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News and Notes from the NIDILRR Community and Beyond Archive

News and Notes from the NIDILRR Community and Beyond is a weekly newsletter featuring news, resources, events, and opportunities to participate in research in disability and rehabilitation. Most of the stories focus on the achievements of the 250+ NIDILRR-funded projects across the US. We also include events and resources from other agencies and organizations. To sign up, go to our home page and enter your email address in the big blue box! Learn how to submit an item for the next newsletter. Are you a current subscriber or reader? We would love to know your opinion on the newsletter and how you share it with your colleagues!

NARIC attends the annual NARRTC conference - a conference which heavily features research and development from the NIDILRR grantee community. This Just In... looks at a NIDILRR-funded qualitative study of the importance of exercise for individuals with spinal cord injury. The Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) publishes a tipsheet on managing the paperwork of adulting. The Great Lakes ADA Regional Center hosts a webinar on mental health first aid in the workplace. The Great Plains ADA Regional Center and the ADA National Network host the 2023 National ADA Virtual Symposium. FEMA hosts a series of virtual listening sessions on national resilience.

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NARIC staff explore NIDILRR-funded projects that are working to identify and address barriers for National Barrier Awareness Day. This Just In… looks at a study that examined a resource provision program for people living with moderate-to-severe traumatic brain injury (TBI). Resource Highlights shares an outcome measurement toolkit for Centers for Independent Living (CILs) from the Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural). Researchers from several NIDILRR-funded projects receive awards. The Rehabilitation Engineering Research Center on Technology for People who are Deaf or Hard of Hearing (DHH-RERC) debuts ICAAT. The Great Lakes ADA Regional Center hosts a webinar on accessible PDF fillable forms. The Indiana Traumatic Brain Injury (TBI) Model System seeks participants for a study on an intervention to change affect recognition and empathy among people with TBI. The Department of Housing and Urban Development (HUD) seeks public comments on changes to requiring accessibility and prohibiting discrimination on the basis of disability in HUD-assisted programs.

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Next week is National Library Week, NARIC staff shares about the Collection and the wealth of information within it. This Just In... focused on exploring the perspectives of adults aging with physical disabilities on physical activities. A plain language guide on how disability models affect person-centeredness in home and community-based services. Nancy Horton, Associate Director of the NIDILRR-funded Mid-Atlantic ADA Regional Center, was interviewed for an article in the Washington Post. Webinars on pediatric outcome measures in the Burn Model System Database, tales from the technical assistance line, and the impacts of unconscious bias and diagnostic overshadowing in health equity for people with disabilities. provides an overview of disability resources.

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This week's News and Notes featured a round up of resources for the Spanish speaking disability community from NARIC and other NIDILRR projects. This Just In focused on the experiences of young people with disabilities and their transition to independent living. A new Supported and Customized Employment Guide for vocational rehabilitation professionals and their clients. Gretchen Carrougher from the NW Regional Burn Model System interviewed by Air&Med. IMPACT feature issues focuses on representation in disability research, with an article by Anjali Forber-Pratt. Webinars on how the Lincoln Zoo creates an inclusive experience and how CAPABLE was scaled up to serve communities across the US. Plus, the President's Committee for People with Intellectual Disabilities is meeting and wants to hear from you and the next ICDR Lunch & Learn focuses on cultural competence in healthcare.

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April is Autism Awareness Month and NARIC personnel share the work funded by NIDILRR that supports people with autism in NARIC's Spotlight blog; NIDILRR will host a webinar, NIDILRR's 2024-2028 Long-Range Plan (LRP): Themes and Priorities, which will discuss the feedback received and will present the themes and priorities for the 2024-2028 LRP; This Just In... shares a NIDILRR-funded study that looked at the relationship of secondary and chronic health conditions with emergency department visits and related hospitalizations among people with traumatic spinal cord injury (SCI); the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) posted the latest episode of the Supporting Transition Aged Youth (STAY) Tuned podcast, Is there anybody out there? The isolation of adulthood; the Rehabilitation Research and Training on Employment Policy: Center for Disability-Inclusive Employment Policy Research (DEIP RRTC) published a brief, Telework After COVID: Challenges and Opportunities for Workers with Disabilities; the New England ADA Regional Center will host a webinar, Why It Matters - Sharing Stories of Tackling ADA Transition Plans; the Mid-Atlantic ADA Regional Center will host a webinar, Enhancing Disability Inclusion and Awareness in Hospitality; the project Being Needed: Building Social Connections that Matter to Reduce Social Isolation and Loneliness is conducting interviews with people with serious mental health conditions about their experiences in mattering to others; the National Institute of Mental Health (NIMH) Office of Autism Research Coordination (OARC) will host the 10th Annual Autism Awareness Special Event, A Portrait of Autism: Artists and Their Works.

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In observance of Brain Injury Awareness Month, NARIC staff presents some of the latest NIDILRR-funded research into the intersections of traumatic brain injury and race, ethnicity, and gender and the development of resources to meet the diverse needs of these populations; This Just In... presents a study exploring how computer-mediated social support can help promote physical activity in individuals with spinal cord injury; the Southeast ADA Regional Center posts latest episode of its ADA Live! Podcast, Living Well with Kidney Disease; the Community Living Policy Center edits special supplement of the Disability and Health Journal focused on community living policy; the Temple University Rehabilitation Research and Training Center (RRTC) on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) hosts webinar, Using Mainstream 'Apps' in Mental Health Services to Support Community Participation; the Great Lakes ADA Regional Center hosts webinar, Ask an ADA Professional Questions RE: Reasonable Modification of Policies, Practices, and Procedures in Health Care Settings; the Rehabilitation Research and Training Center on Home and Community-Based Services Person-Centered Outcomes and Measures seeks people with all disability types who use Medicaid-funded home and community-based services (HCBS) to test survey to measure person-centered outcomes; the Centers for Disease Control and Prevention Autism and Developmental Disabilities Monitoring (ADDM) Network publishes the 2023 Community Report on Autism, showing data on the continuing increase of autism spectrum disorder.

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In observance of Developmental Disabilities Awareness Month, NARIC explores ways NIDILRR-funded projects are helping individuals, families, practitioners, and communities take actions to increase access to education, employment, and community participation among people with developmental disabilities; This Just In... presents a study on the reasons people with disabilities in the U.S. are not seeking employment; the Rehabilitation Research and Training Center (RRTC) on Community Living and Participation publishes journal edition, Frontline Initiative: Direct Support Professionals (DSPs) Supporting People's Employment, exploring supporting employment for people with intellectual and developmental disabilities; NIDILRR Director, a two-time Paralympian, to join the Mid-Atlantic ADA Regional Center for webinar, Representation Matters: The Role of Adaptive Sports in the Lives of People with Disabilities; recent NIDILRR-funded Switzer Fellow was interviewed for article in the Washington Post, In Florida, showing mental health struggles could get a child detained; the Northeast ADA Regional Center hosts webinar, The Americans with Disabilities Act (ADA) and the K-12 Environment; the Rehabilitation Research and Training Center (RRTC) on Improving Employment Outcomes for Individuals with Psychiatric Disabilities hosts webinar, Virtual Reality Job Interview Training: An Enhancement to IPS Supported Employment for Adults with Serious Mental Illness; the Research and Training Center on Home and Community-Based Services (HCBS) Outcome Measurement seeks interviews from adults with disabilities about their experiences with HCBS and areas of their lives including social connectedness and meaningful activities; the project Increasing Adaptive Babycare Resources and Intervention Supports with Parents and Caregivers with Physical or Vision Disabilities is conducting surveys about assessments and interventions for parents with disabilities who have children aged 5 and younger as well as with occupational therapists and assistive tehnologists/rehabilitation engineers who have provided services for such parents; the Administration for Community Living (ACL) Administration on Disabilities hosts webinar series, Improving and Expanding Community Living Options for People with Intellectual and Developmental Disabilities (IDD), on community-based housing options for people with IDD; the Office of Disability Employment Policy State Exchange on Employment and Disability (SEED) Initiative hosts Mental Health Matters: A Series of National Online Dialogues on Workforce Mental Health Policies, inviting the public to submit ideas and comments.

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In observance of Multiple Sclerosis (MS) Awareness Week, NARIC explores challenges of living with MS and programs and interventions from the NIDILRR community and elsewhere in its Research in Focus series; This Just In... presents a study identifying the factors associated with depressive symptoms in people aging with long-term physical disabilities; this week's Research in Focus explores resources and services that can help caregivers of children with mental health disorders find and keep stable employment; the Thresholds Health Literacy and Wellness Promotion Center publishes the Thresholds 2023 Health Literacy Calendar; the Boston-Harvard Burn Injury Model System Center, Spaulding Harvard Traumatic Injury (TBI) Model System Center, and Spaulding New England Regional Spinal Cord Injury (SCI) Model System Center announce launch of the Finding Strength Podcast, its first two episodes focusing on brain injury as a chronic condition; the Great Lakes ADA Regional Center hosts webinar, The Intersection of Women and Disability, with presenters sharing their experiences of intersectionality  as women of color, veterans, advocates, and small business owners with disabilities; the Field Initiated Project on Contingent Employment of Individuals with Disabilities (FIP-CIE) hosts virtual summit, Disability, Entrepreneurship, and the Gig Economy: A Research Summit; the Center for Research, Training and Dissemination of Family Support for People with Disabilities Across the Life Course seeks participants for the Caregiver Advocacy Program, a virtual workshop empowering unpaid family caregivers to learn about caregiving-related policies and how to use their experiences to advocate for change; the Interagency Committee on Disability Research (ICDR) hosts webinar, COVID-19 Data on Individuals with Intellectual and Developmental Disabilities (IDD), part of the Lunch & Learn series offering opportunities for diverse stakeholders to learn about disability research and development activities across the Federal government.

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NARIC staff is mourning the loss and honoring the life of Judith Heumann, an activist, pioneer, and international advocate for disability rights and human rights; This Just In... features a NIDILRR-funded study evaluating the perceived helpfulness of interventions for neuropathic pain (NeuP) and its subcategories after SCI; the Rehabilitation Research and Training Center on Disability Statistics and Demographics (Stats RRTC) posts recording of the Release of the Annual Disability Statistics Collection; principal investigator for more than 25 NIDILRR-funded Small Business Innovation Research (SBIR) projects was interviewed for the latest episode of the AT Update podcast, where he discussed the development of the TREAT App, supported in part by the App Factory; the Michigan Spinal Cord Injury Model System Center (MI-SCIMS) hosts webinar, A Conversation on Women's Health and Spinal Cord Injury (SCI); the Great Lakes ADA Regional Center hosts webinar, Inclusive Imagery - Writing Alt-Text Depicting People with Disabilities and Other Marginalized Identities; the Mid-Atlantic ADA Regional Center hosts webinar, Managing Risk and Other Legal Requirements for Businesses under the Americans with Disabilities Act (ADA) Title III; the project Enhancing Community Participation Outcomes Among Young Adults with Serious Mental Illnesses Through Peer-Delivered Decision Support seeks young adult participants with serious mental illnesses for study about their decision making needs related to community participation; the Research and Education to Support the Science of Independent Living for Inclusion and Engagement: National Center of Excellence RRTC (RESILIENCE RRTC) accepting applications for the 2023 Building for Scale Scholars Program; the National Center for Medical Rehabilitation Research at the National Institutes of Health (NIH) hosts workshop, Ableism in Medicine and Clinical Research, seeking to raise awareness of prejudice and discrimination aimed at people with disabilities.

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In observance of the 15th anniversary of International Wheelchair Day, NARIC's director Mark X. Odum, a powered wheelchair user, shares his thoughts on this essential technology and an opportunity for wheelchair users to improve coverage for powered seat equipment; This Just In... reviews challenges and opportunities for integrating wireless AT and the Internet of Things (IoT) into the classroom to improve access to education for students with disabilities; in Research in Focus, wheelchair and and complex rehabilitation technology suppliers discuss the efficiency of wheelchair repair services; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) publishes tipsheet, 3 Tips to Improve Communication with Your Youth and Young Adults; researcher from the Disability Employer Practices Rehabilitation Research and Training Center participates in online discussion, For disabled Americans, employment is soaring, for the New York Times Twitter Space; principal investigator for the Disability and Rehabilitation Research Project on Knowledge Translation to Promote Patient-Centered Care Through Use of Standardized Assessments receives the 2022 Audrey Nelson Lectureship Award from the Academy of Spinal Cord Injury Professionals (ASCIP); the Great Lakes ADA Regional Center hosts webinar, Reasonable Accommodations and the Americans with Disabilities Act (ADA): An Update on the Case Law; the project Minority Youth and Centers for Independent Living (MY-CIL) hosts webinar, Advice from the Experts: Minority Youth with Disabilities Share Program Improvement Opportunities with CILs; the Temple University Rehabilitation Research and Training Center (RRTC) on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) seeks adult parents with serious mental illness for participating in study, Engaging Parents and Improving Connections with Children (EPICC): A Randomized Controlled Trial to Enhance Parenting Outcomes of Individuals with Serious Mental Illness; the Rehabilitation Research and Training Center on Employment for People with Physical Disabilities and the Advanced Rehabilitation Research Training Program - Employment are accepting applications for two-year post-doctoral fellowships in research focused on improving employment outcomes; the Equal Employment Opportunity Commission (EEOC) releases Hearing Disabilities in the Workplace and the Americans with Disabilities Act (ADA).

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