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News and Notes from the NIDILRR Community and Beyond Archive

News and Notes from the NIDILRR Community and Beyond is a weekly newsletter featuring news, resources, events, and opportunities to participate in research in disability and rehabilitation. Most of the stories focus on the achievements of the 250+ NIDILRR-funded projects across the US. We also include events and resources from other agencies and organizations. To sign up, go to our home page and enter your email address in the big blue box! Learn how to submit an item for the next newsletter. Are you a current subscriber or reader? We would love to know your opinion on the newsletter and how you share it with your colleagues!

In celebration of the 50th anniversary the independent living movement, founded in 1972 by the Center for Independent Living as a community hub run by and for people with disabilities, NARIC staff explores some of the history of NIDILRR-funded independent living research and development in the Spotlight blog; This Just In... presents a study on the perspectives of advocates, attorneys, and legislators on barriers and solutions for passing legislation to protect the rights of parents with disabilities; the Rocky Mountain ADA Regional Center publishes three reports summarizing the latest research related to trending topics including acquiring a disability, reproductive health and disability, and high unemployment among people with disabilities; the grant Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) hosts webinar, Transforming Community Mental Healthcare: How to Grow the Youth and Young Adult Peer Workforce; the Rehabilitation Research and Training Center (RRTC) on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) hosts webinar, Emerging Driverless and Automated Transportation: Designing for Inclusion; the Rehabilitation Research and Training Center on Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural) seeks photos and information from people with disabilities in rural communities on how they access needed services to live independently; the Administration for Community Living announces the release of the 2022 National Strategy to Support Family Caregivers, developed jointly by councils created by the RAISE Family Caregiving Act and the Supporting Grandparent Raising Grandchildren Act; the National Institutes of Health announces winners of the 2022 Speaking Up About Mental Health! This Is My Story essay contest.

Date sent:
2022-10-12

In observance of National Disability Employment Awareness Month (NDEAM), this year's focus of which is Disability: Part of the Equity Equation, NARIC has information about some of the NIDILRR grantees working in this area in its Spotlight Blog; NIDILRR/ACL, in developing its 2024-2029 Long-Range Plan, is seeking input from key stakeholders, including people with disabilities, their families, and others through a series of virtual listening sessions; This Just In... features a study comparing colorectal cancer (CRC) mortality in people with spinal cord injury (SCI) to CRC mortality in the general population, finding the mortality rate of both groups to be similar; the Rehabilitation Research and Training Center (RRTC) on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) publishes policy brief, Disability and Telehealth Since the COVID-19 Pandemic: Barriers, Opportunities, and Policy Implications; research from the Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural) is featured in Rural Disability and Community Participation, a special section of the journal Frontiers in Rehabilitation Sciences; the Great Lakes ADA Regional Center hosts webinar, Ask an ADA Professional Questions RE: Post-Secondary Education and the ADA; Research and Education to Support the Science of Independent Living for Inclusion and Engagement: National Center of Excellence Rehabilitation Research and Training Center (RESILIENCE RRTC) hosts Built to Scale Webinar: Scaling Up Evidence-Based Health Interventions; the Model Systems Knowledge Translation Center (MSKTC) seeks participants with SCI and their families to provide feedback on new factsheet: Nutrition and Spinal Cord Injury;  the Office of Disability Employment Policy (ODEP) at the Department of Labor (DOL) hosts webinar, NDEAM Employer Chat on Workplace Mental Health and Well-Being.

Date sent:
2022-10-05

In observance of National Hispanic Heritage Month, NARIC's information specialists highlight the work of Latinx NIDILRR grantees, actors and advocates, and athletes, among others, in its Spotlight Blog; This Just In... presents a study exploring full-time employment status and work continuity among individuals with visual impairments; the National Data and Statistical Center for the Burn Model Systems posts recording, Outcome Measures in the Burn Model System Database, part of a webinar series on the database; principal investigator  of the Initiative to Mobilize Partnerships for successful Assistive teChnology Transfer (IMPACT) was interviewed for article, Pitt's new Healthy Home Lab will help students find solutions for aging in place, in the Pittsburgh Post-Gazette; the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) to host the 2022 State of the Science on Disability Statistics Conference; the Great Lakes Regional Center hosts webinar, Accessible Amusement Rides; the Workplace Accommodation Expert Support System (Work ACCESS) seeks participants with workplace accommodation experience to validate decision trees helping employees with disabilities, employers, and rehabilitation professionals find information to help making workplace accommodation decisions; the US Food and Drug Administration (FDA) releases its Action Plan for Rare Neurodegenerative Diseases Including Amyotrophic Lateral Sclerosis (ALS), presenting five-year strategy for improving and extending the lives of people living with rare neurodegenerative diseases.

Date sent:
2022-09-28

In observance of National Rehabilitation Awareness Week, organized by the National Rehabilitation Awareness Foundation, NARIC presents research and resources about the diverse world of rehab from the NIDILRR community and elsewhere; NIDILRR/ACL seeks input from key stakeholders, including people with disabilities and their families, researchers, and service providers, in developing its 2024-2029 Long Range Plan; This Just In... presents a study examining driving patterns following moderate to severe traumatic brain injury (TBI); the Temple University Rehabilitation Research and Training Center on Community Living and Participation of People with Serious Mental Illness publishes resource, A Selected Compendium of Mental Health Programs, Initiatives, and Resources on College Campuses; researcher from the Northern New Jersey Spinal Cord Injury System Center (NNJSCIS) receives the 2022 Ernest Bors, MD, Award from the Academy of Spinal Cord Injury Professionals (ASCIP); the Great Lakes ADA Regional Center hosts webinar, Building a Successful Document Accessibility Program: Strategies, Methods, and Workplans for Inclusive Programs; the Rehabilitation Research and Training Center (RRTC) on Employment of Transition-Age Youth with Disabilities hosts webcast, Practical Strategies to Increase Graduation Success for Students with Disabilities; the Rehabilitation Research and Training Center (RRTC) on Employment for People with Physical Disabilities seeks input from employers hiring people with disabilities for a survey about job accommodations providing an inclusive workplace; the Administration for Community Living (ACL) publishes website, Monkeypox Outbreak Resources, featuring information on the Monkeybox virus; the Office of Disability Employment Policy (ODEP) at the Department of Labor debuts web resource, Direct Support Professionals (DSPs), bringing awareness to the role of DSPs in providing supports and services to people with disabilities of all ages.

Date sent:
2022-09-21

In observance of National Recovery Month, NARIC has information on research and resources focused on mental health and substance use recovery in its Spotlight blog; This Just In... features a study presenting a comparative analysis on mobile phone features illustrating the current state of accessibility for people with disabilities; the Model Systems Knowledge Translation Center (MSKTC) and the Traumatic Brain Injury (TBI) National Data and Statistical Center publish factsheet, National Database: 2021 Profile of People Within the Traumatic Brain Injury Model Systems; research from the Rehabilitation Research and Training Center (RRTC) on Health and Function of People with Psychiatric Disabilities and the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center featured in webcast hosted by Mental Health America, Supporting Young Adults with Serious Mental Health Conditions in Post-Secondary Education; the Rehabilitation Engineering Research Center (RERC) on Physical Access and Transportation and the RERC on Universal Design and the Built Environment announce installation of a multisensory touch model of Alcatraz as part of the National Park Service's Alcatraz Island exhibits; the Great Lakes ADA Regional Center hosts webinar, The Supreme Court's Olmstead Decision and Its Far-Reaching Impact on People with Disabilities; the Mid-Atlantic ADA Regional Center hosts webinar, Make It Count! Stretching Dollars in Barrier Removal, discussing low-cost actions to make facilities more accessible and welcoming to people with disabilities; the ADA National Network Knowledge Translation Center seeks participants for a study on the accessibility and availability of ADA information, products, and services designed for Spanish-speaking communities; the Advanced Rehabilitation Research Training (ARRT) Inclusive Technology and Policy Design Research Fellowships accepting applications for its Postdoctoral Fellowships to begin January 2023; the White House Office of Science and Technology Policy and the National Institutes of Mental Health (NIMH) release video, How Science Has Offered Hope for Treatment-Resistant Depression.

Date sent:
2022-09-14

In observance of Spinal Cord Injury (SCI) Day, National SCI Awareness Month, and (Emergency) Preparedness Month, NARIC Director Mark Odum shares his experience as a person with SCI preparing for and navigating weather emergencies in the NARIC Spotlight blog; NIDILRR/ACL is holding stakeholder listening sessions in preparation for its 2024-2029 Long Range Plan; This Just In... presents study evaluating the feasibility and effectiveness of in-bed wearable elbow robot training for motor recovery in patients with subacute stroke and upper-limb motor impairment; the Rocky Mountain ADA Regional Center publishes seven-module course, Introduction to Assistive Technology; the National Spinal Cord Injury Statistical Center (NCISC) announces recipient of the 2022 DeVivo Mentored Research Award, who will utilize the National SCI Model Systems Database for the project Defining New Quantifiable Criteria for Central Cord Syndrome; research from the study Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment is featured in the latest RehabTalk podcast from the Archives of Physical Medicine and Rehabilitation; the Rehabilitation Research and Training Center on Improving Employment Outcomes for Individuals with Psychiatric Disabilities hosts webinar, Supporting Business Owners with Psychiatric Disabilities; the Great Lakes ADA Regional Center hosts webinar, ADA Enforcement and Steps You Can Take Before You File an ADA Complaint; the Field Initiated Project on Contingent Employment of Individuals with Disabilities (FIP-CE) conducts survey of nontraditional employment among persons with disabilities; the Office of Disability Employment Policy (ODEP) at the Department of Labor announces theme for the 2022 National Disability Employment Awareness Month (NDEAM), Disability, Part of the Equity Equation.

Date sent:
2022-09-07

In recognition of the beginning of a new year of study for the nation's college students, NARIC features NIDILRR-funded research on young people with disabilities entering and navigating postsecondary education in its Spotlight blog; This Just In... presents a study examining factors from assistive technology professionals that impact timeliness of wheelchair service delivery; the Rehabilitation Research and Training Center on Community Living and Participation publishes Frontline Initiative: The Diverse Voices of DSPs, focusing on issues affecting the direct support professional (DSP) workforce; principal investigator for the Spaulding-Harvard Traumatic Brain Injury Model System Center was interviewed for article in Kaiser Health News, Cognitive Rehab May Help Older Adults Clear Covid-Related Brain Fog, principal investigator for Thresholds Health Literacy and Wellness Promotion Center and co-investigator for Peer Navigators for the Health and Wellness of People with Psychiatric Disabilities to receive the 2022 Michael S. Neale Award from the American Psychological Association (APA); the ADA National Network Knowledge Translation Center hosts webinar, What's Race Got to Do with It? An Intersectional Approach to Disability Rights; the project Using the National Survey on Health and Disability Panel to Document the COVID-19 Pandemic Experiences of Working-Age Americans with Disabilities seeks participants for its 2022 National Survey on Health and Disability (NSHD), exploring how access to health care, insurance, and the COVID-19 pandemic may be affecting the lives of people with disabilities; the University of New Hampshire Advanced Rehabilitation Research Training Program on Employment is accepting applications for its postdoctoral fellowship program focused on disability and employment research to begin in 2023; the Office of Special Education Progrms (OSEP) at the Department of Education releases interactive fact sheet, OSEP Fast Facts: Educational Environments for School Aged Children with Disabilities.

Date sent:
2022-08-31

In observance of the passing of David R Gater, Jr., MD, PhD, co-director of the South Florida Spinal Cord Injury (SCI) Model System Center, NARIC posts the link to 70 of his articles spanning more than 25 years of SCI research in the NARIC collection; This Just In... presents a study examining how transit agencies partner with technology-enabled third party companies to provide on-demand transportation for people with disabilities; the Southeast ADA Regional Center releases podcast, The Confess Project: A Network for Mental Health Care in African-American Communities, the latest episode in the ADA Live! Series; research from the Center for Research, Training, and Dissemination of Family Support for People with Disabilities Across the Life Course was highlighted in article at ABCNews.com, COVID-19's negative impact on caregivers and four ways to help them; principal investigator for Texas Model Spinal Cord Injury System Center to receive the 2022 Dr. Margaret Nosek Award from the American Congress of Rehabilitation Medicine (ACRM); the Northeast ADA Regional Center hosts webinar, Strides in Recreation Accessibility, discussing recreation areas covered in the 2010 Americans with Disabilities Act (ADA) Standards for Accessible Design; the Model Systems Knowledge Translation Center (MSKTC) seeks individuals with burn injury and their family members to provide feedback on two infocomics, Understanding Burn Injury and Exercise after Burn Injury; the Office of Disability Employment Policy (ODEP) at the Department of Labor publishes report, Disability and the Digital Divide: Internet Subscriptions, Internet Use, and Employment Outcomes.

Date sent:
2022-08-24

In observance of Complex Rehabilitation Technology (CRT) Awareness Week, NARIC staff has information about current NIDILRR-funded projects focusing on CRT, products designed to meet the needs of individuals with disabilities, in their Spotlight blog; NIDILRR/ACL announces publication of a final rule governing NIDILRR-funded research in the Federal Register; This Just In... features a study investigating barriers posed by the design of online health information platforms and how to overcome them for neurodiverse populations; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) launches new podcast, STAY Tuned: Supporting Transition-Age Youth, made by and for young adults with mental health conditions navigating school or work; researchers from INROADS: Intersecting Research on Opioid Misuse, Addiction, and Disability Services have edited Disability and Substance Use: Misuse and Addiction, a special supplement to the Disability and Health Journal; principal investigator for the Boston-Harvard Burn Injury Model System Center to receive the 2022 John Stanley Coulter Award from the American Congress of Rehabilitation Medicine (ACRM); the ADA National Network Knowledge Translation Center will host Twitter chat, Education and the Americans with Disabilities Act (ADA), covering back-to-school topics, frequently asked questions about higher education and the ADA, and more; the Mid-Atlantic ADA Regional Center hosts webinar, Americans with Disabilities Act (ADA) and Mental Health in Higher Education: Current Case Law; the Department of Health and Human Services (HHS) Office of Civil Rights and the Department of Justice (DOJ) Civil Rights Division release Guidance on Nondiscrimination in Telehealth: Federal Protections to Ensure Accessibility to People with Disabilities and Limited English Proficient Persons.

Date sent:
2022-08-17

NARIC staff presents resources from the NIDILRR community and elsewhere for learning about diagnoses following emergencies, e.g., traumatic brain injury and spinal cord injury, in the Spotlight blog; NIDILRR/ACL, in developing its 2024-2029 Long-Range Plan, seeks input from key stakeholders, including people with disabilities and their families, researchers, and service providers; This Just In... presents a study examining incentives, wages, and retention among direct support professionals (DSPs); the Model Systems Knowledge Translation Center (MSKTC) publishes two new factsheets: Staying Healthy after TBI and Wound Care After Burn Injury; data from the Traumatic Brain Injury (TBI) Model Systems National Database will serve as approved data source for new core objective of Healthy People 2030; the Great Lakes ADA Regional Center hosts webinar, Health Care Access for Patients with Cognitive Disabilities; the Southeast ADA Regional Center hosts webinar, Disabled, Trans, and Queer: Intersectional Conversations in the Workplace; the project Using the National Survey on Health and Disability Panel to Document the COVID-19 Pandemic Experiences of Working-Age Americans with Disabilities conducts the 2022 National Survey on Health and Disability; the Department of Health and Human Services (HHS) releases two reports on Long COVID: The Services and Supports of Longer-Term Impacts of COVID-19 Report (Services Report) and the National Research Action Plan on Long COVID (Research Plan).

Date sent:
2022-08-10

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