News and Notes 498 February 9

birgitta.chaiken - Wed, 02/09/2022 - 12:04

In observance of Burn Awareness Week, organized by the American Burn Association (ABA), NARIC offers links to research articles on the treatment of burn injuries and related issues in its Research in Focus series, as well as information on burn treatment from the Model Systems Knowledge Translation Center; This Just In... features a scoping review highlighting high-intensity, activity-based interventions in treatment of subacute and chronic spinal cord injury (SCI); the Rehabilitation Research and Training Center on Community Living and Participation releases Impact: Feature Issue on Retirement and Aging for People with Intellectual, Developmental, and Other Disabilities; NIDILRR director Dr. Anjali Forber-Pratt is interviewed for the Rocky Mountain ADA Regional Center podcast Adventures in Accessibility; principal investigator for the project Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment was interviewed on the Talk Rehab podcast about research on mobility equipment; the Great Lakes Regional ADA Center hosts webinar, The Intersection of Race and Disability; the Rehabilitation Research and Training Center (RRTC) on Employment of Transition Age Youth with Disabilities and the RRTC on Employment of People with Intellectual and Developmental Disabilities host webinar, Employment AHEAD: Giving Youth Space to Lead; the Rehabilitation Research and Training Center on Home and Community Based Services Outcome Measures (RTC OM) seeks guardians of people with disabilities and other adults who know an adult with disability to test measures to improve home- and community-based services (HCBS) outcomes for people with disabilities; the National Institutes of Health (NIH) seeks public input on Diversity, Equity, Inclusion, and Accessibility  (DEIA), aimed to implement organization practices to center and prioritize DEIA framework in the workforce and in research.

Date sent: 
2022-02-09
NARIC news: 

This week is Burn Awareness Week, organized by the American Burn Association (ABA) to focus on awareness and prevention of burn injuries in the community. According to the ABA, more than 450,000 serious burn injuries occur every year in the US. Burn injuries can happen in many ways, including contact with flame, hot surfaces, steam, chemicals, and electricity. Burn injuries can cause physical and sensory disabilities, and burn injury survivors may also experience mental health conditions as they recover, such as post-traumatic stress disorder and anxiety. The NIDILRR-funded Burn Model System Centers are conducting research to support people with burn injuries to participate fully in their communities, from physical and cognitive rehabilitation to support on the job. We've explored many facets of this research in our Research In Focus series. These centers also collaborate with the Model Systems Knowledge Translation Center to create factsheets, videos, and infocomics for burn survivors and caregivers.

This Just In: 
Highlighting gaps in spinal cord injury research in activity-based interventions for the upper extremity: A scoping review. Neurorehabilitation, Volume 49(1), Pgs. 23-38. NARIC Accession Number: J87820.
New to the NARIC collection, this NIDILRR-funded scoping review examined the high-intensity, activity-based interventions used in neurological conditions for their current and potential application to subacute and chronic spinal cord injury (SCI). Among 172 studies identified, there were 7 studies with SCI, all in adults. Activity-based interventions in SCI included task-specific training and gaming, with and without electrical stimulation, and a robotic exoskeleton while 34 different interventions were reported in stroke, cerebral palsy, and multiple sclerosis. These included high-intensity interventions using virtual reality, brain stimulation, rehabilitation devices, and applications to the home and telerehab settings, none of which were available for the SCI population. The results highlight critical gaps within upper extremity high-intensity activity-based research in SCI. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Impact: Retirement and Aging for People with Intellectual, Developmental, and Other Disabilities
The NIDILRR-funded Rehabilitation Research and Training Center on Community Living and Participation (90RTCP0003) released Impact: Feature Issue on Retirement and Aging for People with Intellectual, Developmental, and Other Disabilities. This issue of Impact explores aging and retirement and urges policymakers, researchers, and others to create healthy, integrated retirement opportunities for this population. Individual articles discuss advocacy and equality during and after retirement, critical needs and unanswered questions during retirement, a conversation on aging and disability, and more.
 
News items: 
Dr. Forber-Pratt Interviewed for Adventures in Accessibility Podcast
Adventures in Accessibility, the podcast of the NIDILRR-funded Rocky Mountain ADA Regional Center (90DPAD0009), featured an interview with Dr. Anjali Forber-Pratt, Director of NIDILRR, for the 28th episode. In the interview, Dr. Forber-Pratt discussed growing up with a disability and how it shaped her identity as an advocate and a self-advocate. She discussed the importance of the Americans with Disabilities Act (ADA) and progress on inclusion and accessibility. Dr. Forber-Pratt also discussed her research on disability identity development and her new role as NIDILRR's director.
 
Complex Rehabilitation Technology and Health Policy on Talk Rehab
Mark Schmeler, PhD, principal investigator for the NIDILRR-funded project Assessment and Investigation of New Coverage Policies for Complex Rehabilitation Technology (CRT) Within a Contemporary Accountable Care Environment (90DPGE0014), was interviewed for Dr. Schmeler Talks Rehab on the Talk Rehab podcast. Dr. Schmeler discussed the project's recent literature review on coverage for wheeled mobility, research on repair data and the life cycle of mobility equipment, and how this research may impact coverage for this essential equipment.
 
Grantee event: 
Webinar: The Intersection of Race and Disability
The NIDILRR-funded Great Lakes Regional ADA Center (90DPAD0012) will host a webinar, The Intersection of Race and Disability, February 15th, 2-3:30 pm ET. Presenters will discuss how the lived experience of people with disabilities is varied, even within racial and ethnic groups. Presenters will discuss the experiences of people of color with disabilities. Participants may submit questions in advance. Registration is free and required. Continuing education credits are available upon request.
 
Webinar: Employment AHEAD – Giving Youth Space to Lead
The NIDILRR-funded Rehabilitation Research and Training Center (RRTC) on Employment of Transition-Age Youth with Disabilities (90RTEM0002) and the RRTC on Employment of People with Intellectual and Developmental Disabilities (90RTEM0003) will host a webinar, Employment AHEAD: Giving Youth Space to Lead, February 24th, 2-2:45 pm ET. Presenters will discuss planning secondary vocational programming, development of supported leadership and goal-setting opportunities, and the elevation of employment expectations for young people with disabilities. Presenters will also discuss the implementation of work-based learning experiences and the incorporation of employment into the transition process. Registration is free and required.
 
Participate: 
Study to Test Measures to Improve HCBS
The NIDILRR-funded Rehabilitation Research and Training Center on Home and Community-Based Services Outcome Measures (RTC OM) (90RT5039) seeks guardians of people with disabilities and other adults who know an adult with a disability to test measures to improve home- and community-based services (HCBS) outcomes for people with disabilities. Participants must be at least 18 years old and know well someone who has a disability and receives services or supports for their disability. Participants will take part in a 60- to 90-minute interview over video and will receive a $20 gift card for their time. For more information or to participate in the study, contact Matt Roberts at robe0290@umn.edu or 612/624-1489.
 
Elsewhere in the Community: 
NIH Seeks Input on Diversity, Equity, Inclusion, and Accessibility
The National Institutes of Health (NIH) issued two opportunities for public input on aspects of diversity, equity, inclusion, and accessibility (DEIA). Request for Information (RFI): Inviting Comments and Suggestions on a Framework for the NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility invites comment on the proposed DEIA framework aimed to implement organizational practices to center and prioritize DEIA in the workforce, grow and sustain DEIA through structural and cultural change, and advance DEIA through research. Comments must be received by April 3rd. NIH also invites Comments and Suggestions on the Draft NIH Chief Officer for Scientific Workforce Diversity Strategic Plan for FYs 2022-2026, aimed to build, disseminate, and act on the evidence to advance scientific workforce diversity. Comments must be received by February 10th.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=929231&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c