News and Notes 516 June 15

birgitta.chaiken - Wed, 06/15/2022 - 13:24

In observance of Father's Day this coming Sunday, NARIC offers promising research and resources for fathers with disabilities from the NIDILRR community and elsewhere in its Spotlight blog; This Just In... presents a study examining the self-reported frequency of emergency department (ED) visits, ED-related hospitalizations, and reasons for ED visits among people with traumatic spinal cord injury (SCI) compared with general population data from the National Health Interview Survey (NHIS) for the same geographic area; the Model Systems Knowledge Translation Center (MSKTC) publishes two infocomics for SCI and burn injury survivors, Respiratory Health and Spinal Cord Injury, and Itchy Skin After Burn Injury; principal investigator for the Rehabilitation Research and Training Center on Employment of People Who are Blind or Have Low Vision was interviewed for A Sense of Texas, the podcast of the Texas School for the Blind and Visually Impaired; the Americans with Disabilities Act (ADA) Network Knowledge Translation Center to host next quartely Twitter Chat, Accessibility and the ADA, on the meaning and accessibility of digital accessibility; the Mid-Atlantic ADA Regional Center hosts webinar, The Future of Business is Accessible: Young Business Leaders Talk Full Inclusion; the Minnesota Regional Spinal Cord Injury Model System hosts webinar, Grand Rounds: Sexuality and Sexual Function in Spinal Cord Injury (SCI); the project Reclaiming Employment: Self-Employment Resources for Mental Health Service Users seeks users to pilot its Reclaiming Employment Platform, which offers support to people with mental health challenges around work to start and run small businesses; the Interagency Committee on Disability Research (ICDR) to host two events focusing on new research and development for the disability and rehabilitation community: a Stakeholder Meeting and a Lunch & Learn Webinar.

Date sent: 
2022-06-15
NARIC news: 

This Sunday is Father's Day in the US and we're celebrating fathers, grandfathers, godfathers, and other men with disabilities who are also parents. A study from the National Research Center for Parents with Disabilities found that most studies on parenting with disabilities focus on mothers or on both parents, while few focus on the specific needs of fathers with disabilities. In fact, a quick search in our REHABDATA database found many publications about fathers of children with disabilities, but few about fathers with disabilities. Visit our Spotlight blog to learn more about the research we found, some promising research emerging from the field, and resources for fathers with disabilities from the NIDILRR community and elsewhere.

This Just In: 
Emergency department visits, related hospitalizations, and reasons for emergency department utilization after traumatic spinal cord injury. Archives of Physical Medicine and Rehabilitation, Volume 103(4), Pgs. 722-728. NARIC Accession Number: J88632.
New to the NARIC collection, this NIDILRR-funded study examined the self-reported frequency of emergency department (ED) visits, ED-related hospitalizations, and reasons for ED visits among people with traumatic spinal cord injury (SCI) compared with general population data from the National Health Interview Survey (NHIS) for the same geographic area. Researchers found participants with SCI were 151% more likely to visit the ED and 249% more likely to have at least 1 ED hospitalization than the NHIS sample. Participants with SCI had a higher percentage of ED visits caused by severe health conditions, reported an ED was the closest provider, and were more likely to arrive by ambulance than other transportation. NHIS participants were more likely to visit the ED because no other option was available. ED visits may indicate the need for intervention beyond the acute condition leading directly to the ED visits and an opportunity to link individuals with resources needed to maintain function in the community. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
New SCI and Burn Injury Infocomics
The NIDILRR-funded Model Systems Knowledge Translation Center (MSKTC) (90DPKT0009) published two infocomics for spinal cord injury (SCI) and burn injury survivors. Respiratory Health and Spinal Cord Injury explains how respiratory issues can develop after SCI and ways to actively improve respiratory health, such as avoiding smoking, staying hydrated, and getting a flu shot. This infocomic is also available in Spanish (PDF). Itchy Skin After Burn Injury explains why people with burn injury commonly experience itchy skin and ways to manage it, such as using unscented detergents, massaging the skin with lotion, and participating in activities to distract from the injury. This infocomic is also available in Spanish (PDF).
 
News items: 
NIDILRR Researcher Featured on A Sense of Texas
Michele McDonnall, PhD, principal investigator for the NIDILRR-funded Rehabilitation Research and Training Center on Employment of People Who are Blind or Have Low Vision (90RTEM0007), was interviewed for the latest episode of A Sense of Texas, the podcast of the Texas School for the Blind and Visually Impaired. Dr. McDonnall discussed the center's research in barriers and facilitators to employment, including the important period of transition for young people who are blind or who have low vision.
 
Grantee event: 
ADA National Network Twitter Chat: Accessibility and the ADA
The NIDILRR-funded Americans with Disabilities Act (ADA) Network Knowledge Translation Center (90DPAD0004) will host the next quarterly Twitter Chat, Accessibility and the ADA, June 22nd, 1 – 2 pm ET. Representatives from the 10 regional centers will post questions and answers on the meaning of accessibility and digital accessibility, things to do to make digital content more accessible, accessibility requirements under the ADA, and more. Search the hashtag #ADANetworkChat on Twitter to follow the chat. A Twitter account is not necessary to follow the discussion, but users must be logged into an account to post questions and answers.
 
Webinar: The Future of Business is Accessible – Young Business Leaders Talk Full Inclusion
The NIDILRR-funded Mid-Atlantic ADA Regional Center (90DPAD0008) will host a webinar, The Future of Business is Accessible: Young Business Leaders Talk Full Inclusion, June 22nd, 2 – 3 pm ET. Presenters will discuss their personal efforts in guiding businesses to embrace full inclusion of people with disabilities. Presenters will provide insight into what they see as current barriers to change, and their proposed solutions. Registration is free and required.
 
Webinar: Sexuality and Sexual Function in SCI
The NIDILRR-funded Minnesota Regional Spinal Cord Injury Model System (90SIMS0008) will host a webinar, Grand Rounds: Sexuality and Sexual Function in Spinal Cord Injury (SCI), July 7th, 1 – 2 pm ET. Presenters will discuss how SCI can affect sexual function and current research to support sexual function and expression of sexuality for people with SCI. Registration is free and required. Continuing education credits are available.
 
Participate: 
Reclaiming Employment™ Self-Employment Platform Pilot Test
The NIDILRR-funded project Reclaiming Employment: Self-Employment Resources for Mental Health Service Users (90IFOV0016) is recruiting users to pilot its Reclaiming Employment platform, which launched this month. Reclaiming Employment offers support for people with mental health challenges around work to start and run small businesses. Reclaiming Employment includes dedicated spaces for veterans, returning citizens, LGBTQ+ individuals, and people of color who are looking for support to start a business. During the pilot research study, users will have access to all the website’s features and participate in a few surveys. Participation is open to individuals with mental health challenges who are interested in or currently engaged in self-employment. Interested individuals can complete the online form to request an invitation to the platform. Enrollment closes June 17th.
 
Elsewhere in the Community: 
ICDR Meetings Spotlight Disability and COVID-19 Research
The Interagency Committee on Disability Research (ICDR), of which NIDILRR is a member, will host two events focusing on new research and development for the disability and rehabilitation community. ICDR will hold a virtual Stakeholder Meeting, June 23rd, 12 – 4 pm ET. Presenters will share the current accomplishments and vision of the ICDR, along with an overview of the current state of research progress and future research priorities across three focus areas: Disability data and statistics, equity, and COVID-19. ICDR will also host a Lunch & Learn webinar, June 30th, 11 am – 12 pm ET. Presenters will discuss the role of pediatric psychologists in mitigating disability-specific barriers among youth during the COVID-19 pandemic. Registration is free and required and space is limited for both events.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=932872&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c