News and Notes 524 August 10

birgitta.chaiken - Wed, 08/10/2022 - 13:47

NARIC staff presents resources from the NIDILRR community and elsewhere for learning about diagnoses following emergencies, e.g., traumatic brain injury and spinal cord injury, in the Spotlight blog; NIDILRR/ACL, in developing its 2024-2029 Long-Range Plan, seeks input from key stakeholders, including people with disabilities and their families, researchers, and service providers; This Just In... presents a study examining incentives, wages, and retention among direct support professionals (DSPs); the Model Systems Knowledge Translation Center (MSKTC) publishes two new factsheets: Staying Healthy after TBI and Wound Care After Burn Injury; data from the Traumatic Brain Injury (TBI) Model Systems National Database will serve as approved data source for new core objective of Healthy People 2030; the Great Lakes ADA Regional Center hosts webinar, Health Care Access for Patients with Cognitive Disabilities; the Southeast ADA Regional Center hosts webinar, Disabled, Trans, and Queer: Intersectional Conversations in the Workplace; the project Using the National Survey on Health and Disability Panel to Document the COVID-19 Pandemic Experiences of Working-Age Americans with Disabilities conducts the 2022 National Survey on Health and Disability; the Department of Health and Human Services (HHS) releases two reports on Long COVID: The Services and Supports of Longer-Term Impacts of COVID-19 Report (Services Report) and the National Research Action Plan on Long COVID (Research Plan).

Date sent: 
2022-08-10
NARIC news: 

Recent news stories about large disasters and local emergencies may have raised questions for some about the long-term impact of injuries sustained during these events. Individuals and their families may be learning for the first time about disabilities and conditions like traumatic brain injury, spinal cord injury, burn injuries, visual impairment, or limb loss. They may be hearing new terms like assistive technology or occupational therapy. Our information specialists often speak with patrons who are looking for information to help answer the questions that come up with a new diagnosis. We assembled some of the key resources we turn to from the NIDILRR community and elsewhere in our Spotlight blog.

This Just In: 
Incentives, wages, and retention among direct support professionals: National core indicators staff stability survey. Intellectual and Developmental Disabilities, Volume 60(2), Pgs. 113-127. NARIC Accession Number: J88863.
New to the NARIC collection, this NIDILRR-funded study examined the incentives offered by organizations employing direct support professionals (DSPs), their relationships with DSP annual turnover, and how those relationships are impacted by DSP compensation. DSPs provide a range of supports in a variety of settings to people with intellectual and developmental disabilities, but high annual DSP turnover rates are problematic. Analyses revealed that incentives were not positively associated with DSP retention. Staff wages were the most notable factor associated with differences in DSP retention rates. The state location and characteristics (e.g., cost of living, unemployment rates, etc.) of the organization for which the DSPs worked made a significant impact on their DSP retention, as well as organization vacancy rates. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
TBI and Burn Injury Factsheets
The NIDILRR-funded Model Systems Knowledge Translation Center (MSKTC) (90DPKT0009) recently published two new resources for people with traumatic brain injury (TBI) and burn injury. Staying Healthy After TBI is a factsheet that aims to help those with TBI understand the negative changes their injury can have on their physical and mental health and offers tips to deal with these challenges. The factsheet covers ways to monitor one's health, preventing and managing other health conditions, maintaining physical and positive mental health, and additional resources. Wound Care After Burn Injury is an audio factsheet which explains the three levels of burn injury, as well as treatment options for skin grafts, blisters, skin tears, ulcerations, and allergic skin reactions.
 
NIDILRR News and Events: 
Long-Range Plan Stakeholder Listening Sessions
NIDILRR/ACL is developing its 2024-2029 Long-Range Plan and seeking input from key stakeholders, including people with disabilities and their families, researchers, service providers, and others. Stakeholders can provide feedback in two ways: NIDILRR/ACL will host virtual listening sessions in August, September, and October, with some sessions focusing on specific groups. Registration is free and required for these sessions. Stakeholders may also provide written feedback by email to NIDILRRfuture@neweditions.net. Comments must be submitted by November 21st.
 
News items: 
Healthy People 2030 Adds TBI Objective Supported by Model Systems Data
Data from the NIDILRR-funded Traumatic Brain Injury (TBI) Model Systems National Database (90DPTB0018) will serve as the approved data source for a new core objective of Healthy People 2030. The Office of Disease Prevention and Health Promotion's Healthy People framework provides 10-year measurable public health objectives and tools to track the nation's progress toward achieving them. The new objective is to increase the percentage of adults who can resume more than half of their preinjury activities (with or without supports) five years after receiving acute inpatient rehabilitation for TBI. The objective points to the critical importance of access to inpatient rehabilitation and to community-based services and supports for people with TBI. The TBI Model Systems National Database is the largest TBI longitudinal database in the world, with information on outcomes for individuals up to 30 years post-injury. Learn more about how the TBI database has been used to inform research, treatment, and policy to benefit individuals with TBI and their families (PDF) and about policies and procedures for obtaining the data from the national database (PDF).
 
Grantee event: 
Webinar: Health Care Access for Patients with Cognitive Disabilities
The NIDILRR-funded Great Lakes ADA Regional Center (90DPAD0012) will host webinar, Health Care Access for Patients with Cognitive Disabilities, August 16th, 2 – 3:30 pm, ET. Presenters will discuss how reasonable modifications of polices, practices, and procedures ensure that people with cognitive disabilities have access to the care they need. Participants will have an opportunity to ask questions after the presentation. Registration is free and required. Registration closes on August 15th.
 
Webinar: Disabled, Trans, and Queer: Intersectional Conversations in the Workplace
The NIDILRR-funded Southeast ADA Regional Center (90DPAD0005) will host a webinar, Disabled, Trans, and Queer: Intersectional Conversations in the Workplace, August 23rd, 2 – 3:30 pm ET. Presenters with lived experience will define the terminology around intersectionality and reclamation by highlighting the experiences of people with disabilities and those who are transgender or queer in the workplace. Presenters will describe how support personnel can begin to raise awareness and advocate for disability, neurodiversity, and LGBTQIA+ inclusion in the workplace. Registration is free and required.
 
Participate: 
2022 National Survey on Health and Disability
The NIDILRR-funded project Using the National Survey on Health and Disability Panel to Document the COVID-19 Pandemic Experiences of Working-Age Americans with Disabilities (90IFRE0050) is conducting the 2022 National Survey on Health and Disability (NSHD) to understand how access to health care, insurance, and the COVID-19 pandemic may be affecting the lives of people with disabilities. The survey is open to US adults 18 years old or older, with any disability and any type of health care coverage, including no coverage. Individuals who identify as men or Black, Indigenous, or People of Color (BIPOC), and those who live in AR, DE, FL, GA, IN, KY, MS, OH, OK, TN, and TX are encouraged to participate. This is a multi-year survey and previous respondents are also encouraged to participate. Participants may also complete the survey by phone. Participants will have a chance to win one of ten $100 gift cards. The survey closes September 2nd. For more information, call 855/556-6328 (Voice/TTY) or email healthsurvey@ku.edu.
 
Elsewhere in the Community: 
HHS Releases Two Reports on Long COVID
The Department of Health and Human Services (HHS) released two reports on Long COVID, The Services and Supports for Longer-Term Impacts of COVID-19 Report (Services Report) and The National Research Action Plan on Long COVID (Research Plan). The Services report outlines federally funded support and services that can help individuals experiencing the longer-term effects of COVID-19, including Long COVID and its associated conditions, mental health, substance use, and bereavement. The Research Plan proposes a comprehensive and equitable research strategy to inform the national response to Long COVID.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=934159&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c