News and Notes 236 October 19

NARIC highlights research and resources for young people with Down syndrome in observance of National Down Syndrome Awareness Month (#DSAM); NIDILRR continues to host listening sessions to help inform future funding priorities; Research in Focus examines how people with serious mental illness are using social media to connect with their community; RRTC on Community Living for People with Intellectual and Developmental Disabilities (RTC/CL) publishes Person-Centered Positive Supports and People with Intellectual and Developmental Disabilities (IDD), the latest issue in the Impact series; RERC on Technologies to Support Successful Aging with Disability (TechSAge) featured in There's an app for that: Using technology to improve geriatric care in the Emory Daily Pulse blog; Siblings Rule, video series created by NIDILRR Switzer Fellow, featured by the Sibling Leadership Network in honor of National Disability Employment Awareness Month (NDEAM); Pacific ADA Regional Center hosts webinar, National Fire Protection Association's (NFPA) Emergency Evacuation Planning Guide for People with Disabilities; Interagency Committee on Disability Research (ICDR) seeks comments on the draft Government Wide Strategic Plan for FY 2017-2020.

Date sent: 
2016-10-19
NARIC news: 

Among the October celebrations, we would like to highlight National Down Syndrome Awareness Month (#DSAM), sponsored by the National Down Syndrome Society. With advances in healthcare, education, and technology, people with Down syndrome are living longer, fuller lives. Young people with Down syndrome and other intellectual and developmental disabilities can look forward to planning for college, working in fulfilling jobs, and living in the community of their choosing. To celebrate #DSAM, we highlighted research and resources for these young people from the NIDILRR community and elsewhere in our Spotlight blog.

Research In Focus:
Can Social Media Help People with Serious Mental Illness Feel More Connected to Their Community?
This week's Research In Focus examines how people with serious mental illness are using social media like Twitter and Facebook to connect with and be active in their community.

Resource Highlight: 

Impact: Person-Centered Positive Supports and People with IDD
The NIDILRR-funded Research and Training Center on Community Living for People with Intellectual and Developmental Disabilities (RTC/CL) (90RT5019) has published Person-Centered Positive Supports and People with Intellectual and Developmental Disabilities (IDD), the latest issue in the Impact series. This issue features articles from around the country, describing how person-centered positive supports use evidence-based practices in the service of the needs, values, and goals of the individuals receiving supports. The issue profiles exemplary strategies for delivery of services; educates about the guiding principles and choices that must be examined in policy and practice; and tells personal stories of the difference that person-centered positive supports make for people with IDD.

NIDILRR News and Events: 

Next Strategic Planning Listening Session Oct 28th
NIDILRR continues to host listening sessions across the country to help inform future funding priorities and strategic direction. The next live session will be held in San Francisco, CA, October 28th, 10am-1pm PT. The public may attend in person or by phone and registration is required. Comments may also be submitted by email to NIDILRRFuture@acl.hhs.gov. More information about this and future sessions is available online.

News items: 

Aging Tech Research in the Spotlight
Research from the NIDILRR-funded Rehabilitation Engineering Research Center on Technologies to Support Successful Aging with Disability (TechSAge) (90RE5016) was featured in There's an app for that: Using technology to improve geriatric care in the Emory Daily Pulse blog. The article highlights TechSAge's development of an app to measure a person's gait speed in a clinical setting. This information can be used by clinicians and therapists to predict risk of functional decline and potential for falls in frail elders aging with disabilities.

Sibling Research Highlighted for NDEAM
Siblings Rule, a series of videos created by NIDILRR Switzer Fellow John C. Kramer, PhD (H133F110018), is featured by the Sibling Leadership Network in honor of National Disability Employment Awareness Month (NDEAM). The video series is based on findings from Dr. Kramer's study of sibling connections to employment for people with intellectual and developmental disabilities (IDD). Each short video features a sibling of a person with an IDD talking about the important role that employment has played in the life of their brother or sister.

Grantee event: 

Webinar: NFPA's Emergency Evacuation Planning for People with Disabilities
The NIDILRR-funded Pacific ADA Regional Center (90DP0021) will host a webinar, National Fire Protection Association's (NFPA) Emergency Evacuation Planning for People with Disabilities, October 27th, 2:30-4pm ET. Presenters will review NFPA's updated Emergency Evacuation Planning Guide for People with Disabilities which provides assistance to people with disabilities, their employers, building owners and managers, and others as they develop emergency evacuation plans that integrate the needs of people with disabilities. Registration is free and required.

Elsewhere in the Community: 

ICDR Seeks Comments on Draft Government-Wide Strategic Plan
The Interagency Committee on Disability Research (ICDR), of which NIDILRR is a member, is seeking comments on the draft Government-Wide Strategic Plan for FY 2017-2020 and the strategic goals and objectives the ICDR will pursue over the next three years. The current draft plan is the culmination of a year-long effort to gain consensus on its guiding principles for success and methodologically produce a document that capitalizes on potential interagency synergies and reflects the priorities of stakeholders. Comments may be submitted by mail, fax, or email by October 26th.