News and Notes 226 August 10
NARIC offers resources from the NIDILRR community and elsewhere for individuals who are new to a disability; Research in Focus looks at the impact of MS symptoms on everyday function; Northwest Regional Spinal Cord Injury System Center (NWRSCIS) posts new video, Getting to Normal: Conversations about Adjustment After Spinal Cord Injury (SCI); co-investigator from TIKTOC RERC appears on local talk show Ann Arbor Inclusive; three recent presentations from researchers at the Kessler Foundation added to the TEDx Herndon collection: novel prism goggle therapy for spatial neglect following stroke and TBI from the project Impact of Prism Adaptation Therapy for Spatial Neglect on Home and Community Outcomes, modified story memory technique for people with TBI and MS from Northern New Jersey TBI System Center, and rehabilitation robotics for aiding recovery of walking function after stroke from RERC on Wearable Robots for Independent Living; Pacific ADA Center hosts webinar, Disaster Behavioral Health and People with Access and Functional Needs: Resources from SAMHSA; Federal Communications Commission Connect2Health Task Force releases tool, Mapping Broadband Health in America.
Here at NARIC, our information specialists often speak to individuals who are new to disability. Maybe they or a family member or friend have recently been injured or diagnosed with a condition, or they're meeting a new employee or co-worker with a disability. Perhaps they're not new to disability, but they are now experiencing changes related to age or life situations, and have questions about what to expect and where to turn for help. We've put together a collection of resources from the NIDILRR community, as well as other resource centers and organizations, which can help as our readers adjust to their new paths in life.
Research In Focus:
Which Symptoms are Most Challenging for People with Multiple Sclerosis?
This week's Research In Focus looks at the symptoms of multiple sclerosis (MS) what impact they may have on everyday function.
Getting to Normal: Conversations About Adjustment After SCI
The NIDILRR-funded Northwest Regional Spinal Cord Injury System Center (NWRSCIS) (90SI5006) has posted a new video, Getting to Normal: Conversations about Adjustment After Spinal Cord Injury (SCI), part of the SCI Forum series. In the video, three individuals with spinal cord injuries share their personal journeys of adjusting to life with a spinal cord injury, from the initial grief and dark days to finding a path to a fulfilling life and a "new normal." More SCI Forum videos are available in the archive.
Rehab Technology Highlighted on Ann Arbor Inclusive
Edward Hurvitz, MD, co-investigator from the NIDILRR-funded Technology Increasing Knowledge: Technology Optimizing Choice Rehabilitation Engineering Research Center (TIKTOC RERC) (H133E130014) recently appeared as a guest on a local cable talk show, Ann Arbor Inclusive. Dr. Hurvitz is Professor and Chair of the Department of Physical Medicine and Rehabilitation at the University of Michigan. In his interview, he discussed research in robotics, cerebral palsy, virtual reality, and exercise. He also introduced some of the newest technology being used to enhance physical therapy for people with cerebral palsy.
NIDILRR Research at TEDx Herndon
Three recent presentations from NIDILRR-funded researchers from the Kessler Foundation were added to the TEDx Herndon collection. A.M. Barrett, MD, principal investigator for the project on the Impact of Prism Adaptation Therapy for Spatial Neglect on Home and Community Outcomes (90IF0037) presented on novel prism goggle therapy for spatial neglect following stroke and traumatic brain injury (TBI). Nancy Chiaravalloti, PhD, principal investigator for the Northern New Jersey TBI System Center (NNJTBIS) (90DP0032), presented on the modified story memory technique (mSTM) to improve memory and learning for people with TBI and multiple sclerosis. Karen Nolan, PhD, from the Rehabilitation Engineering Research Center on Wearable Robots for Independent Living and a former Switzer Fellow (H133F070028/90RE5021), discussed her experiences with rehabilitation robotics and gait analysis for aiding recovery of walking function after stroke.
Webinar: Disaster Behavioral Health and People with Access and Functional Needs TOMORROW
The NIDILRR-funded Pacific ADA Regional Center (90DP0021) will host a webinar, Disaster Behavioral Health and People with Access and Functional Needs: Resources from the US Substance Abuse and Mental Health Services Administration (SAMHSA), August 11th, 2:30-4pm ET. This session will provide an introduction to disaster behavioral health and overview of resources from SAMHSA that emergency managers, providers, and the public at large can utilize year-round, during and immediately following disaster events, and during long-term recovery. Registration is free and required. The webinar is presented in partnership with the Federal Emergency Management Agency (FEMA).
Connect2Health Mapping Broadband Health in America
The Federal Communications Commission Connect2Health Task Force has released Mapping Broadband Health in America, a tool which allows users to explore the connections between chronic conditions, health behaviors, and access to online health and wellness information. Users can visualize, overlay, and analyze broadband and health data at the national, state, and county levels, including issues of access to both quality healthcare and health information for people with disabilities in rural communities.