Wellness with SCI Program Home Survey Instrument

Author(s): 
Zemper, Eric PhD
Project title: 
University of Michigan Model Spinal Cord Injury Care System
Project Number: 
H133N000009
Tool type: 
Survey
Tool class: 
Nonengineering tool
Disability targeted: 
Spinal cord injury
Study target: 
Participants in the Wellness Intervention
Study purpose or goal: 
To collect basic demographic information and aspects of health and health practices
Who administers this tool?: 
Participants or dictated to their assistants
Ease of use: 
Difficult
Time to complete: 
1 - 1.5 hours
Equipment required: 
none
Are any approvals required?: 
IRB
How is it administered?: 
The mailed survey is applied pre-intervention, immediately post intervention, at 4 months, at 1 year, and at 2 years. It is filled out by the participant or through their assistant. It can also be completed over the phone.
What is the scope or what areas does it cover?: 
Because most of the series of instruments were pulled from the literature and used in total or with little modification, this instrument would be generalizable to other groups of people with SCI. Several were designed specific to SCI, some were applicable to the whole community
Development background: 
Development of this instrument included literature and database review of similar instruments. Several instruments were utilized including Health Promoting Lifestyle 2 (the whole instrument), the Self Rated Behavior Scale, the Secondary Conditions Scale from the University of Montana which was changed to 3 months from 1 yr and with wording changes to fit specific needs.
Development methodology: 
Specific questions were also taken from the Health Risk Appraisal from University of Michigan
Outside consultation: 
Consultations were made with the original developers
Consumer input: 
The survey was reviewed by people with SCI, through local independent living centers and councils, to gauge reaction and completion time
Data analysis: 
Is in process
Limitations: 
There may be differences based on level of injury
Findings: 
At the time of the interview, researchers were collecting data for the 2-year follow-up. Initial data from pre- and post-intervention data had been analyzed and was published. T-test and regression analyses were performed on the data. Researchers found that the Wellness Project as designed and given as intervention resulted in some positive changes in health practices and health knowledge, self-efficacy, and positive changes in reported health practices
Interpretations: 
For the sociological/psychological measures: there were positive changes for the intervention group and no changes for control group. Physiological changes (Blood, BMI, etc,) did not change from pre- to post-intervention; four months is too soon to tell. Two-year follow up is necessary. Researchers did note a drop in number of secondary conditions immediately post-intervention.
Impact of these findings on the field: 
The data can be used to improve and test the efficacy of wellness intervention programs
Peer review status: 
The survey and the resulting data have been published in the Archives of Physical Medicine and Rehabilitation (Dec 2003).
Who uses the collected data?: 
Researchers; other universities, medical schools, and ILCs that adopt the intervention
Tool contact: 
Claire Z. Kalpakjian, PhD, Project Manager
Email: 
model.sci@umich.edu
Phone: 
734/763-0971