    The Celiac Disease Foundation is an advocacy organization committed to accelerating diagnosis, treatments, and a cure for celiac disease. The Foundation helps to improve the health and wellbeing of people with celiac disease around the world through research, advocacy, and education.
    Phone: (844) 593-8169; available Monday through Friday, noon to 8 pm ET.
    Contact Form.

Crohn’s Disease/Colitis

Diabetes

  • American Diabetes Association.
    The American Diabetes Association is a non-profit organization works to prevent and cure diabetes and to improve the lives of people with diabetes and their families. The Association funds research to prevent, cure, and manage diabetes; delivers services to people with diabetes and their communities; provides information; and advocates for people with diabetes and their families.
    Toll free: (800) DIABETES (342-2383); available Monday through Friday from 9 am to 5:30 pm ET.
    Email: askada@diabetes.org.
     
  • National Institute of Diabetes and Digestive and Kidney Disease (NIDDK).
    NIDDK research creates knowledge about and treatments for diseases, such as diabetes, that are among the most chronic, costly, and consequential for patients and their families. NIDDK provides evidence-based information on diabetes and related diseases.

Fibromyalgia

General Resources

Heart Disease

HIV/AIDS and Other STDs

  • National Center for HIV, Viral Hepatitis, STDs, and TB Prevention (NCHHSTP).
    NCHHSTP at the Centers for Disease Control and Prevention (CDC) confronts the root causes of infectious diseases by improving care and treatment access. NCHHSTP conducts disease prevention research; funds grassroots disease prevention programs; and develops data and educational material to support people with HIV/AIDS, viral hepatitis, STDS, and TB, clinicians, and others; among others.

Long COVID

  • National Heart, Lung, and Blood Institute - Long COVID.
    This conducts research on Long COVID and provides easy-to-read and evidence-based information.
     
  • Guidance from the Department of Health and Human Services (HHS).
    HHS shares guidance on Long COVID as a disability under the Americans with Disabilities Act (ADA), Section 504, and Section 1557.
     
  • Living with Long COVID - Centers for Disease Control and Prevention (CDC).
    The CDC shares information on living with Long COVID, including on what Long COVID is, symptoms, and more.

Lupus

Myalgia Encephalomyelitis/Chronic Fatigue

  • Solve ME/CFS Initiative.
    Solve ME/CFS Initiative (Solve ME) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID, and other post-infection diseases. Solve ME provides resources and information for patients/caregivers, medical providers, and researchers.
    Phone: (704) 364-0016.
    Email: SolveCFS@SolveCFS.org.

Psoriasis

Respiratory Diseases

Sickle Cell Disease