News and Notes 465 June 9

In observance of Family Health and Fitness Day on June 12th, NARIC staff examines research and resources to address challenges in families getting more physical activities together, such as finding accessible facilities and accessing transportation to parks or recreation centers; This Just In... features a study determining long-term effects of hospital-acquired pneumonia (HAP) on disability following traumatic brain injury (TBI); the Americans with Disabilities Act (ADA) Network Knowledge Translation Center and the network of regional centers post videos from the ADA State of the Science Conference; principal investigator for the University of Washington Traumatic Brain Injury Model System Center was interviewed for the latest episode of the Brain Injury Today podcast, Your COVID Vaccine Questions Answered; the Great Lakes ADA Regional Center hosts webinar, Health Care Access for Patients and Companions that are Blind or Experiencing Vision Loss; the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) hosts webcast, Engaging Stakeholders for Research Impact; The Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center hosts webinar, Going Virtual: How 3 Young Adult Focused Projects Pivoted to Virtual Platforms in 2020; the Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Health, and Employment is seeking participants for a study on rural personal assistance services (PAS), with participation being open to adult PAS users 18 or older and living in rural communities; the Department of Health and Human Services (HHS) launches the Disability Information and Access Line (DIAL) to help people with disabilities find COVID-19 vaccination locations in their communities, make appointments, and connect to services such as transportation.

Date sent: 
2021-06-09
NARIC news: 

The second Saturday in June is Family Health and Fitness Day, organized by the National Recreation and Park Association, focusing on the importance of parks and recreation in keeping communities healthy. Research has shown that some people with disabilities who go out into the community to exercise, including in local parks, are more likely to be physically active than those who just go out for errands or work. Families of all types and abilities may be looking for ways to get more physical activity together, but may face challenges in finding accessible facilities, accessing reliable transportation to parks or centers, and addressing negative attitudes or misinformation among facilities staff. We examined some of the research and resources to address these challenges and find solutions to getting active in the community in our Spotlight blog.

This Just In: 
Effects of hospital-acquired pneumonia on long-term recovery and hospital resource utilization following moderate to severe traumatic brain injury. Journal of Trauma and Acute Care Surgery, Volume 88(4), Pgs. 491-500. NARIC Accession Number J86108.
New to the NARIC collection, this NIDILRR-funded study determined the long-term effects of hospital-acquired pneumonia (HAP) on disability after moderate-to-severe traumatic brain injury (TBI) and compared hospital resource utilization metrics between moderate-to-severe TBI survivors with and without HAP. Individuals with HAP spent 10.1 days longer in acute care and 4.8 days longer in inpatient rehabilitation and had less efficient functional improvement during inpatient rehabilitation. They also had higher odds for poor outcomes over the first five years post-TBI. The findings suggest that individuals with HAP during acute hospitalization have worse long-term prognosis and greater hospital resource utilization than those without HAP. Access the full abstract and ordering information in REHABDATA.
 
Resource Highlight: 
ADA State of the Science Conference Videos
The NIDILRR-funded Americans with Disabilities Act (ADA) Network Knowledge Translation Center (90DP0086) and the network of regional centers have posted videos from the ADA State of the Science Conference, recorded in April. Presentation details, presenter bios, slides, transcripts, and videos are available from the conference website and as a playlist on the ADA National Network YouTube channel.
 
News items: 
NIDILRR Researcher Interviewed for Brain Injury Today Podcast
Jeanne Hoffman, PhD, principal investigator for the NIDILRR-funded University of Washington Traumatic Brain Injury Model System Center (90DPTB0008), was interviewed for Your COVID Vaccine Questions Answered, the latest episode of the Brain Injury Today podcast. Dr. Hoffman answered questions from the brain injury community about the COVID-19 vaccine, including the benefits of vaccination, the importance of public health measures, choosing which vaccine to get, potential side effects, and addressing worries sparked by myths and misinformation circulating online. Dr. Hoffman also discussed rehabilitation for people facing the long term effects of COVID.
 
Grantee event: 
Webinar: Health Care Access for Patients and Companions That are Blind or Experiencing Vision Loss
The NIDILRR-funded Great Lakes ADA Regional Center (90DP0091) will host a webinar, Health Care Access for Patients and Companions that are Blind or Experiencing Vision Loss, June 15th, 2-3:30 pm ET. Presenters will explore the ways in which critical health information can be provided in accessible formats, as required under the Americans with Disabilities Act (ADA). Presenters will discuss their personal experiences as individuals who are blind and the best ways healthcare staff can offer and provide assistance to patients and companions. Registration is free and required. Continuing education credits are available upon request.
 
Webcast: Engaging Stakeholders for Research Impact
The NIDILRR-funded Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) (90DPKT0001) will host a webcast, Engaging Stakeholders for Research Impact, June 15th, 3-4 pm ET. Presenters will discuss the importance of stakeholder engagement in disability-focused research and address why research projects should focus on engagement. Stakeholder engagement is a fundamental focus of knowledge translation as it builds active involvement of end-users into the research process. Registration is free and required. This webcast complements KTDRR’s recently released information brief, Engaging Stakeholders for Research Impact (PDF).
 
Webinar: Going Virtual - How 3 Young Adult Focused Projects Pivoted to Virtual Platforms in 2020
The NIDILRR-funded The Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center (90RTEM0005) will host a webinar, Going Virtual: How 3 Young Adult Focused Projects Pivoted to Virtual Platforms in 2020, June 24th, 1-2:30 pm ET. Presenters will discuss how three different projects that work with young adults with serious mental health conditions embraced the new virtual world and how these changes impacted or improved project performance. Presenters will also discuss what facets of these projects will continue in virtual format as the world emerges from the COVID-19 pandemic. Registration is free and required.
 
Participate: 
PAS User Interviews
The NIDILRR-funded Rehabilitation Research and Training Center for Place-Based Solutions for Rural Community Participation, Health, and Employment (90RTCP0002) is conducting interviews for a study on rural personal assistance services (PAS). Participation is open to people with disabilities 18 or older who live in rural communities anywhere in the US and who use PAS. Interviews are conducted by phone or video chat and last about one hour. Eligible participants who complete a one-on-one interview will receive $30 for their time.
 
Elsewhere in the Community: 
HHS Launched Disability Information and Access Hotline
The Department of Health and Human Services (HHS) launched the Disability Information and Access Line (DIAL) to help people with disabilities find COVID-19 vaccination locations in their communities, make appointments at vaccine providers, and connect to local services - such as transportation services - to overcome barriers to vaccination. The hotline can also provide information and resources to answer questions and address concerns about the vaccines. Callers can also receive information and services that promote independent living and address fundamental needs, such as food, housing, and transportation. DIAL was created through a partnership between the Administration for Community Living (ACL) and the Centers for Disease Control and Prevention (CDC). DIAL is available toll-free at 888/677-1199 from Monday to Friday, 9am to 8pm ET, or by email at DIAL@n4a.org.