News and Notes 201 February 17
Resources and research from the NIDILRR community and elsewhere in observance of American Heart Month; Administration for Community Living (ACL) releases Public Access Plan for NIDILRR-funded research; TU Collaborative develops a Parenting Internet Education Tool; RERC on Technologies for Children with Orthopedic Disabilities (Tech4POD) releases eBook on Osteogenesis Imperfecta; Pathways RTC releases two of their most popular publications, two youth guides, in Spanish; Burn Model Systems presents at the American Burn Association 2016 State of the Science Conference in Burn Research; Spinal Cord Injury Model Systems to present Progress in Research from the SCI Model Systems as part of American Spinal Injury Association Annual Meeting; National Institute of Standards and Technology and Election Assistance Commission collaborate to maintain Accessible Voting technology (AVT) Portal.
February is American Heart Month, sponsored by the American Heart Association (AHA). According to AHA, more than 85 million people in the US are living with cardiovascular disease. That number includes people with physical, sensory, intellectual/developmental, and psychiatric disabilities. We took a look at resources and research from the NIDILRR community and elsewhere to help people with disabilities monitor and reduce their risk of cardiovascular disease.
Parenting Internet Education Tool The NIDILRR-funded Rehabilitation Research and Training Center on Community Living and Participation of Individuals with Psychiatric Disabilities (TU Collaborative) (90RT5021) has developed a Parenting Internet Education Tool. The website provides resources and supports for parents with mental health issues to improve their parenting skills and self-confidence. Topics include emotional health, physical health and wellness, parent-child communication, and more.
ACL Releases Public Access Plan for NIDILRR-Funded Research
In accordance with the White House Office of Science and Technology Policy (OSTP) Public Access Memorandum, the Administration for Community Living (ACL) has developed a Public Access Plan. The Plan was developed to ensure free public access to federally-funded, peer-reviewed scientific publications. The 2014 Workforce Innovation and Opportunities Act moved NIDILRR from the Department of Education to ACL. The transfer of NIDILRR, which has an appropriation for research and development of about $104 million, necessitated the development of an ACL Public Access Plan. It is intended to make published results of, and scientific data collected through, ACL/NIDILRR-funded research more readily accessible to the public, while increasing the use of research results and scientific data to further advance scientific endeavors and other tangible applications.
New eBook on Osteogenesis Imperfecta
The NIDILRR-funded Rehabilitation Engineering Research Center (RERC) on Technologies for Children with Orthopedic Disabilities (Tech4POD) (90RE5006) announced the release of a new book, Transitional Care in Osteogenesis Imperfecta: Advances in Biology, Technology, and Clinical Practice (PDF). The book includes research from the RERC, as well as a NIDILRR-funded field initiated project on osteogenesis imperfecta and Advanced Rehabilitation Research Training Projects on pediatric mobility for physicians and engineers. The book is the result of close collaboration among surgeons/clinicians, scientists, and engineers with an eye towards a transitional care continuum. The book is available free in full text.
Pathways RTC Youth Guides Now Available in Spanish The NIDILRR-funded Rehabilitation Research and Training Center for Pathways to Positive Futures (Pathways RTC) (90RT5030) has released two of their most popular publications in Spanish. Sugerencias para tus Reuniones en Equipo: Una Guía para Jóvenes (Tips for Your Team Meetings: A Guide for Youth) (PDF) empowers youth and young adults to be more active participants in their treatment planning. "Durante las Reuniones no Soporto Cuando..." Una Guía para Facilitadores y Miembros del Equipo ("During Meetings I Can't Stand it When..." A Guide for Facilitators and Team Members) (PDF) gives service providers insights about how to practice from a youth-centered perspective. English and Spanish editions may be downloaded from the Featured Products page. This project is also sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA)
2016 State of the Science Conference in Burn Research
Researchers from the NIDILRR-funded Burn Model Systems (90DP0012, 90DP0013) will present at the American Burn Association 2016 State of the Science Conference in Burn Research, February 22nd-23rd, in Washington DC. The 2016 conference, co-sponsored by NIDILRR, will define the goals, priorities, and needs for burn research for the next 10 years. The program includes formal presentations and focused discussions with invited burn care experts, burn survivors, and consumer advocates. Registration is required and there are registration fees.
Progress in Research from the SCI Model Systems
Researchers from the NIDILRR-funded Spinal Cord Injury Model Systems (90DP0012) will present an interactive pre-course, Progress in Research from the SCI Model Systems (SCIMS), April 13th, as part of the American Spinal Injury Association Annual Meeting in Philadelphia. Sessions will showcase the innovations and insights from the 2011-2016 cycle and will focus on demographics/measurement; functional training, psychosocial considerations; assistive technology; and secondary conditions. Registration is required and there are registration fees. Visit the Annual Meeting website for registration details.
Accessible Voting Technology Portal
The National Institute of Standards and Technology and the Election Assistance Commission collaborate to maintain the Accessible Voting Technology (AVT) Portal, a gateway to a broad spectrum of resources related to accessible voting research. The portal includes information on various technologies to enhance and improve the accessibility of voting systems, collaborations to advance the field of AVT, and AVT related research, standards, testing, and certification.