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Librarian's Picks: Stroke.

'Quick picks' from librarians at the National Rehabilitation Information Center.

According to the National Institutes of Health "Stroke is a leading cause of serious, long-term adult disability. Four million Americans are living with the effects of stroke. The length of time to recover from a stroke depends on its severity. Fifty to 70 percent of stroke survivors regain functional independence, but 15 to 30 percent are permanently disabled." The organizations and agencies listed in this guide can help you and your family find the resources, rehabilitation, and support you need.

For more resources, visit the Ready Reference page for Resources on Specific Disabilities or search the Knowledgebase.  You may also download the brochure in PDF format at the bottom of this page.

INFORMATION SOURCES ON STROKE

Rehabilitation Research and Training Center on Technology Promoting Integration for Stroke Survivors: Overcoming Social Barriers
Rehabilitation Institute of Chicago
345 East Superior Street
Chicago, IL 60611
Phone: 312/238-6197 (V)
Fax: 312/238-6998
www.rrtc-stroke.org
Research project on stroke rehabilitation strategies and tactics. Disseminates information on new advancements in stroke care and research to stroke survivors, their families, and rehabilitation professionals. This site includes an "Ask the Stroke Doc" section (www.rrtc-stroke.org/ask/index.php) with answers to some of the most common questions of stroke patients and their families.

ABLEDATA
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
Phone: 800/227-0216 (V)
TTY: 301/608-8912
Fax: 301/608-8958
Email: abledata@macroint.com
www.abledata.com
A database of assistive and rehabilitative devices, products and equipment. Searches include distributor information and product descriptions. Factsheets and catalog information is also available. ABLEDATA is both a service and a database and can be searched at the web site.

National Stroke Association
9707 East Easter Lane
Englewood, CO 80112
Phone: 800/787-6537 (V)
Fax: 303/649-1328
www.stroke.org
Serves as a national education, information, and resource service for stroke survivors, their families, and professionals. Provides listings of stroke rehabilitation facilities across the country. Web site includes a newsletter, facts and figures, and other Internet resources.

The American Stroke Association, a division of The American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Phone: 888/478-7653 (V)
www.strokeassociation.org
Maintains a listing of over 1000 stroke support groups across the country for referral to stroke survivors, family members, and interested professionals. Web site contains heart and stroke guides, up-to-date research news, and program information.

National Institute of Neurological Disorders and Stroke
National Institutes of Health
Neurological Institute P.O. Box 5801
Bethesda, MD 20824
Phone: 800/352-9424 (V)
TTY: 301/468-5981
www.ninds.nih.gov
Conducts research in the causes and treatment of neurological disorders and stroke. Maintains over 100 stroke related publications. Scientific and technical documents and research reports also available. Web site includes program information, up-to-date research developments, health information, and a publications guide.

National Aphasia Association
7 Dey Street, Suite 600
New York, NY 10010
Phone: 800/922-4622 (V)
Email: naa@aphasia.org
www.aphasia.org
Promotes public awareness by providing information and publications to individuals with aphasia, their family members, and professionals. Web site features a pen pal service, an e-mail address exchange, newsletter, and support group information.

The Family Caregiver Alliance
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
Phone: 415/434-3388 (V); 800/445-8106
Fax: 415/434-3508
Email: info@caregiver.org
www.caregiver.org
Assists families of adults with chronic or progressive brain disorders, including stroke. Distributes information on caregiving and care of people with cognitive impairments. Web site contains fact sheets, articles, online support, and state-level resource links.

The National Easter Seal Society
230 West Monroe Street, Suite 1800
Chicago, IL 60606-4802
Phone: 800/221-6827, 312/726-6200
TTY: 312/726-4258
Fax: 312/726-1494
www.easter-seals.org
Provides multiple services including physical, occupational, and speech therapy, adult day care, and respite care. There are over 400 affiliates across the country; however, all services are not available at all locations. Web site includes program information listed by city and state.

American Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD, 20852
Phone: 800/638-8255
www.asha.org
The mission of the American Speech-Language-Hearing Association is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. ASHA can assist the public in locating a therapy professional.

American Physical Therapy Association (APTA)
1111 North Fairfax Street
Alexandria, VA 22314-1488
Phone: 703/684-APTA (2782); 800/999-APTA (2782)
TDD: 703/683-6748
Fax: 703/684-7343
www.apta.org
The American Physical Therapy Association (APTA) is a national professional organization representing more than 63,000 members. Its goal is to foster advancements in physical therapy practice, research, and education. APTA can assist the public in locating a physical therapist in their area.

Dana Foundation/Dana Alliance for Brain Initiatives
745 Fifth Avenue, Suite 900
New York, NY 10151
Phone: 212/223-4040 Email:danainfo@dana.org
www.dana.org
The Dana Foundation is a private philanthropic foundation with principal interests in science, health, and education. The Dana Alliance, a nonprofit organization of more than 200 neuroscientists, was formed to help provide information about the personal and public benefits of brain research.

For more online information on stroke:

Attach a File: 
stroke.pdf


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by Dr. Radut.