News and Notes 229 August 31

NARIC has created a virtual bookshelf of material on spinal cord injuries in observance of National Spinal Cord Injury (SCI) Awareness Month; Research in Focus looks at technology developers gathering feedback from users with communication disorders; National Spinal Cord Injury Statistical Center (NSCISC) publishes 2016 edition of Spinal Cord Injury (SCI) Facts and Figures at a Glance; HealthMatters program developed by RRTC on Developmental Disabilities and Health to be implemented at over 400 Project SEARCH/United Healthcare sites across the US; Life Impact Burn Recovery Evaluation (LIBRE) study receives recognition at the 2016 American Burn Association (ABA) Conference; Pacific ADA Regional Center hosts webinar, FEMA Promising Practices: Fire Preparedness and Post-Disaster Accessibility Issues in the Home; Southeast ADA Regional Center hosts webcast, ADA Live! Voting Access: What People with Disabilities Need to Know; The Stay-at-Work/Return-to-Work (SAW/RTW) Policy Collaborative of the US Department of Labor's Office of Disability Employment Policy and Mathematica's Center for Studying Disability Policy host policy forum: Helping Workers Keep Their Jobs After an Injury, Illness, or Disability.

Date sent: 
2016-08-31
NARIC news: 

September has been designated by Congress as National Spinal Cord Injury (SCI) Awareness Month. According to the latest SCI Facts and Figures (see the Resource Highlight below) about 282,000 people are living with SCI in the US today with about 17,000 new cases occurring each year. If you’re new to SCI, we recommend a visit to the Model Systems Knowledge Translation Center for everything from factsheets to videos. Our collection includes thousands of articles, books, and reports on SCI, including research from the NIDILRR community. We created a virtual bookshelf you can browse through to learn more.

Research In Focus:
Even People Who Cannot Speak Should Be Able to Make Their Voices Heard
This week in Research In Focus, we look at how technology developers can gather important feedback from users with serious communication disorders.

Resource Highlight: 

SCI Facts and Figures at a Glance
The NIDILRR-funded National Spinal Cord Injury Statistical Center (NSCISC) (90DP0011) has published the 2016 edition of Spinal Cord Injury (SCI) Facts and Figures at a Glance (PDF). The data sheet offers a quick reference on demographics and the use of services by people with SCI. It includes estimates on prevalence and causes of injury, as well as rates of employment, education, rehospitalization, life expectancy, and lifetime costs of injury. The data sheet is also available in Spanish (PDF).

News items: 

HealthMatters to be Implemented at Project SEARCH Sites
HealthMatters, a health and wellness program developed by the NIDILRR-funded Rehabilitation Research and Training Center on Developmental Disabilities and Health (90DP0011), was recently selected by UnitedHealthcare and Project SEARCH to be implemented at more than 400 Project SEARCH/UnitedHealthcare sites across the US (2nd item). HealthMatters is a comprehensive, evidence-based health and wellness curriculum developed specifically for people with intellectual and developmental disabilities (I/DD). Project SEARCH is a transition-to-work program that offers young people with I/DD hands-on training in relevant and marketable job skills, an employability and independent living skills curriculum, personalized job placement assistance, and follow-along support.

The LIBRE Study Recognized at ABA Conference
The Life Impact Burn Recovery Evaluation (LIBRE) study, a research study from the NIDILRR-funded project on Measurement of Community Participation Using a Computer Adaptive Test in Persons with Burn Injuries (90RT5020) received recognition at the 2016 American Burn Association (ABA) Conference. Two posters from the LIBRE Study received best-in-category awards: The poster "The Impact of Burn Injury on Relating with Strangers" was awarded best in the Psychosocial I category, and the poster "Impact of Burns on Family Function" received best in the Psychosocial II category. An abstract, "The Effects of Burn Size on Long-term Community Reintegration," was also recognized as one of the top six abstracts for the conference. Photos of the posters and the LIBRE team are available in the project's blog.

Grantee event: 

Webinar: Fire Preparedness and Post-Disaster Accessibility Issues in the Home
The NIDILRR-funded Pacific ADA Regional Center (90DP0055) will host a webinar, FEMA Promising Practices: Fire Preparedness and Post-Disaster Accessibility Issues in the Home, September 8th, 2:30-4pm ET. This webinar will have two presentations that look at preparedness and accessibility issues in the home, including selecting and installing smoke alarms and alert systems that meet the needs of people with disabilities. The webinar will also cover issues of access and universal design in post-disaster recovery and rebuilding. Registration is free and required. Previous FEMA Promising Practices webinars are available in the archive.

ADA Live! Voting Access: What People with Disabilities Need to Know
The NIDILRR-funded Southeast ADA Regional Center (90DP0021) will host a webcast, ADA Live! Voting Access: What People with Disabilities Need to Know, September 7th, 1-1:30pm ET. Presenters will discuss why voting is important for people with disabilities, sharing their personal voting experiences and their experience on the Tennessee Help American Vote Committee. No registration is required and questions may be submitted in advance. This is the third in a series on voting access. Previous episodes are available in the archive.

Elsewhere in the Community: 

Helping Workers Keep Their Jobs After an Injury, Illness, or Disability
The Stay-at-Work/Return-to-Work (SAW/RTW) Policy Collaborative of the US Department of Labor's Office of Disability Employment Policy and Mathematica's Center for Studying Disability Policy will host a policy forum, Helping Workers Keep Their Jobs After an Injury, Illness, or Disability, September 13th, 12-1:30pm ET. The session will provide policy recommendations intended to improve the stay-at-work/return-to-work outcomes for workers who experience illness, injury, or disability. Registration is free and required.