News and Notes 492 December 15

NARIC staff mourns the passing of Margaret Giannini, MD and Marsha Saxton, PhD, two members of the NIDILRR community who were instrumental in the independent living and disability rights movements; NIDILRR posts videos from the series Maternal Health and Disability Workshops: The Accessibility of Motherhood; This Just In... features a review covering the history and development of the concept of community inclusion for people with serious mental illnesses; the Northern New Jersey Traumatic Brain Injury System Center (NNJTBIS) posts videos from its annual speaker series Moving Forward: Personal Perspectives on Life After Brain Injury; the Mid-Atlantic ADA Regional Center announces the release of a video series, Law Enforcement and First Responder Interactions with People with Disabilities; the Center for Research, Training, and Dissemination of Family Support for People with Disabilities Across the Life Course hosts the 2nd Conference on Caregiving Research; the Southwest ADA Regional Center seeks participants age 18 or older with any type of disability for a survey to identify and understand barriers to video gaming for people with disabilities; the US Equal Employment Opportunity Commission (EEOC) posts guide, Veterans and the Americans with Disabilities Act: A Guide to Employers.

Date sent: 
2021-12-15
NARIC news: 

This week we learned of the passing of two formidable members of the NIDILRR community, both of whom were instrumental in the independent living and disability rights movements. Margaret Giannini, MD was the first director of NIDILRR, appointed in 1978. Dr. Giannini was an internationally recognized expert in the care of people with disabilities, particularly people with intellectual and developmental disabilities. She founded what would become the Westchester Institute for Human Development, a leader in the areas of disability and human development. Marsha Saxton, PhD, was Director of Research at the World Institute on Disability and a principal investigator for NIDILRR-funded projects on health and wellness. She was a major founding scholar of disability studies at the University of California, Berkeley, where she taught for 25 years. She often told her students "[t]he disability rights movement is one of the most successful movements for human rights in the world, although we still have a ways to go." Our thoughts go out to the families and colleagues of these remarkable, trail-blazing women.

This Just In: 
Community inclusion and social determinants: From opportunity to health. Psychiatric Services, Volume 72(7), Pgs. 836-839. NARIC Accession Number: J87355.
New to the NARIC collection, this NIDILRR-funded review covers the history and development of the concept of community inclusion and the health-related outcomes that are expected to result from community inclusion efforts for people with serious mental illnesses. Indicators of community inclusion include the presence of policies, programs, practices, and environments that provide people with disabilities maximum choice and control about what they do, how much they do it, and with whom they do it. Incorporating fundamentals and indicators of community inclusion into mental health systems offers a paradigm for addressing social determinants and improving health as part of the larger healthcare agenda. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
NNJTBIS Speaker Series Videos
The NIDILRR-funded Northern New Jersey Traumatic Brain Injury System Center (NNJTBIS) (90DPTB0003) has posted videos from its annual speaker series Moving Forward: Personal Perspectives on Life After Brain Injury, highlighting the experiences of individuals with TBI. The series featured individuals with personal and professional experience in TBI who discussed diverse topics including the recovery from TBI, COVID-19, art and art therapy, resilience, and more.
 
NIDILRR News and Events: 
Maternal Health and Disability: The Accessibility of Motherhood
NIDILRR has posted videos from the series Maternal Health and Disability Workshops: The Accessibility of Motherhood. The goal of this three-day interactive workshop of stakeholders was to identify priority areas of focus and create momentum for the research agenda needed to address inequities in pregnancy outcomes and related health care among women with disabilities, especially the inequities experienced by those from underserved and underrepresented populations. Each session focused on a stakeholder group: women with disabilities, health care providers, and researchers. The workshop aired in November.
 
News items: 
New Video Series Focuses on Safe Law Enforcement and First Responder Interactions
The NIDILRR-funded Mid-Atlantic ADA Regional Center (90DPAD0008) announced the release of a video series, Law Enforcement and First Responder Interactions with People with Disabilities. The public safety series provides information for people with disabilities, families, and caregivers about how people with disabilities can stay safe and get the accommodations they may need when interacting with first responders. Topics include speaking with the police in the community and during a traffic stop, what to know and do when calling 911, and tools such as information cards and comfort kits to help navigate anxious situations. The videos in this series are free and available to watch at any time. The series was produced in collaboration with The Arc of Northern Virginia.
 
Grantee event: 
Conference on Caregiving Research
The NIDILRR-funded Center for Research, Training, and Dissemination of Family Support for People with Disabilities Across the Life Course (90RTGE0002) will host the 2nd Conference on Caregiving Research, March 3rd - 4th, 2022, in Pittsburgh, PA. The conference will bring together a multidisciplinary group of national leaders in caregiving research, policy, and practice across the lifespan. Sessions will showcase innovations in research and will build bridges across disciplines and conditions to address the urgent community, clinical, and policy needs of family caregivers. Registration is required and there are related fees. For more information, contact the Center at caregiving@pitt.edu.
 
Participate: 
Videogame Survey
The NIDILRR-funded Southwest ADA Regional Center (90DPAD0010) is conducting a survey to identify and understand barriers to video gaming for people with disabilities. The survey is open to adults age 18 or older with any type of disability or limitation and any level of video game interest or experience. The survey is anonymous and the information will be used to create and develop products and tools to make the process of gaming better for individuals with disabilities. The survey closes February 28th. For more information, contact george.powers2@memorialhermann.org.
 
Elsewhere in the Community: 
EEOC Guidance: Veterans and the ADA
The US Equal Employment Opportunity Commission (EEOC) posted a guide, Veterans and the Americans with Disabilities Act: A Guide for Employers. This guide describes how the Americans with Disabilities Act (ADA) applies to recruiting, hiring, and accommodating veterans with disabilities, and briefly explains how protections for veterans with disabilities differ under the Uniformed Services Employment and Reemployment Rights Act (USERRA) and the ADA. The guide also provides information and resources on laws and regulations that employers may find helpful in prioritizing the recruiting and hiring of veterans with disabilities.