Librarian's Picks: Spinal Cord Injury.
'Quick picks' from librarians at the National Rehabilitation Information Center.
Spinal cord injury (SCI) is classified by where along the spinal column the injury occurs from top or cervical (c), through middle or thoracic (t) and lumbar (l), to bottom or sacral (s). Injury along any point in the spine can cause disability, from loss of feeling or muscle control, to paralysis. With the help of rehabilitation and assistive technology, it is possible to live a full life after injury.
For more resources, visit the Ready Reference page for Resources on Specific Disabilities or search the Knowledgebase. You may also download the brochure in PDF format at the bottom of this page. Disponible en español.
INFORMATION SOURCES ON SPINAL CORD INJURY (SCI)
Model Systems Knowledge Translation Center
University of Washington
Box 357920
Seattle, WA 98195-7920
Phone: 206-685-4181
TTY: 206-616-1396
Email: msktc@u.washington.edu
msktc.washington.edu
The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs and develops systems for sharing information for the NIDRR model systems programs in traumatic brain injury, spinal cord injury and burn injury. The model systems research the spectrum of care from point of injury, through rehabilitation, to integration back into the community. This center collects, maintains, and disseminates consumer and professional education materials produced by the MSCIS Centers and Collaborative Research projects in SCI. Website includes presentation, publications, educational materials, newsletters, and links to individual projects across the country.
To find the Model Spinal Cord Injury System nearest you, check the current listings in the Program Directory.
Spinal Cord Injury Research @ Craig Hospital
Craig Hospital
3425 South Clarkson Street
Englewood, CO 80110
Phone: 303/789-8308 (V)
www.craig-hospital.org
Craig offers information to assist SCI survivors, caregivers and researchers in the areas of health maintenance, lifestyle choices and improving quality of life. Web site features the Wellness and Risk Assessment Profile, which can be completed online.
Spinal Cord Injury Information Network
University of Alabama/Birmingham
Department of Physical Medicine and Rehabilitation
Spain Rehabilitation Center
619 19th Street South - SRC529 Birmingham, AL 35249-7330
Phone: 205/934-3283
TTY: 205/934-4691
Fax: 205/975-4642
Email: sciweb@uab.edu
www.spinalcord.uab.edu
Center disseminates information based on research activities surrounding the prevention and treatment of secondary complications of SCI. Topics include urology, respiratory health, and treatments for pain and depression. Web site contains an extensive variety of reports and fact sheets.
ABLEDATA
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
Phone: 800/227-0216
TTY: 301/608-8912
Fax: 301/608-8958
Email: abledata@macroint.com
www.abledata.com
Provides computerized searches for assistive devices, products and equipment. Searches include distributor information and product descriptions. Fact sheets and information on catalogs are also available. The database can be searched from the ABLEDATA web site.
National Spinal Cord Injury Association
6701 Democracy Boulevard, Suite 300-9
Bethesda, MD 20817
Phone: 800/962-9629 (V); 301/214-4006 (V)
Fax: 301/990-0445
Email: info@spinalcord.org
www.spinalcord.org
Serves as a comprehensive information source for anyone effected by spinal cord injury. Referrals and consultations are available through the national office or one of the many state chapters. Web site includes fact sheets, rehabilitation centers by state and state chapter information.
NSCIA features a fact sheet on choosing a rehab facility available at www.spinalcord.org/html/factsheets/rehab.php.
Reeve Paralysis Resource Center
Short Hills Plaza
636 Morris Turnpike, Suite #3A
Short Hills, NJ 07078
Phone: 800/539-7309
www.paralysis.org
The Reeve Paralysis Resource Center offers information on spinal cord injury, paralysis, and mobility related issues. Information Specialists are available to answer questions in English and Spanish. A national clearinghouse library is available through interlibrary loan. The Center publishes a comprehensive Paralysis Resource Guide, available in English and Spanish, available free of charge. Streaming videos are also available on their website.
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: 800/352-9424 (V)
TTY: 301/468-5981
www.ninds.nih.gov
Provides scientific documents, research reports and publications. Web site includes up-to-date research findings, health information, and a publications guide.
National Center for Medical Rehabilitation Research (NCMRR)
National Institute of Child Health and Human Development
Executive Building, Room 2A03
6100 Executive Boulevard, MSC 7510
Bethesda, MD 20892-7510
Phone: 301/402-2242 (V)
www.nichd.nih.gov/about/ncmrr/ncmrr.htm
Funds and supports research projects and fosters the development of scientific knowledge needed to enhance the quality of life of persons with disabilities. Web site includes mission statement and information on funding activities.
The Miami Project to Cure Paralysis
University of Miami School of Medicine
P.O.Box 016960 (R-48)
Miami, FL 33101-6960
Phone: 800/782-6387 (V)
Fax: 305/243-6017
www.miamiproject.miami.edu
A science and clinical research effort dedicated to finding new treatments and ultimately, a cure for paralysis. Project offers research and rehabilitation information packets. Web site includes project overview, newsletter and latest research findings.
Paralyzed Veterans of America (PVA)
801 18th Street, NW
Washington, DC 20006-3517
Phone: 800/424-8200 (V); 800/795-4327 (TTY) Email: info@pva.org
www.pva.org
Advocacy and information association with brochures covering such topics as accessibility, legislation, assistive technology, and sports. Web site includes SCI related news, research and treatment guides, chapter information and Internet links.
For more online information on SCI:
- Case Management Resource Guide
Search for rehab facilities and numerous other healthcare providers. www.cmrg.com - New Mobility Magazine
Lastest SCI news, jobline, bookstore, chat rooms, other resources. www.newmobility.com - Spinal Cord Injury Update
Info on medical care, rehabilitation, living with SCI. depts.washington.edu/rehab/sci/ - RehabTrials database
Trials accepting candidates. www.rehabtrials.org - NRH Field Guide to Choosing a High Quality Medical Rehabilitation Program
www.nrhrehab.org/documents/research/choosing.pdf



