News and Notes 513 May 25

birgitta.chaiken - Wed, 05/25/2022 - 11:55

In observance of Stroke Awareness Month, organized by the American Heart Association, NARIC has information on NIDILRR-funded projects supporting people who are recovering from stroke; This Just In... presents a study exploring why people with low vision are underutilizing visual assistive mobile apps; the project TEST - Translating Evidence to Support Transitions: Improving Outcomes of Youth in Transition with Psychiatric Disabilities by Use and Adoption of Best Practice Transition Planning publishes video, Incorporating Career and Technical Education (CTE) in Transition Planning for Students with Emotional Behavioral Disturbances; research from Temple University Rehabilitation Research and Training Center on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) is featured in the Administration for Community Living (ACL) blog in honor of Mental Health Awareness Month; TU Collaborative hosts webinar, Using Leisure to Talk About Mental Illness, third webinar in the TU Collaborative's Parenting Through Leisure webiinar series; the National Center for Disability and Pregnancy Research (NCDPR) hosts webinar, Disabled Parents in the NICU, featuring parents whose premature babies were admitted to the neonatal intensive care unit; the Model Systems Knowledge Translation Center (MSKTC) is seeking participants with severe traumatic brain injury (TBI) and their families to test new factsheet, A Family Caregiver Guide to Selecting Rehabilitation Programs for Persons with Disorders of Consciousness (DOC); the National Spinal Cord Injury Statistical Center (NSCISC) is accepting applications for the 2022 DeVivo Mentored Research Award, a one-year research award for trainees interested in conducting a research project using data from the National NCI Model Systems Database; the National Institute on Deafness and Other Communication Disorders (NIDCD) at the National Institutes of Health is seeking public comments on draft themes and goals for its 2022-2027 Strategic Plan, supporting and conducting research in the areas of hearing, balance, taste, smell, voice, speech, and language.

Date sent: 
2022-05-25
NARIC news: 

May is Stroke Awareness Month, organized by the American Heart Association, and this week we're highlighting some of the technology projects NIDILRR has funded supporting people who are recovering from stroke. Some of the research and development support individuals directly, such as developing custom orthoses to improve walking or testing web-based therapy programs for recovery at home. Other projects help clinicians to assess individuals who have had a stroke, prescribe or provide therapies or interventions, and measure recovery. Visit our Spotlight blog to learn about these projects and how they're changing the lives of stroke survivors!

This Just In: 
Why are visual assistive mobile apps underutilized by low vision patients? Optometry and Vision Science. NARIC Accession Number: J88521.
New to the NARIC collection, this NIDILRR-funded study explored why people with low vision are underutilizing some of the existing visual assistive mobile applications (apps). Researchers evaluated three visual assistive apps on a loaner iPhone for older adults (>55 years) with low vision, and found that the primary reason for not using these apps was a lack of awareness of such apps and the secondary reason was a lack of know-how and training. Low vision rehabilitation providers should inquire about whether their patients have a mobile device and are using any visual assistive apps, then provide information about the apps, as well as demonstrations, assistance with downloading, and training as needed. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Video: Incorporating CTE in Transition Planning for Students with Emotional Behavioral Disturbances
The NIDILRR-funded project TEST - Translating Evidence to Support Transitions: Improving Outcomes of Youth in Transition with Psychiatric Disabilities by Use and Adoption of Best Practice Transition Planning (90DP0080) published a video, Incorporating Career and Technical Education (CTE) in Transition Planning for Students with Emotional Behavioral Disturbances. The video explains the advantages of CTE for students with emotional behavioral disturbances in achieving employment success. The video highlights the TEST practice guide that readies special educators to complete career assessments and career exploration activities with students, work with students to create post-high school career goals, determine a progression of career-specific CTE courses to take in high school, and develop supports to reinforce CTE learning.
 
News items: 
Mental Health Research Featured by ACL for Mental Health Awareness Month
Research from the NIDILRR-funded Temple University Rehabilitation Research and Training Center on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) (90RTCP0001) is featured in the Administration for Community Living (ACL) blog in honor of Mental Health Awareness Month. Kyra Baker, research and intervention coordinator for the TU Collaborative, authored the guest post, describing one of the TU Collaborative projects that uses Photovoice to promote campus engagement among college students with serious mental health conditions.
 
Grantee event: 
Webinar: Using Leisure to Talk About Mental Illness
The NIDILRR-funded Temple University Rehabilitation Research and Training Center on Community Living and Participation of People with Serious Mental Illness (TU Collaborative) (90RTCP0001) will host a webinar, Using Leisure to Talk About Mental Illness, June 2nd, 12 – 1 pm ET. The third webinar in the TU Collaborative's Parenting Through Leisure webinar series focuses on using leisure to discuss mental illness. Presenters will discuss the benefits of disclosing mental illness to children and strategies to talk about mental illnesses while engaging in fun activities with children. Registration is free and required.
 
Webinar: Disabled Parents in the NICU
The NIDILRR-funded National Center for Disability and Pregnancy Research (NCDPR) (90DPHF0011) will host a webinar, Disabled Parents in the NICU, June 7th, 12 – 1 pm ET. The speaker panel will feature two parents with disabilities whose babies were born prematurely and were admitted to the neonatal intensive care unit (NICU). The parent panelists will share the challenges and successes they encountered when navigating an environment that was not built with disability in mind. The panelists will also explore the role that implicit bias and ableism may have had in interactions with their babies' care teams, and in parenting their babies in the NICU. The panel will also include a speaker who will discuss the ingrained nature of implicit bias, its affect on families, and how to better support parents with disabilities at this vulnerable time. Registration is free and required.
 
Participate: 
Individuals with Severe TBI and Their Family Members Sought for TBI Factsheet Testing
The NIDILRR-funded Model Systems Knowledge Translation Center (MSKTC) (90DPKT0009) is recruiting people with severe traumatic brain injury (TBI) who experienced disorders of consciousness and their family members to test a new factsheet, A Family Caregiver Guide to Selecting Rehabilitation Programs for Persons with Disorders of Consciousness (DOC). Participants must be at least 18 years of age. Interviews will last approximately 60 minutes and participants will receive a $25 gift card for their time. To learn more or to participate call 202/403-5600 or email msktc@air.org.
 
DeVivo Mentored Research Award
The NIDILRR-funded National Spinal Cord Injury Statistical Center (NSCISC) (90SIMS0016) is accepting applications for the 2022 DeVivo Mentored Research Award (PDF). The award is a one-year, $3,000 research award for trainees who are interested in conducting a research project using data from the National SCI Model Systems Database. Applications must include a research proposal, budget, and a letter from a mentor or mentors. Additional eligibility and application requirements are available in the announcement linked above. Applications are due by July 8th.
 
Elsewhere in the Community: 
NIDCD Seeks Public Comment on 2022-2027 Strategic Plan Draft
The National Institute on Deafness and Other Communication Disorders (NIDCD) at the National Institutes of Health is seeking public input on draft themes and goals for its 2022-2027 Strategic Plan (PDF). NIDCD supports and conducts research in the areas of hearing, balance, taste, smell, voice, speech, and language. NIDCD has proposed six themes for the plan including capitalizing on advances in basic research to enhance understanding of normal functions and disordered processes, developing and improving model systems to inform research, promoting precision medicine, translating and implementing scientific advances into standard clinical care, facilitating use of best practices in biomedical data science, and harnessing advanced technology to improve prevention, diagnosis, and treatment. NIDCD is also seeking public comment on its Workforce Diversity, Equity, and Inclusion efforts, which will be included in the plan. Comments may be submitted via the online form through May 31st.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=932340&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c