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caregiving

Family Caregivers Navigating the Health Care System: Evolving Roles During the COVID-19 Pandemic

Journal article from Families, Systems, and Health, examines changes in family caregiver roles during the pandemic, specifically those helping people with chronic conditions and disabilities to navigate healthcare needs. Caregivers reported whether they were helping “more,” “less,” or the “same” with ten health care activities (e.g., filling prescriptions, attending medical appointments) now, compared to before the coronavirus pandemic.

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Impact of COVID-19 on the Mental Health and Well-Being of Latinx Caregivers of Children with Intellectual and Developmental Disabilities

This study explored the impact of the pandemic on the mental health and well-being of Latinx caregivers of children with IDD. Specifically, researchers (1) identified which social determinants of health are correlated with maternal caregivers perceived general health, mental health, and well-being; (2) explored the impact of the pandemic on families’ overall eating and physical activity routines; and (3) identified emergent themes from caregivers’ experiences during the pandemic.

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Coping with COVID: Parenting with a Disability During a Pandemic

In this archived webinar, parents with disabilities discuss the challenges of parenting during the pandemic and share their strategies and solutions to meet those challenges and support their families during this very difficult time.

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Family Caregiving During the COVID-19 Pandemic

This study compared family caregivers with non-caregivers on physical, psychosocial, and financial well-being outcomes during the pandemic and determine family caregivers most at risk for adverse outcomes. The study found that the challenges of caregiving are exacerbated by the COVID-19 pandemic. Family caregivers reported increased duties, burdens, and resulting adverse health, psychosocial, and financial outcomes. Results were generally consistent with caregiver stress-health process models. Family caregivers should receive increased support during this serious public health crisis.

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Effects of COVID-19 on Family Caregivers

Infographic presenting the results of a survey of family caregivers. Caregivers reported increased caregiving duties, providing care became more difficult physically and emotionally, caregivers experienced increased mental health and financial stress, and they experienced lack of access to health care and in-home services.

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COVID-19 Vaccine Eligibility for Caregivers

A sortable, searchable table of information about vaccine eligibility for unpaid family caregivers in each state.  Users can sort the table and also search within it to easily find the information that you’re looking for. The table is updated weekly on Mondays.

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Caregiving and COVID-19 Report

Report of a survey of caregivers and non-caregivers to understand the impact of the pandemic. Family caregivers reported more negative effects from the pandemic than non-caregivers. They were more likely to be experiencing isolation, food insecurity, and financial hardship, among other issues. Family caregivers also reported that the pandemic had increased their caregiving responsibilities, and that providing care was more emotionally, physically, and economically difficult.

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A Brief Couples Therapy Program May Provide Needed Supports for Partners of People with Brain Injuries

A study funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

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Balancing Work and Family Can be Tough for Caregivers of Children with Behavioral Health Disabilities

study funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

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What Would Help Older Adults Trust Robots to Help Them with Personal Care?

study funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

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