News and Notes 531 September 28

birgitta.chaiken - Wed, 09/28/2022 - 11:59

In observance of National Hispanic Heritage Month, NARIC's information specialists highlight the work of Latinx NIDILRR grantees, actors and advocates, and athletes, among others, in its Spotlight Blog; This Just In... presents a study exploring full-time employment status and work continuity among individuals with visual impairments; the National Data and Statistical Center for the Burn Model Systems posts recording, Outcome Measures in the Burn Model System Database, part of a webinar series on the database; principal investigator  of the Initiative to Mobilize Partnerships for successful Assistive teChnology Transfer (IMPACT) was interviewed for article, Pitt's new Healthy Home Lab will help students find solutions for aging in place, in the Pittsburgh Post-Gazette; the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) to host the 2022 State of the Science on Disability Statistics Conference; the Great Lakes Regional Center hosts webinar, Accessible Amusement Rides; the Workplace Accommodation Expert Support System (Work ACCESS) seeks participants with workplace accommodation experience to validate decision trees helping employees with disabilities, employers, and rehabilitation professionals find information to help making workplace accommodation decisions; the US Food and Drug Administration (FDA) releases its Action Plan for Rare Neurodegenerative Diseases Including Amyotrophic Lateral Sclerosis (ALS), presenting five-year strategy for improving and extending the lives of people living with rare neurodegenerative diseases.

Date sent: 
2022-09-28
NARIC news: 

National Hispanic Heritage Month is celebrated from September 15th to October 15th to honor the rich history and culture of Latin Americans with and without disabilities and their contributions to history, science, literature, and every other aspect of life. To help raise awareness, NARIC's information specialists have highlighted the work of Latinx NIDILRR grantees, actors and advocates, and athletes, among others, in NARIC's Spotlight Blog. We also work with the NIDILRR-funded research and development projects that support the independence of Latinx with disabilities to collect the resources they produce. Many of these projects share their research results in Spanish through publications and presentations. In addition, NARIC supports Latinx with disabilities and rehabilitation professionals by providing information and referral services, our website, blog posts, the Spotlight podcast, and more in Spanish. Follow our Spanish Twitter and Facebook channels, where we're sharing NIDILRR grantee resources throughout the month!

This Just In: 
Beyond employment rates: Continuity of employment for people with visual impairments. Journal of Visual Impairment & Blindness (JVIB). NARIC Accession Number: J89110.
New to the NARIC collection, this NIDILRR-funded study explored the full-time/full-year employment status and continuity of work among individuals with visual impairments. Analyses of Survey of Income and Program Participation data revealed that people with visual impairments were less likely than those without visual impairments to work year-round, and they worked an average of about two weeks less per year. This finding was consistent for both men and women with visual impairments compared to those without visual impairments, but there was a slightly larger gap among men. On average, people with visual impairments worked more than two fewer weeks per year than people without visual impairments. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Webinar: Outcome Measures in the Burn Model System Database
The NIDILRR-funded National Data and Statistical Center for the Burn Model Systems (90DPGE0004) posted a recording, Outcome Measures in the Burn Model System Database, part of the Accessing and Using the Burn Model System Database webinar series. Presenters provided an overview of the measures collected by the NIDILRR-funded Burn Model System Centers, including the measure selection process and the data available for each measure. Previous webinars introduced the BMS and BMS National Database and covered a Case Study in Requesting BMS Data.
 
News items: 
Healthy Home Lab Launched
Jon Pearlman, PhD, principal investigator for the NIDILRR-funded Initiative to Mobilize Partnerships for successful Assistive teChnology Transfer (IMPACT) (90DPKT0002), was interviewed for an article, Pitt's new Healthy Home Lab will help students find solutions for aging in place, in the Pittsburgh Post-Gazette. Dr. Pearlman described how the Healthy Home Lab, located in a 105-year-old house, will offer researchers, developers, and students a more genuine experience of building and testing solutions in a real life environment. Among other activities, the lab will connect the projects and teams of several NIDILRR-funded centers focused on supporting people to live more independently in their home, including IMPACT, the Rehabilitation Engineering Research Center (RERC) Promoting Mainstream Wireless Inclusion Through Technology Services, the RERC on Improving Health and Function Through Use of Performance Standards in Wheelchair Selection, and the Center for Research, Training, and Dissemination of Family Support for People with Disabilities Across the Life Course.
 
Grantee event: 
2022 State-of-the-Science on Disability Statistics Conference
The NIDILRR-funded Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) (90TRGE0001) will host the 2022 State-of-the-Science on Disability Statistics Conference, October 6th and 7th, 11 am – 4:30 pm ET each day, in Washington, DC and via live stream. During the hybrid event, experts in disability statistics will discuss the latest advancements in disability statistic science, and will share insights on new research and methods in disability data collection, analytical techniques, and advanced statistical analyses of key topics. Registration is free and required for both in-person and live stream attendance.
 
Webinar: Accessible Amusement Rides
The NIDILRR-funded Great Lakes ADA Regional Center (90DPAD0012) will host a webinar, Accessible Amusement Rides, October 6th, 2:30 – 4 pm, ET. Presenters will discuss how the 2010 Americans with Disabilities Act (ADA) Standards for Accessible Design and the Architectural Barriers Act Accessibility Standards address the accessibility of permanent amusement rides. Presenters will address requirements for accessible routes, queue lines, parking and passenger loading areas, signage, sales, and service counters. Participants may submit questions in advance of the webinar or may pose them during the webinar. Registration is free and required.
 
Participate: 
Validate Work ACCESS Decision Trees
The NIDILRR-funded Workplace Accommodation Expert Support System (Work ACCESS) (90DPEM0001) seeks participants with workplace accommodation experience to help researchers validate decision trees that help employees with disabilities, employers, and rehabilitation professionals find information they can use to make workplace accommodation decisions. Participants will review lists of possible accommodation problems and solutions, and answer questions about their appropriateness and clarity, among others. Participants must be over 18 years of age, fluent in spoken and written English, and live in the United States. Participants may enter a periodic drawing for $50 gift cards.
 
Elsewhere in the Community: 
FDA Releases Action Plan for Rare Neurodegenerative Diseases and ALS
The US Food and Drug Administration (FDA) released its Action Plan for Rare Neurodegenerative Diseases Including Amyotrophic Lateral Sclerosis (ALS). The plan presents the FDA's five year strategy for improving and extending the lives of people living with rare neurodegenerative diseases by advancing the development of safe and effective medical products and facilitating patient access to novel treatments. The plan also provides a strategy for accelerating access to critical therapies for ALS and other neurodegenerative diseases.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=935252&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c