News and Notes 510 May 4

In observance of Mental Health Month, organized by Mental Health America, NARIC explores more than 25 articles about interventions, services, and supports for people living with mental health conditions in the Research in Focus series; This Just In... presents a qualitative investigation of health information resources for caregivers and individuals living with spinal cord injury; the Rehabilitation Research and Training Center (RRTC) on Community Living and Participation publishes the Spring 2002 edition of Impact: Feature Issue on Inclusive Higher Education for People with Intellectual, Developmental, and Other Disabilities; research findings on the impacts of wheelchair breakdowns by Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment have been cited as supporting evidence by members of the Pennsylvania House of Representatives to introduce the Wheelchair Quality Assurance Act; the Pacific ADA Regional Center hosts webinar, The Realities of Emergency Management: Understanding Our Realities and How They Impact Inclusive Emergency Management; the Center on Knowledge Translation on Employment Research (CeKTER) hosts webinar, Turning Research Findings Into Implementation Activities - The "Knowledge to Action" Cycle: A Conversation with Dr. Ian Graham; the Great Lakes ADA Regional Center and the ADA Network Knowledge Translation Center host webinar, The Americans with Disabilities Act (ADA) in Small Cities and Towns; the project Using the National Survey on Health and Disability Panel to Document the COVID-19 Pandemic Experiences of Working-Age Americans with Disabilities seeks adult participants with disabilities for its 2022 National Survey on Health and Disability; the US Access Board holds virtual meeting on Low Transfer Surface Height for Medical Diagnostic Equipment (MDE) to gather information on the minimum heights that MDE with transfer surfaces can be adjusted to accommodate the broadest range of users.

Date sent: 
2022-05-04
NARIC news: 

Mental Health Month begins this week, organized by Mental Health America, and this year's theme is Back to Basics, providing foundational knowledge about mental health and mental health conditions, and information about what people can do if their mental health is a cause for concern. For us at NARIC, back to basics means going back to the research from the NIDILRR grantee community and looking at how it builds knowledge about mental health and people with lived experience in the community. We turned to our Research In Focus series and explored more than 25 articles about interventions, services, and supports for people living with mental health conditions, as well as interactions between these conditions and other disabilities.

This Just In: 
Qualitative investigation of health information resources for caregivers and individuals living with spinal cord injury. Topics in Spinal Cord Injury Rehabilitation, Volume 27(4), Pgs. 79-96. NARIC Accession Number: J88337.
New to the NARIC collection, researchers in this NIDILRR-funded study interviewed caregivers and individuals with spinal cord injury (SCI) to better understand how health information is accessed and used. Medical resources such as SCI specialists were considered the most reliable sources, but due to accessibility barriers the Internet was used the most. While the Internet and social resources provided beneficial content information and emotional support, they posed credibility and reliability concerns. Participants identified information gaps such as lack of education on basic care practices during the transition from acute to chronic care. Findings suggest that patients are concerned about the reliability of online sources of information; therefore, there is a need for new methods of SCI information dissemination, potentially using primary care providers as conduits. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Impact: Inclusive Higher Education for People with Intellectual, Developmental, and Other Disabilities
The NIDILRR-funded Rehabilitation Research and Training Center (RRTC) on Community Living and Participation (90RTCP0003) published the Spring 2022 edition of Impact: Feature Issue on Inclusive Higher Education for People with Intellectual, Developmental, and Other Disabilities. This issue discusses inclusive postsecondary education for people with a variety of disabilities and includes how-to articles, personal stories from people with disabilities on their experiences with postsecondary education, and overviews of programs across the country that are helping to increase inclusive postsecondary education in their states.
 
News items: 
Research Findings Used to Support Legislation to Require Wheelchair Maintenance Coverage
Research findings on rates and impacts of wheelchair breakdowns by the NIDILRR-funded project Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment (90DPGE0014) have been cited as supporting evidence by members of the Pennsylvania House of Representatives to introduce the Wheelchair Quality Assurance Act. The proposed legislation requires all public and private insurance to cover biannual checkups and replacement costs for wheeled mobility devices. The co-sponsorship memorandum cites the project's findings on rates of wheelchair breakdown and the connection between breakdowns and loss of work, costly hospitalization, injury, and death.
 
Grantee event: 
Webinar: The Realities of Emergency Management – Understanding Our Realities and How They Impact Inclusive Emergency Management
The NIDILRR-funded Pacific ADA Regional Center (90DPAD0006) will host a webinar, The Realities of Emergency Management: Understanding Our Realities and How They Impact Inclusive Emergency Management, May 12th, 2:30 – 4 pm ET. The presenters will discuss the realities emergency managers face, such as small budgets and little to no staff, and how to incorporate these realities in approaches to increase accessibility and compliance with the Americans with Disabilities Act (ADA) in emergency management. Registration is free and required by May 11th.
 
Webinar: Turning Research Findings Into Implementation Activities – The "Knowledge to Action" Cycle – A Conversation with Dr. Ian Graham
The NIDILRR-funded Center on Knowledge Translation on Employment Research (CeKTER) (90DPEM0004) will host a webinar, Turning Research Findings Into Implementation Activities – The "Knowledge to Action" Cycle: A Conversation with Dr. Ian Graham, May 12th, 2 – 3 pm ET. The Knowledge to Action (KTA) breaks down the implementation process into 7 actionable phases starting with determining the knowledge-practice/policy gap through to sustaining the change. The webinar will take the form of a discussion where Dr. Graham will answer questions about KTA and how to ensure that research findings will guide change in practice. Registration is not necessary and this is a free event.
 
Webinar: The ADA in Small Cities and Towns
The NIDILRR-funded Great Lakes ADA Regional Center (90DPAD0012) and the ADA Network Knowledge Translation Center (90DPAD0004) will host a webinar, The Americans with Disabilities Act (ADA) in Small Cities and Towns, May 17th, 2 – 3:30 pm ET. Presenters will discuss how people with disabilities must have an equal opportunity to participate in and benefit from a town's services, programs, and activities. Presenters will also discuss the ADA requirements for town facilities, communications with the public, and policies and procedures governing town programs, services, and activities. Participants will have an opportunity to ask questions following the presentation. Registration is free and required by May 16th.
 
Participate: 
2022 National Survey on Health and Disability
The NIDILRR-funded project Using the National Survey on Health and Disability Panel to Document the COVID-19 Pandemic Experiences of Working-Age Americans with Disabilities (90IFRED0050) is conducting the 2022 National Survey on Health and Disability to understand how access to health care, insurance, and the COVID-19 pandemic may be affecting the lives of people with disabilities. The survey is open to US adults 18 years or older, with any disability and any type of health care coverage, including no coverage. This is a multi-year survey and previous respondents are encouraged to participate. For more information, call 855/556-6328 (Voice/TTY) or email healthsurvey@ku.edu. Participants may also complete the survey by phone. Participants will have a chance to win a $100 gift card. The survey closes September 2nd.
 
Elsewhere in the Community: 
Access Board Virtual Meeting on Medical Diagnostic Equipment
The US Access Board will hold a virtual meeting on Low Transfer Surface Height for Medical Diagnostic Equipment (MDE), May 12th, 2 – 4 pm ET, to gather information on the minimum heights that MDE with transfer surfaces can be adjusted to accommodate the broadest range of users. MDE with transfer surfaces can include imaging equipment, examination tables, and examination chairs, among others. The Board seeks information from disability advocates, MDE manufacturers, researchers, and other stakeholders on the low height for these surfaces, as well as changes or innovations in design and costs for design or redesign. Registration is free but required. Background and instructions for submitting comments are in the published notice.