News and Notes 518 June 29

birgitta.chaiken - Wed, 06/29/2022 - 12:17

In observance of LGBTQIA+ Pride Month as well as Disability Pride Month, NARIC explores research and resources from the NIDILRR community and elsewhere that look at the intersection of disability and LGBTQIA+ identity in its Spotlight blog; This Just In... examines literature about COVID-19 and the health and rehabilitation implications for racial minorities with disabilities; Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) launches Providing Culturally Competent Mental Health Care to LGBTQIA+ Youth and Young Adults, a collection of resources for providers; the Rehabilitation Research and Training Center (RRTC) on Health and Function of People with Psychiatric Disabilities hosts month-long Twitter Chat about developing, implementing, and disseminating research on integrated behavioral health care; the Great Lakes ADA Regional Center hosts webinar, Ask an ADA Pro: Communication Requirements Under the Americans with Disabilities Act (ADA); the National Data and Statistical Center for the Burn Model Systems hosts webinar, Outcome Measures in the Burn Model System Database, part of the Accessing & Using the Burn Model System Database series; the Rehabilitation Research and Training Center on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) hosts webinar, Exploring the Intersections of Person and Place: Healthy Aging for Adults with Long-Term Physical Disabilities; the Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction (RRTC on Bladder Dysfunction) seeks participants with neurogenic lower urinary tract dysfunction who use indwelling catheters to try a probiotic flush when experiencing urinary symptoms; the Biden-Harris Administration launches new initiative to expand the availability of at-home COVID-19 tests that are more accessible for people who are blind or have low vision.

Date sent: 
2022-06-29
NARIC news: 

June is widely recognized as Pride Month, celebrating progress in affirming the rights of people who are gay, lesbian, bisexual, transgender, or identify with other gender or sexual minority groups (often abbreviated LGBTQIA+). Some communities also celebrate Disability Pride Month in July, since the Americans with Disabilities Act (ADA) was signed into law in July 1990. Many people live at the intersection of disability and LGBTQIA+ identity, and may experience barriers to or success in their pursuit of full community participation. As this week overlaps both Pride celebrations, our Spotlight blog explored some of the research and resources from the NIDILRR community and elsewhere that looks at the intersection of disability and LGBTQIA+ identity.

This Just In: 
COVID-19 health and rehabilitation implications among multiply marginalized people of color with disabilities: A scoping review. Journal of Rehabilitation, Volume 88(1), Pgs. 58-73. NARIC Accession Number: J88575.
New to the NARIC collection, this NIDILRR-funded scoping review examined the literature about COVID-19 and the health and rehabilitation implications for people of color, including those with multiple marginalized statuses (i.e., racial/ethnic minority and disability), and identified research gaps. Several themes emerged from the reviewed studies, including disproportionate burdens of infections, hospitalizations, and deaths; structural racism as a driver of inequity; diminished employment opportunities; misinformation and mistrust; COVID-19 vaccine hesitancy and uptake; COVID-19 framework for federal agencies; reductions in life expectancy; protection of minority racial/ethnic healthcare workers; and limited data on race and disability. The findings revealed the existence of serious evidence gaps relating to multiply marginalized people of color with disabilities within the COVID-19 context. A clear need exists for more research on COVID-19 outcomes disaggregated by disability and race so that the field has a fuller understanding of the impact of the pandemic on people of color with disabilities. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Providing Culturally Competent Mental Health Care to LGBTQIA+ Youth & Young Adults
The NIDILRR-funded Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) (90RTEM0005) launched Providing Culturally Competent Mental Health Care to LGBTQIA+ Youth and Young Adults, a collection of resources for providers. The collection includes an introduction to the LGBTQIA+ population, statistics on adverse life events experienced by LGBTQIA+ youth, a research overview, and specific tips for providers working with this population. The collection also includes a link to a recent blog post from center staff about their experiences with mental health and employment as LGBTQ+ people who represent different ages, races, genders, sexual identities, and lived experiences.
 
News items: 
TalkMHResearch Hosts Month-Long Interactive Chat on Mental Health Research
The NIDILRR-funded Rehabilitation Research and Training Center (RRTC) on Health and Function of People with Psychiatric Disabilities (90RTHF0004) will host a month-long Twitter Chat featuring Principal Investigator Judith Cook, PhD. Throughout July, Dr. Cook, an internationally-recognized expert in mental health services research, will answer questions posted to Twitter about developing, implementing, and disseminating research on integrated behavioral health care. Each week will feature different themes. Follow @TalkMHResearch to participate. A Twitter account is not necessary to follow the discussion but users must be logged into an account to post questions and answers.
 
Grantee event: 
Webinar: Communication Requirements Under the ADA
The NIDILRR-funded Great Lakes ADA Regional Center (90NDPAD0012) will host a webinar, Ask an ADA Pro: Communication Requirements Under the Americans with Disabilities Act (ADA), July 13th, 2 - 3 pm ET. Presenters from three ADA National Network Regional Centers will answer questions submitted by participants about communication requirements under the ADA, such as captioning in live events and making TTY and other communication modes available for customers or patrons, among others. Registration is free and required by July 12th. Registered participants are encouraged to submit questions in advance.
 
Webinar: Outcome Measures in the Burn Model System Database
The NIDILRR-funded National Data and Statistical Center for the Burn Model Systems (90DPGE0004) will host a webinar, Outcome Measures in the Burn Model System Database, July 14th, 2 - 3 pm ET, part of the Accessing & Using the Burn Model System Database series. Presenters will provide an overview of the measures collected by the Burn Model System Centers, including the measure selection process and the data available for each. No registration is required to attend the webinar. Previous webinars in the series are archived on the website.
 
Webinar: Exploring the Intersections of Person and Place
The NIDILRR-funded Rehabilitation Research and Training Center on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) (90RTHF0001) will host a webinar, Exploring the Intersections of Person and Place: Healthy Aging for Adults with Long-Term Physical Disabilities, July 14th, 2 - 3 pm ET. Five interdisciplinary experts, including several with lived experience, will conduct an interactive, dynamic conversation about healthy aging with disabilities and the importance of environmental factors such as the built, attitudinal, and policy environments. Panelists will also discuss high-priority concerns, including housing, social disconnectedness and isolation, home and community-based supports, and steps to improve outcomes. Registration is free and required.
 
Participate: 
Probiotic Bladder Flush Study
The NIDILRR-funded Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction (RRTC on Bladder Dysfunction) (90RTHF0003) seeks participants with neurogenic lower urinary tract dysfunction who use indwelling catheters and who experience urinary symptoms to try a probiotic flush when experiencing urinary symptoms. Participants must be diagnosed with a neurogenic bladder, use indwelling catheterization for bladder management, be at least 18 years of age, and have a history of two or more episodes of urinary symptoms in the past year. For more information or to volunteer, contact Allison Maxwell at allison.m.maxwell@medstar.net or 202/877-1560.
 
Elsewhere in the Community: 
Accessible At-Home COVID-19 Tests Now Available
The Biden-Harris Administration launched a new initiative to expand the availability of at-home tests that are more accessible for people who are blind or have low vision. The tests work with a Bluetooth-enabled smartphone to provide users with audible, step-by-step instructions and audible test results. Orders will ship free, while supplies last, and each order will include two rapid antigen tests. Tests can be ordered online or by calling 800/232-0233. Individuals can also request assistance with ordering and administering tests by contacting the Disability Information and Access Line at 888/677-1199 Monday-Friday, 9 am - 8 pm ET or email DIAL@usaginganddisability.org.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=933232&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c