News and Notes 180 September 2

NIDILRR-funded report and other articles about issues related to Hurricane Katrina available from NARIC collection in commemoration of the 10th anniversary of the disaster; We Prepare Every Day from FEMA offers safety tips during disasters; summer issue of CROR Outcomes newsletter features article on developing online training materials and measuring effects of teaching wheelchair skills for people with SCI; also includes article from RRTC on Measuring Rehabilitation Outcomes and Effectiveness, an update of a study on measuring community participation; RTC/CL researchers named Women of Distinction by the Emily Taylor Resource Center for Women and Gender Equity; RRTCDD publishes article on the need for national practice guidelines for adults with intellectual disability and dementia; Pathways RTC hosts webinar, Family Support for Transition-Aged Youth; University of Alabama at Birmingham SCIMS seeks participants for a study on pregnancy and delivery outcomes of women with and without SCI; US Department of Labor ODEP releases 2015 National Disability Employment Awareness (NDEAM) poster.

Date sent: 
2015-09-02
NARIC news: 

This weekend marked the 10th anniversary of Hurricane Katrina's landfall in the Southeastern US. For people with disabilities, Katrina revealed significant gaps in disaster planning, as well as pre- and post-disaster communication, coordination, and information sharing by organizations, individuals, and emergency management agencies. These issues and more are discussed in this NIDILRR-funded report and other research articles available from our collection. As the 2015 hurricane season continues, make sure you're prepared: Watch We Prepare Everyday from the Federal Emergency Management Agency (FEMA) and learn how to keep yourself and your family safe when disaster strikes.

Resource Highlight: 

CROR Outcomes Summer 2015
The Center for Rehabilitation Outcomes Research has published the summer issue of its CROR Outcomes newsletter (PDF), featuring updates on two NIDILRR-funded studies. The newsletter features an extensive article describing the Collaboration on Mobility Training (H133A120004), a four-site study designed to develop online training materials for clinicians and to measure the effects of training courses that teach wheelchair skills and maintenance to people with spinal cord injury. The newsletter also includes an update on a completed study on measuring community participation from the Rehabilitation Research and Training Center on Measuring Rehabilitation Outcomes and Effectiveness (H133B040032).

News items: 

Two RTC/CL Researchers Named Women of Distinction
Martha Hodgesmith, JD, and Jean Ann Summers, PhD, of the NIDILRR-funded Rehabilitation Research and Training Center on Community Living (RTC/CL) (H133B110006) were recognized as Women of Distinction by the Emily Taylor Resource Center for Women and Gender Equity. Hodgesmith and Summers were recognized for their research and advocacy for independent living and full participation for people with disabilities.

New Article Highlights Need for National Practice Guidelines for Adults with ID and Dementia
The NIDILRR-funded Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD) (H133B130007) recently published an article, Why do we need national guidelines for adults with intellectual disability (ID) and dementia? in the open access journal Alzheimer's & Dementia: Diagnosis, Assessment, & Disease Monitoring. The article introduces current research in dementia care practices and highlights the need for special guidelines for individuals with ID, for whom symptoms of dementia may be undiagnosed or misdiagnosed.

Grantee event: 

Webinar: Family Support for Transition-Aged Youth
The NIDILRR-funded Rehabilitation Research and Training Center for Pathways to Positive Futures: Supporting Successful Transition for Youth and Young Adults with Serious Mental Health Conditions (Pathways RTC) (H133B140039) will host a webinar, Family Support for Transition-Aged Youth, September 29th 1-2pm ET. The webinar will focus on working successfully with families who have transition-aged family members 14 to 29 currently experiencing mental-health difficulties. Panelists will discuss family experiences, the impact of age and cultural background, and the research and training needed to better support these families. The webinar will include a question and answer session. Registration is free and required.

Participate: 

UAB-SCIMS Pregnancy Study
The NIDILRR-funded University of Alabama at Birmingham Spinal Cord Injury Model System Center (UAB-SCIMS) (H133N110008) seeks participants for Pregnancy, Labor, Delivery, and Post-Partum Outcomes of Women with and Without SCI: An Observational Study. Eligible participants are women with SCI at least one year post-injury aged 19 or older, who are pregnant or have given birth within the last 3 years. All participants will agree to have their medical records reviewed, and those who are pregnant will also participate in three phone or in-person interviews. Participants will receive compensation of up to $200. For more information, contact Jan Troncale, RN, BSN at 205/934-3330 or SCIresearch@uab.edu.

Elsewhere in the Community: 

NDEAM Poster: My Disability Is One Part of Who I Am
The US Department of Labor Office of Disability Employment Policy (ODEP) released the 2015 National Disability Employment Awareness Month (NDEAM) poster featuring this year's theme: My Disability Is One Part of Who I Am. The poster is available in English and Spanish. Additional resources, including the Who I Am video series, are available to help organizations plan observances for the 70th anniversary of NDEAM in October.