News and Notes 474 August 11

birgitta.chaiken - Wed, 08/11/2021 - 13:26

In observance of the 30th anniversary of the World Wide Web, NARIC presents NIDILRR-funded efforts to build an inclusive Internet in its Spotlight blog; NIDILRR hosts webinar, Using the National Survey on Health and Disability (NSHD) to Explore the Experience of Social Isolation and Loneliness Among Rural and Urban People with Disabilities; This Just In... presents a study on the experiences of breastfeeding among women with disabilities; the Rehabilitation Engineering Research Center (RERC) on Technologies to Support Aging-in-Place for People with Long-Term Disabilities (TechSAge RERC II) publishes new tool in its TechSAge Tools series, Guidelines for delivering telewellness programs to older adults with disabilities; research on supported decision making (SDM) is focus of special issue of the Journal of Disability Policy Studies, edited by investigator for the project Understanding and Increasing Supported Decision-Making's Positive Impact on Community Living and Participation Outcomes; researchers from the Langston University Rehabilitation Research and Training Center on Research and Capacity Building for Minority Entities (LU-RRTC) receive two awards from the National Association of Multicultural Rehabilitation Concerns (NAMRC); the Great Lakes ADA Regional Center and the US Access Board host webinar, Accessible Autonomous Vehicles; the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) hosts webcast, Recent Campbell Collaboration Disability Research Synthesis Results, where a panel of review authors from the Campbell Disability Coordinating Group shares their experiences with the production process; the Community Life Engagement (CLE) Guidepost Scale Development and Testing project seeks participants from organizations that provide services to individuals with intellectual and developmental disabilities for the Guideposts Fidelity Scale Pilot Survey; the Centers for Medicare and Medicaid Services (CMS) to host virtual summit, Supporting Youth with Disabilities Transitioning Out of Foster Care.

Date sent: 
2021-08-011
NARIC news: 

Did you know the World Wide Web just turned 30? On August 6th, 1991, Tim Berners-Lee launched the first website at http://info.cern.ch (and it's still up there today). Not long after that, researchers and developers started looking at the web as a tool for sharing information with people with disabilities and providers. They also sounded the alert about accessibility online. In fact, Sir Berners-Lee served as Principal Investigator for the NIDILRR-funded Web Accessibility Initiative (WAI) from 2000 to 2005. The WAI continues its work today, ensuring the Web and all its information, media, games, and more are inclusive and available to everyone who chooses to access them. Visit our Spotlight blog to learn more about NIDILRR-funded efforts to build an inclusive Internet, and the latest research and development in apps, telerehabilitation, remote work, and more.

This Just In: 
Experiences of breastfeeding among disabled women. Women's Health Issues,Volume 13(1), Pgs. 82-89. NARIC Accession Number: J86759.
New to the NARIC collection, this NIDILRR-funded study used semi-structured interviews to evaluate the experiences of breastfeeding among 24 women with disabilities through descriptive content analysis. Participants were women with self-identified intellectual, developmental, physical, sensory, and psychiatric disabilities. Some women had multiple disabilities. Qualitative analysis revealed four themes relating to breastfeeding among women with disabilities: (1) communication difficulties with lactation consultants, (2) milk supply and latch problems, (3) intense pressure to breastfeed, and (4) positive interactions with healthcare providers. This study provides new information about the breastfeeding experiences of women with disabilities. Findings suggest that women with disabilities should be better supported in their breastfeeding decisions and require greater access to disability-affirmative and informative clinical resources and accessible communication. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
Guidelines for Delivering Telewellness Programs to Older Adults with Disabilities
The NIDILRR-funded Rehabilitation Research and Training Center (RERC) on Technologies to Support Aging-In-Place for People with Long-Term Disabilities (TechSAge RERC II) (90REGE0006) published a new tool, Guidelines for delivering telewellness programs to older adults with disabilities (PDF), the latest edition in their TechSAge Tools series. This tool provides guidelines for designing wellness classes delivered via video conferencing, or telewellness classes, for older adults with disabilities. The tool includes key considerations in the design and execution of telewellness programs, (e.g., software selection, safety, class organization and logistics, social time structure, and technical support), which are informed by the center's experience developing and conducting a Tele Tai Chi program as part of a clinical trial.
 
NIDILRR News and Events: 
Webinar: Using the NSHD to Explore the Experience of Social Isolation and Loneliness Among Rural and Urban People with Disabilities
NIDILRR will host a webinar, Using the National Survey on Health and Disability (NSHD) to Explore the Experience of Social Isolation and Loneliness Among Rural and Urban People with Disabilities, September 9th, 2-3 pm ET. Catherine Ipsen, PhD, and Gilbert Gimm, PhD, researchers from NIDILRR-funded projects, will discuss how barriers to social participation result in social isolation and loneliness for rural and urban people with disabilities, using data from the National Survey on Health and Disability. This is the third in a four-part series on research related to social isolation and loneliness for people with disabilities hosted by NIDILRR. Registration is free and required by September 3rd, and space is limited.
 
News items: 
Supported Decision-Making in Focus in Journal of Disability Policy Studies
Research on supported decision-making (SDM) is the focus of a special issue of the Journal of Disability Policy Studies, edited by Peter Blanck, PhD, JD, principal investigator for the recently-completed NIDILRR-funded project Understanding and Increasing Supported Decision-Making's Positive Impact on Community Living and Participation Outcomes (90DP0076, 90RTEM0006, 90DP0090). SDM is an emerging paradigm in which people use friends, family members, and professionals to help them understand and address the situations and choices they encounter in everyday life. This special issue examines emerging issues involving SDM in areas of research, law, and policy, and offers a lived experience perspective of SDM. Dr. Blanck introduced the issue with the research article Supported decision-making: Emerging paradigm in research, law, and policy and co-authored an article on the landmark decision of Ross and Ross v Hatch, where SDM played a pivotal role in the independence of one young woman with Down syndrome. Abstracts are available free of charge.
 
NIDILRR Researchers Receive NAMRC Awards
Researchers from the NIDILRR-funded Langston University Rehabilitation Research and Training Center on Research and Capacity Building for Minority Entities (LU-RRTC) (90RTST0001) received two awards (PDF) from the National Association of Multicultural Rehabilitation Concerns (NAMRC). Principal Investigator Corey L. Moore, RhD, received the Vernon Hawkins Pioneer and Leadership Award, in recognition of his exemplary leadership, advocacy, and pioneering efforts in multicultural issues which have made an historic impact on the field of rehabilitation. The LU-RRTC also received the Felicia Hunter Organization Award in recognition of its outstanding contributions that have had a major impact on the research agenda on multicultural issues, the development of researchers, and on enhancing the capacity of minority-serving institutions to produce research, develop practitioners, and acquire grants relevant to multicultural issues and practice in rehabilitation.
 
Grantee event: 
Webinar: Accessible Autonomous Vehicles
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0091), in conjunction with the US Access Board, will host a webinar, Accessible Autonomous Vehicles, August 17th, 2-3:30 pm ET. Presenters will discuss the results of a series of virtual meetings on the inclusive design of autonomous vehicles (AVs) for people with disabilities. Presenters will look at the next steps in ensuring AVs are accessible to and usable by people with disabilities. Participants may submit questions in advance. Registration is free and required by August 16th.
 
Webcast: Recent Campbell Collaboration Disability Research Synthesis Results
The NIDILRR-funded Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) (90DPKT0001) will host a webcast, Recent Campbell Collaboration Disability Research Synthesis Results, August 17th, 3-4:23 pm ET. A panel of review authors from the Campbell Disability Coordinating Group share their experiences with the production process. The panelists showcase a variety of synthesis products published in 2020, including traditional systematic reviews, mixed-methods reviews, and evidence and gap maps. This session was recorded as part of WWGS2020. Registration is free and required.
 
Participate: 
Community Life Engagement Guideposts Fidelity Scale Pilot
The NIDILRR-funded project Community Life Engagement (CLE) Guidepost Scale Development and Testing (90IFRE0025) seeks organizations that provide services to individuals with intellectual and developmental disabilities (IDD) to participate in the Guideposts Fidelity Scale pilot survey. To be eligible, organizations must provide non-work day services to people with IDD and must have at least five staff members who are familiar with their non-work day services who will complete the survey. Participating organizations will receive free and early access to the project's online, self-paced CLE training modules for direct support providers. For more information, contact Ngai Kwan at ngai.kwan@umb.edu.
 
Elsewhere in the Community: 
Virtual Summit: Supporting Youth with Disabilities Transitioning Out of Foster Care
The Centers for Medicare and Medicaid Services (CMS) will host a virtual summit, Supporting Youth with Disabilities Transitioning Out of Foster Care, August 18th and 19th. Presenters from state Medicaid agencies and their partners will share promising practices and collaborative solutions for addressing challenges in supporting youth with disabilities transitioning out of foster care. Topics covered will include continuity of services and care, continuity of Medicaid coverage, socio-cultural supports, and employment. Registration is free and required for individual sessions.
 
Archive link: 
http://www.icontact-archive.com/archive?c=654309&f=1190&s=26993&m=924526&t=635cba0a9267f719dd304fcd1ae764b160681b0bc4432192fe4b80b0dffecb7c