News and Notes 494 January 12

In observance of Martin Luther King Jr. Day on January 17, designated as a national day of service, NARIC offers information on how people with disabilities can volunteer to improve their communities; NIDILRR Director Anjali Forber-Pratt was featured in article in the latest issue of New Mobility Magazine; This Just In... features a study examining how content authored by people with dementia can affect attitudes toward the condition; Research in Focus looks at the effects of the COVID-19 pandemic on the mental and physical health of Latinx families with children with intellectual and developmental disabilities (IDD); the Rehabilitation Research and Training Center (RRTC) on Health and Function of People with Psychiatric Disabilities releases second episode of the Participatory Action Research (PAR) podcast, PAR in Action: Peer Navigators for Health and Wellness of People with Psychiatric Disabilities; Video visual scene display (video VSD) developed by the Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC) is featured in article in Penn State News, Videos help students with autism spectrum disorder communicate with peers; the Rehabilitation Research and Training Center on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) hosts webinar, Broadband Internet Access: Implications for the Health of People with Disabilities; the Great Lakes ADA Regional Center hosts webinar, Accessible Technology on Smartphones and Tablets for Users with Hearing, Cognitive, and Mobility Disabilities; the Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) hosts webinar, Academic Coaching for College Students with Mental Health Conditions by Peer Students - Pilot Results; the Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction (RRTC on Bladder Dysfunction) seeks participants with neurogenic lower urinary tract dysfunction who use indwelling catheters to try a probiotic flush when experiencing urinary symptoms; the US Access Board reopens its public comment period for advisory guidelines on aircraft onboard wheelchairs.

Date sent: 
2022-01-12
NARIC news: 

Happy New Year and welcome to the first issue of News and Notes for 2022! As the year gets into full swing, people with and without disabilities may be adding "volunteer more" to their list of resolutions or plans for 2022. In fact, Martin Luther King Jr. Day, which is observed on the third Monday in January (1/17), is designated as a national day of service to encourage all Americans to volunteer to improve their communities. Research we've highlighted in our Research In Focus series showed that people with disabilities are interested in volunteering and have skills and talents that organizations can benefit from, but they may face barriers to finding opportunities. Organizations can make their volunteer experience more inclusive by planning ahead and working with community partners like Centers for Independent Living to engage potential volunteers. The ADA National Network Regional Centers can help organizations understand their responsibilities under the Americans with Disabilities Act (ADA) and address those barriers so everyone can pitch in.

This Just In: 
How content authored by people with dementia affects attitudes towards dementia. Proceedings of the ACM on Human-Computer Interaction, Volume 5(CSCW2), Pgs. 1-32. NARIC Accession Number: J87657.
New to the NARIC collection, this NIDILRR-funded study examined the effect of being exposed to dementia-related media, including content produced by people with dementia, on understanding of and attitudes about dementia in undergraduate college students. The study revealed changes over the period of two weeks in attitudes and understanding of the condition. Researchers observed that transcriptions of content produced by people with dementia significantly reduced negative attitudes about dementia, and discuss implications for supporting people with dementia as content producers in ways that best affect attitudes and understanding. Access the full abstract and ordering information in REHABDATA.
 
Research in Focus: 
The COVID-19 Pandemic Has Taken a Toll on Latinx Families with Children with IDD, but There Are Some Positives As Well
This week's Research In Focus looks at how the COVID-19 pandemic has affected the mental and physical health of Latinx caregivers of children with intellectual and developmental disabilities (IDD), and what resources they have tapped into in the community.
 
Resource Highlight: 
PAR Podcast
The NIDILRR-funded Rehabilitation Research and Training Center (RRTC) on Health and Function of People with Psychiatric Disabilities (90RTHF0004) released the second episode of the Participatory Action Research (PAR) Podcast, PAR in Action: Peer Navigators for Health and Wellness of People with Psychiatric Disabilities. This episode discusses the roles that people with lived experience of mental health conditions play in a unique study of peer health navigation services in a large community mental health program in Chicago. The podcast includes a transcript and resources to help African Americans with mental health conditions engage in research and as research leaders.
 
NIDILRR News and Events: 
Director Anjali Forber-Pratt Featured in New Mobility
NIDILRR Director Anjali Forber-Pratt, PhD, was featured in an article, The adventurer leading the government's disability research, in the latest issue of New Mobility Magazine. The article highlighted Dr. Forber-Pratt's early embrace of her identity as a person with a disability, her athletic and academic careers, and her path to becoming NIDILRR's Director. She discussed how her experience and passion are guiding her leadership of NIDILRR and her goal of leaving the world "a more accessible and inclusive place for all."
 
News items: 
AAC Technology Featured in Penn State News
Video visual scene display (video VSD), augmentative and alternative communication technology developed by the NIDILRR-funded Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (RERC on AAC) (90REGE0014), is featured in an article, Videos help students with autism spectrum disorder communicate with peers, in Penn State News. The article describes recent research in using video VSD to assist communication between adolescents with autism and their peers by providing relevant vocabulary, concrete discussion topics, and built-in prompts.
 
Grantee event: 
Webinar: Broadband Internet Access - Implications for the Health of People with Disabilities TOMORROW
The NIDILRR-funded Rehabilitation Research and Training Center on Promoting Healthy Aging for People with Long-Term Physical Disabilities (IDEAL RRTC) (90RTHF0001) will host a webinar, Broadband Internet Access: Implications for the Health of People with Disabilities, January 13th, 2-3 pm ET. Presenters will discuss broadband internet access as a social determinant of health, including new research findings and current policy implications related to broadband internet for the health of adults with disabilities. Registration is free and required.
 
Webinar: Accessible Technology on Smartphones and Tablets for Users with Hearing, Cognitive, and Mobility Disabilities
The NIDILRR-funded Great Lakes ADA Regional Center (90DPAD0012) will host a webinar, Accessible Technology on Smartphones and Tablets for Users with Hearing, Cognitive, and Mobility Disabilities, January 18th, 2-3:30 pm ET. Presenters will highlight mobile apps to improve independence for users with hearing, cognitive, and mobility disabilities. A question-and-answer period will follow the presentation and questions may be sent in advance. Registration is free and required. Continuing education credits are available upon request. A previous session on accessible smartphone and tablet technology for users that are blind or low vision is available in the archives.
 
Webinar: Academic Coaching for College Students with Mental Health Conditions by Peer Students - Pilot Results
The NIDILRR-funded Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (Transitions ACR) (90RTEM0005) will host a webinar, Academic Coaching for College Students with Mental Health Conditions by Peer Students - Pilot Results, January 18th, 2–3:30 pm ET. Presenters will discuss the Peer Academic Supports for Success (PASS) model and findings of the pilot randomized controlled trial. Registration is free and required.
 
Participate: 
Probiotic Bladder Flush Study
The NIDILRR-funded Rehabilitation Research and Training Center on Health and Function for People with Physical Disabilities Focused on Neurogenic Lower Urinary Tract Dysfunction (RRTC on Bladder Dysfunction) (90RTHF0003) seeks participants with neurogenic lower urinary tract dysfunction who use indwelling catheters and who experience urinary symptoms to try a probiotic flush when experiencing urinary symptoms. Participants must be diagnosed with a neurogenic bladder, use indwelling catheterization for bladder management, be at least 18 years of age, and have a history of 2 or more episodes of urinary symptoms in the past year. For more information or to volunteer, contact Margot Giannetti at Margot.Giannetti@medstar.net or 202/877-1071.
 
Elsewhere in the Community: 
Comment Period for Aircraft Onboard Wheelchairs Advisory Guidelines Extended
The US Access Board has reopened its public comment period for advisory guidelines on aircraft onboard wheelchairs. The Board seeks information on onboard wheelchair loads and caster wheels for use in finalizing its voluntary guidelines. In addition, the Department of Transportation reopened its comment period for information on performance standards for onboard wheelchairs. Comment periods for both advisories close January 17, 2022. Instructions for submitting comments are included in each announcement.