In observance of Brain Awareness Week, as well as Brain Injury Awareness Month, NARIC points to over 40 NIDILRR-funded projects conducting research on traumatic brain injury (TBI) and offers a link to the Model Systems Knowledge Translation Center for learning more about TBI; This Just In... presents a study exploring the personal experiences of people with disabilities navigating the US healthcare system; INROADS: Intersecting Research on Opioid Misuse, Addiction, and Disability Services publishes video and brochure, Trust Disabled People's Lived Experience; the Rehabilitation Engineering Research Center on Technologies to Support Aging-in-Place for People with Long-Term Disabilities (TechSAge RERC II) sponsors inaugural Stretch Robot Pitch Competition, inviting college students to propose innovative hardware or software solutions using the Stretch robot to support individuals with disabilities at home; principal investigator for the Boston-Harvard Burn Injury Model System Center was interviewed for feature article, As fires rage, survivors struggle to find care, for WebMD; the Rehabilitation Research and Training Center (RRTC) on Employment of Transition-Age Youth with Disabilities and RRTC on Employment of People with Intellectual and Developmental Disabilities host webcast, Collaborative Relationships: Promoting Transition Capable Youth; the Pacific ADA Regional Center hosts webinar, Increasing Equitable Healthcare for People with Disabilities: Lessons Learned During the COVID-19 Pandemic; the National Research Center for Parents with Disabilities hosts webinar, Black, Disabled, Deaf, and Proud; the Center for Research, Training, and Dissemination of Family Support for People with Disabilities Across the Life Course accepting applications for its postdoctoral fellowship program on research in family caregiving for persons living with a disability; the Administration for Community Living (ACL) publishes call for nominations for the RAISE Act Family Caregiving Advisory Council in the Federal Register; the Department of Labor's Office of Disability Employment Policy (ODEP) releases report, Employment of Persons with a Disability: Analysis of Trends During the COVID-19 Pandemic - Findings in Brief, examining the unprecedented changes in employment for America's workforce, both with and without disabilities, during the pandemic.
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News and Notes from the NIDILRR Community and Beyond Archive
News and Notes from the NIDILRR Community and Beyond is a weekly newsletter featuring news, resources, events, and opportunities to participate in research in disability and rehabilitation. Most of the stories focus on the achievements of the 250+ NIDILRR-funded projects across the US. We also include events and resources from other agencies and organizations. To sign up, go to our home page and enter your email address in the big blue box! Learn how to submit an item for the next newsletter. Are you a current subscriber or reader? We would love to know your opinion on the newsletter and how you share it with your colleagues!
In observance of Developmental Disabilities Awareness Month, NARIC has information in its Spotlight Blog on research and resources from the NIDILRR community and elsewhere that address inclusional barriers to community life faced by people with developmental disabilities; This Just In... presents a study exploring the association of demographics and injury characteristics of burn survivors with kinesiophobia, the fear of movement; the Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction releases What is Bladder BOTOX?, the latest episode of the Bladder Buzz Podcast; project director for the Rocky Mountain ADA Regional Center was interviewed for KX Conversation: Emily Shuman discusses the 32nd year of the Americans with Disabilities Act (ADA) on KX News in Bismarck and Minot, ND; principal investigator for the Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment was interviewed for Finding a Better Way to Pay in Let's Get Moving magazine; the Great Lakes ADA Regional Center hosts webinar, Legal Update on ADA Claims of Disparate Impact vs. Disparate Treatment; the Rehabilitation Research and Training Center on Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural) seeks participants with disabilities living in rural communities for a study on their experiences with different transportation services in their communities; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) is accepting applications for its postdoctoral research fellowship program focused on the transition to adulthood of youth with disabilities; the Office of Disability Employment Policy's Job Accommodation Network (JAN) hosts webinar, Accommodation Solutions for Executive Functioning Deficits.
In anticipation of the 2022 Paralympics later this week, NARIC highlights members of the NIDILRR community who have participated in the games, including NIDILRR director Anjali Forber-Pratt, and points to NARIC information specialists who can help readers find information about adaptive sports and fitness activities; This Just In... presents a pilot study examining the safety and effectiveness of micro-fragmented adipose tissue injections under ultrasound guidance for the treatment of refractory rotator cuff disease in wheelchair users with spinal cord injury; the RRTC on employment of People Who are Blind or Have Low Vision releases third episode of its Employment Insight podcast series; fellow at the Rusk Advanced Rehabilitation Research and Training Center Postdoctoral Fellowship receives the Nancy M. Crew Student Research Award from the Foundation for Rehabilitation Psychology for his paper on a novel approach to understanding the interplay of symptoms following mild TBI; research from the RRTC on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) was featured in an article on depression among people with spinal cord injuries in the US News and World Report; the Pacific ADA Regional Center hosts webinar, Operationalizing the Principle of Inclusive Emergency Management; the RRTC on Disability Statistics and Demographics (StatsRRTC) will host two events in 2022, the annual Disability Statistics Collection, formerly known as the Release of the Compendium and held virtually, and the State-of-the-Science in Disability Statistics Conference, held in Washington, DC and via Zoom; the Great Lakes ADA Regional Center hosts webinar, Accessible Social Media 2.0; the RRTC on Community Living and Participation seeks participants who serve adults with intellectual and developmental disabilities (IDD) for an online study evaluating the use of smart living technologies on outcomes for adults with IDD; the Advanced Rehabilitation Research Training (ARRT) Program on Employment is accepting applications for its post-doctoral fellowship program on employment and disability policy research; the White House releases factsheet, Administration Announces New Actions to Address the Needs of People with Disabilities and Older Adults in Response to and Recovery from COVID-19.
In celebration of the 500th issue of News and Notes, NARIC encourages readers to email thoughts on what they would like to see in the next 500 issues of the newsletter; This Just In... presents study finding that the severity of a first pressure injury had no significant association with subsequent such injuries in individuals with spinal cord injury (SCI); the RRTC on Employment of People with Intellectual and Developmental Disabilities (IDD) publishes research summary, The Impact of Competitive Integrated Employment on Economic, Psychological, and Physical Health Outcomes for Individuals with Intellectual and Developmental Disabilities; principal investigator for the Mayo Clinic Traumatic Brain Injury Model System Center was interviewed for Washington Post article, Bob Saget died of head injury after falling, autopsy says; principal investigator for two recently completed NIDILRR-funded projects on stroke rehabilitation was interviewed for the Research, Science, Innovation, and Leadership series for the Lessons in Leadership video podcast; the Great Lakes ADA Regional Center hosts webinar, Accessible Swimming Pools and Spas, where presenters from the US access board will review provisions in the Americans with Disabilities Act (ADA) and the Architectural Barriers Act (ABA) Accessibility Standards that address independent access to swimming pools and spas; the Model Systems Knowledge Translation Center (MSKTC) seeks individuals with burn injury and their family members to provide feedback on an infocomic, Itchy Skin After Burn Injury; the Advanced Rehabilitation Research Training (ARRT) Program - Policy Research Fellowship is accepting applications for its post-doctoral fellowship program focusing on aging and disability policy research; the Federal Communications Commission (FCC) seeks input on the accessibility of visual Emergency Alert System (EAS) messages from people who are Deaf or hard of hearing in order to improve their clarity and accessibility, with instructions for submitting comments available in the Federal Register.
In memory of David R. Beukelman, PhD, a dedicated researcher in augmentative and alternative communication (AAC) and a member of the NIDILRR grantee community, NARIC presents more than 100 pieces in its collection which he authored or co-authored over more than 40 years; This Just In... presents a study assessing factors associated with social connectedness in adults with mobility disabilities; the Model Systems Knowledge Translation Center (MSKTC) publishes factsheet, Bone Loss After Spinal Cord Injury (SCI); GoVoBo, captioning technology developed under the Rehabilitation Engineering Research Center on Improving the Accessibility, Usability, and Performance of Technology for Individuals who are Deaf or Hard of Hearing (DHH-RERC) was selected as a Disability Innovation for the Verizon Forward for Good Accelerator program; co-principal investigator for the Disability Employer Practices Rehabilitation Research and Training Center (RRTC) and the RRTC on Employment Policy: Center for Disability-Inclusive Employment Policy Research gives testimony on COVID-19 and Disability Employment Research for the Senate Committee on Health, Employment, Labor, and Pensions (HELP): the Mid-Atlantic ADA Regional Center hosts webinar, ADA Advocacy in the Post-ADA World; the Pacific ADA Regional Center hosts webinar, Learning from Patients to Provide Accessible Healthcare and Effective Communication for Patients Who Are Blind or Have Low Vision; the Rehabilitation Research and Training Center on Community Living and Participation conducts study on social inclusion and retirement for older adults with intellectual and developmental disabilities (IDD); the National Council on Disability (NCD) releases a Health Study Framework to guide policymakers to improving health equity for people with disabilities.
In observance of Burn Awareness Week, organized by the American Burn Association (ABA), NARIC offers links to research articles on the treatment of burn injuries and related issues in its Research in Focus series, as well as information on burn treatment from the Model Systems Knowledge Translation Center; This Just In... features a scoping review highlighting high-intensity, activity-based interventions in treatment of subacute and chronic spinal cord injury (SCI); the Rehabilitation Research and Training Center on Community Living and Participation releases Impact: Feature Issue on Retirement and Aging for People with Intellectual, Developmental, and Other Disabilities; NIDILRR director Dr. Anjali Forber-Pratt is interviewed for the Rocky Mountain ADA Regional Center podcast Adventures in Accessibility; principal investigator for the project Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment was interviewed on the Talk Rehab podcast about research on mobility equipment; the Great Lakes Regional ADA Center hosts webinar, The Intersection of Race and Disability; the Rehabilitation Research and Training Center (RRTC) on Employment of Transition Age Youth with Disabilities and the RRTC on Employment of People with Intellectual and Developmental Disabilities host webinar, Employment AHEAD: Giving Youth Space to Lead; the Rehabilitation Research and Training Center on Home and Community Based Services Outcome Measures (RTC OM) seeks guardians of people with disabilities and other adults who know an adult with disability to test measures to improve home- and community-based services (HCBS) outcomes for people with disabilities; the National Institutes of Health (NIH) seeks public input on Diversity, Equity, Inclusion, and Accessibility (DEIA), aimed to implement organization practices to center and prioritize DEIA framework in the workforce and in research.
NARIC staff highlights the News and Notes Opportunities to Participate section, offering readers to be a part of the innovating research and development happening in the NIDILRR community, including testing of assistive devices or rehabilitation technology, trials of interventions to improve one's health, and Participatory Action Research, allowing participants to become part of the research team; This Just In... presents a study evaluating the ability of a robotic exoskeleton (RE) to provide gait training in adults with acute stroke; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) produces video series, The College Faculty Guide to Academic Supports for College Students with Serious Mental Health Conditions; cognitive technologies developed by AbleLink Technologies under more than 40 Small Business Innovation Research (SBIR) projects, were featured in Changing Lives with Smart Technologies for the ABCs of Disability Planning Podcast; principal investigator for the Southeast ADA Regional Center was interviewed for COVID-19 mandates and the ADA on Wisconsin Public Radio (WPR); the Great Lakes ADA Regional Center hosts webinar, Best Practices for Inclusive Recreation Programs; Research and Education to Support the Science of Independent Living for Inclusion and Engagement: National Center of Excellence RRTC (RESILIENCE RRTC) hosts webinar, Built to Scale, Scaling Up Evidence-Based Health Interventions, discussing why some great ideas make it big while others fail to take off; the Model Systems Knowledge Translation Center (MSKTC) seeks parents of children with burn injuries as well as teachers and rehabilitation professionals to provide feedback on a consumer factsheet, Help Your Child Recover - Build Your Child's Resilience After a Burn Injury; the Administration for Community Living (ACL) hosts the annual Traumatic Brain Injury (TBI) Stakeholder Day, held virtually; the Job Accommodation Network (JAN) releases video, Medical Information and the Interactive Process, part of its Accommodation and Compliance Series, including a role play training video demonstating when and how an employer may request personal medical information to support an employee's need for accommodation under the ADA.
In anticipation of the 500th issue of News and Notes, coming in February, NARIC staff offers events, resources, and news items from NIDILRR grantees shared in its Spotlight blog; This Just In... presents a study examining the association of self-reported demographic, mental health, physical health, and health behavior factors with subjective cognitive difficulties in individuals with spinal cord injury; in Research in Focus, rehabilitation physicians and counselors discuss long-term effects of COVID-19 and experiences of "long-haulers" returning to work; the Northeast ADA Regional Center posts video, Martin Luther King's Impact on a Disability Advocate, featuring the advocate's visit to the Dr. King memorial in Washington, DC; the Rehabilitation Research and Training Center on Community Living and Participation publishes Frontline Initiative: DSPs Respond to COVID-19, covering issues important to direct support professionals (DSP) who support people with disabilities in a variety of community settings; the Great Lakes ADA Regional Center hosts webinar, Accessible Signage, focused on which signs are covered by the Americans with Disabilities Act (ADA) and Architectural Barriers Act (ABA), where and when signs may be required, and which signs must be tactile; the National Council on Disability (NCD), an independent federal agency, hosts its virtual quarterly business meeting, including a 30-minute public comment period on an upcoming project examining the state of the nation's home- and community-based services (HCBS) prior to, and during, the pandemic that contributed to the inability of residents with intellectual and developmental disabilities to transfer to lesser-density community housing options, resulting in widespread deaths.
In observance of Ed Roberts Day, icon of the disability rights and independent living movements, NARIC has resources for National Mentoring Month to enable experienced advocates with disabilities to help the next generation find their voice in school, workplace, research teams, and the community; This Just In... presents a study by the Spinal Cord Injury Model Systems Centers examining the relationship between spasticity and perceived quality of life in individuals with spinal cord injury; Research in Focus looks at the relationship between state-level supports and outcomes for people with traumatic brain injury living in the community; Temple University Rehabilitation Research and Training Center (RRTC) on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) publishes the 2022 Getting Out of the House Calendar, focused on connecting with people and places in the community; research on falls risk and aging in place from the project Building Capacity to Improve Community Participation for People Aging with Long-Term Disability Through Evidence-Based Strategies was featured in news story on Action News 5 in Memphis, TN; the Rehabilitation Research and Training Center (RRTC) on Employment of Transition-Age Youth with Disabilities hosts webcast, Collaborations to Support Employment of Transition-Age Youth with Disabilities; the Northeast ADA Regional Center hosts webinar, Looking Back: The Northeast ADA Review of 2021, reviewing what happened in 2021 related to the Americans with Disabilities Act (ADA); the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) hosts webinar, Current Strategies for Updating Systemic Reviews; the Department of Transportation (DOT) hosts two virtual workshops highlighting the ten semifinalists for its Inclusive Design Challenge, with five teams presenting at each session.
In observance of Martin Luther King Jr. Day on January 17, designated as a national day of service, NARIC offers information on how people with disabilities can volunteer to improve their communities; NIDILRR Director Anjali Forber-Pratt was featured in article in the latest issue of New Mobility Magazine; This Just In... features a study examining how content authored by people with dementia can affect attitudes toward the condition; Research in Focus looks at the effects of the COVID-19 pandemic on the mental and physical health of Latinx families with children with intellectual and developmental disabilities (IDD); the Rehabilitation Research and Training Center (RRTC) on Health and Function of People with Psychiatric Disabilities releases second episode of the Participatory Action Research (PAR) podcast, PAR in Action: Peer Navigators for Health and Wellness of People with Psychiatric Disabilities; Video visual scene display (video VSD) developed by the Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC) is featured in article in Penn State News, Videos help students with autism spectrum disorder communicate with peers; the Rehabilitation Research and Training Center on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) hosts webinar, Broadband Internet Access: Implications for the Health of People with Disabilities; the Great Lakes ADA Regional Center hosts webinar, Accessible Technology on Smartphones and Tablets for Users with Hearing, Cognitive, and Mobility Disabilities; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) hosts webinar, Academic Coaching for College Students with Mental Health Conditions by Peer Students - Pilot Results; the Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction (RRTC on Bladder Dysfunction) seeks participants with neurogenic lower urinary tract dysfunction who use indwelling catheters to try a probiotic flush when experiencing urinary symptoms; the US Access Board reopens its public comment period for advisory guidelines on aircraft onboard wheelchairs.