News and Notes 502 March 9

birgitta.chaiken - Wed, 03/09/2022 - 11:48

In observance of Developmental Disabilities Awareness Month, NARIC has information in its Spotlight Blog on research and resources from the NIDILRR community and elsewhere that address inclusional barriers to community life faced by people with developmental disabilities; This Just In... presents a study exploring the association of demographics and injury characteristics of burn survivors with kinesiophobia, the fear of movement; the Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction releases What is Bladder BOTOX?, the latest episode of the Bladder Buzz Podcast; project director for the Rocky Mountain ADA Regional Center was interviewed for KX Conversation: Emily Shuman discusses the 32nd year of the Americans with Disabilities Act (ADA) on KX News in Bismarck and Minot, ND; principal investigator for the Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment was interviewed for Finding a Better Way to Pay in Let's Get Moving magazine; the Great Lakes ADA Regional Center hosts webinar, Legal Update on ADA Claims of Disparate Impact vs. Disparate Treatment; the Rehabilitation Research and Training Center on Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural) seeks participants with disabilities living in rural communities for a study on their experiences with different transportation services in their communities; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) is accepting applications for its postdoctoral research fellowship program focused on the transition to adulthood of youth with disabilities; the Office of Disability Employment Policy's Job Accommodation Network (JAN) hosts webinar, Accommodation Solutions for Executive Functioning Deficits. 

Date sent: 
2022-03-09
NARIC news: 

March is Developmental Disabilities Awareness Month, raising awareness about the inclusion of people with developmental disabilities in all facets of community life, as well as awareness about the barriers they face in connecting to the communities where they live. Research has shown that more people with intellectual and developmental disabilities are living longer and fuller lives, but they still experience challenges as they age which can hinder them from living self-determined and healthy lives. These can include attitudinal barriers to pursuing romantic relationships and building families, limited access to truly competitive employment, and financial limitations which make it difficult to save for or even contemplate retirement. Read today's Spotlight Blog post to learn about research and resources from the NIDILRR community and elsewhere that tackle some of these issues.

This Just In: 
Evaluation of kinesiophobia in survivors of major burn injury. Journal of Burn Care and Research. NARIC Accession Number: J88232.
New to the NARIC collection, this NIDILRR-funded study explored the association of the demographics and injury characteristics of burn survivors with kinesiophobia, the fear of movement. Among the people with burn injuries who participated in the study, the majority reported high levels of kinesiophobia. Kinesiophobia was greater in males who were non-White, Hispanic/Latino, age greater than 50 years, with total body surface area burned greater than 15%. Participants who had sustained a burn injury more than 12 months prior to the study showed higher levels of kinesiophobia than the participants who were injured within 12 months. Overall, this study highlights the importance of continued, long-term follow-up for burn survivors, and appropriate educational and treatment interventions to address any underlying existing, new, or emerging medical issues that may contribute to the fear or avoidance of movement. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Bladder Buzz Podcast: What is Bladder BOTOX?
The NIDILRR-funded Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction (90RTHF0003) released What is Bladder BOTOX®?, the latest episode of the Bladder Buzz Podcast. In this episode, Drs. Argy Stampas and Rose Khavari discuss the challenges in managing overactive bladder and incontinence due to neurogenic bladder and BOTOX® as a treatment option. They discuss how it is prescribed and administered, and how long treatment may last. They also discuss why some patients with neurogenic bladder may not be able to receive BOTOX®.
 
News items: 
ADA in Focus on KX Conversations
Emily Shuman, project director for the NIDILRR-funded Rocky Mountain ADA Regional Center (90DPAD0009), was interviewed for KX Conversation: Emily Shuman discusses the 32nd year of the Americans with Disabilities Act (ADA), on KX News in Bismark and Minot, ND. Ms. Shuman described what the ADA is and what and who it covers. She also discussed the services available from the Center to help people with disabilities, business owners, and government entities to understand their rights and responsibilities under the law, and frequently asked topics such as service animals and workplace questions.
 
Complex Rehab Technology Research Highlighted in Let's Get Moving Magazine
Mark Schmeler, PhD, principal investigator for the NIDILRR-funded project on Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment (90DPGE0014), was interviewed for Finding a Better Way to Pay in the Winter issue of Let's Get Moving magazine. Dr. Schmeler described the project and its research goals, and how this research may help to shape policy coverage for wheelchairs and seating technology.
 
Grantee event: 
Webinar: Legal Update on ADA Claims of Disparate Impact vs. Disparate Treatment
The NIDILRR-funded Great Lakes ADA Regional Center (90DPAD0014) will host a webinar, Legal Update on ADA Claims of Disparate Impact vs. Disparate Treatment, March 16th, 2 – 3:30 pm ET. Presenters will review the latest developments relating to disparate impact and disparate treatment claims under the Americans with Disabilities Act (ADA). Presenters will also review the analytical standards and will discuss current legal actions relating to disparate impact all the way to the latest Appeals Courts decisions and a filing with the US Supreme Court. Questions may be sent in advance. Registration is free and required. Continuing education credits are available upon request.
 
Participate: 
Study: Rural Transportation Interviews
The NIDILRR-funded Rehabilitation Research and Training Center on Place-Based Solutions for Rural Community Participation, Health, and Employment (RTC: Rural) (90RTCP0002) seeks to interview people with disabilities living in rural communities for a study on how they get around their in communities and their experiences with different transportation services. Participants must be 18 years of age or older, have a disability, live in a rural area, and must rely on others for rides or use public transportation to get around in their community. Participation involves a one-hour interview by phone or video chat and participants will receive $30 for their time. To learn more about the study or to volunteer, contact Andrew Myers at ruraltranspo@mso.umt.edu or 406/243-4683.
 
Postdoctoral Research Fellowship at Transitions ACR
The NIDILRR-funded Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) (90RTEM0005) is accepting applications for its postdoctoral research fellowship program focused on the transition to adulthood of youth with disabilities. The fellowship program includes opportunities to participate in ongoing research and grant submissions, complete pilot projects, have opportunities for publications and presentations using new and existing datasets, and prepare independent research grants. Eligibility criteria and application instructions are available from the website. Applications must be submitted by March 31st.
 
Elsewhere in the Community: 
JAN Webinar: Accommodation Solutions for Executive Function Deficits
The Office of Disability Employment Policy's Job Accommodation Network (JAN) will host a webinar, Accommodation Solutions for Executive Functioning Deficits, March 17th, 2 – 3 pm ET. Presenters will discuss accommodation solutions for employees with executive function deficits. Presenters will address limitations affecting attention, time management, memory, hyperactivity/impulsivity, and getting to work on time. Questions may be submitted in advance. Registration is free and required. The full schedule for JAN's 2022 Accommodation and Compliance Webcast Series is available online.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=930096&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c#