See also: Aging
Coronavirus Disease 2019 (COVID-19)
With the recent outbreak of COVID-19 here are several reliable Federal and State informational and guidance resources for caregivers:
- COVID-19 Guidance for Older Adults from the CDC
- COVID-19 Resources and Articles for Family Caregivers from the Family Caregiver Alliance (FCA)
- COVID-19/Other Public Health Emergencies and the Family and Medical Leave Act (FMLA) - FAQ
- Centers for Medicare & Medicaid Guidance for Infection Control and Prevention of Coronavirus Disease 2019 (COVID-19) in Nursing Homes
- Interium Guidance for Administrators of US K-12 Schools and Childcare Programs related to COVID-19 from the CDC
- Parent/Caregiver Guide to Helping Families Cope with COVID-19
- Talking to Children About COVID-19: A Parent Resource
- Talking with Children: Tips for Caregivers, Parents, and Teachers During Infectious Disease Outbreaks from SAMHSA
Caregiver Action Network (CAN)
CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Family Caregiver Alliance (FCA)
Toll Free: 800/445-8106, 415/434-3388
National Center on Elder Abuse
The NCEA serves as a national resource center dedicated to the prevention of elder mistreatment. First established by the AoA in the 1992 amendments made to Title II of the Older Americans Act.
Toll Free: 800/677-1116, Monday through Friday, 9am to 8pm excluding federal holidays
Elder abuse helplines and hotlines by state: ncea.acl.gov/resources/state.html.
Beach Center on Disability at the University of Kansas
Together with families and individuals affected by disability, the Beach Center on Disability strives to make a significant and sustainable difference in the quality of life of families and individuals.
Toll Free: 866/783-3378, 785/864-7600 (V)
Center for Parent Information and Resources (CPIR)
CPIR serves as a central resource of information and products to the community of Parent Training Information Centers and the Community Parent Resource Centers, so that they can focus their efforts on serving families of children with disabilities.
Locate Parent Training and Information Centers and Community Parent Resource Centers: www.parentcenterhub.org/find-your-center.
Disabled Parenting Project
The DPP is an online, interactive cross-disability parenting community for sharing experiences, advice, and conversations among disabled parents as well as those considering parenthood.
Resource Directory: www.disabledparenting.com/business-directory.
Resource Library: www.disabledparenting.com/library.
Exceptional Parent – Eparent.com
Online resource providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities and the professionals that work with them.
Toll Free: 800/372-7368
KidsHealth - Parents
PortalKidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. KidsHealth has separate areas for kids, teens, and parents — each with its own design, age-appropriate content, and tone. Created by The Nemours Foundation's Center for Children's Health Media.
National Resource Center for Parents with Disabilities Through the Looking Glass
Monday through Friday from 9 a.m. to 5 p.m. PST
Toll Free: 800/644-2666 (V), 510/848-1112
Parenting with a Mental Illness: Programs and Resources Guide
A comprehensive resource guide from the UPenn Collaborative to help parents, providers, and advocates find information about programs in their area.
Childhelp National Abuse Hotline
Children/Adults with Attention Deficit Disorder (CHADD)
Improving the lives of people affected by AD/HD through collaborative leadership, advocacy, research, education and support (CARES).
Toll Free: 800/233-4050, 301/306-7070
The Council for Exceptional Children (CEC)
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
Toll Free: 888/232-7733 (V), 866/915-5000 (TTY)
KidsHealth - Children/Teen Portal
KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence.KidsHealth has separate areas for kids, teens, and parents — each with its own design, age-appropriate content, and tone. Created by The Nemours Foundation's Center for Children's Health Media.
Provides support to parents/caregivers and acts as a reference source for information, financial resources, used equipment exchanges, research and clinical studies, support groups, web links, etc. Makes small individual grants (products & services only) to parents/caregivers of children with special needs for travel expenses, adaptive devices, durable medical equipment not covered by Medicaid, vehicle modifications, respite services, and non-covered items that would enhance caring for children with special needs easier and improve their quality of life.
National Dissemination Center for Children with Disabilities (NICHCY)
NICHCY is no longer in operation. Funding from the U.S. Department of Education’s Office of Special Education Programs (OSEP) ended on September 30, 2013 and access to the website and all its free resources ended September 30, 2014. The Center for Parent Information and Resources (CPIR) maintains legacy resources from NICHCY.
NICHCY legacy resources in English: www.parentcenterhub.org/nichcy-resources.
NICHCY legacy resources in Spanish: www.parentcenterhub.org/lista-espanol.
For English speakers… Index to NICHCY resources in Spanish: www.parentcenterhub.org/repository/spanish-to-english.
National Endowment for the Arts - Accessibility Resources
This is a partial listing of resources compiled by the Office for AccessAbility at the National Endowment for the Arts.
Phone: 202/682-5400, 202/682-5496 (V/TTY)
Support for Families of Children with Disabilities (SFCD)
Ensuring that families of children with any kind of disability or special health care need have the knowledge and assistance they need to make informed choices that support their child’s health, education and development.
Not finding what you need? Search our Knowlegebase of disability and rehabilitation resources: http://naric.com/?q=en/Knowledgebase.