Librarian's Picks: Caregiving and Caregivers

 

Aging and Community Health from the American Medical Association

The AMA has initiated an effort to address the burden of caregiving through the development of Web-based materials and information. Physicians, other health care professionals, and those involved in caregiving are invited to find out more information about caregiving by visiting the Caregiver Health Assessment section. Background information on caregiving and dementia, a caregiver self-assessment tool,and useful caregiver resources are also available.

 

Over 40 plus publications related to caregiving and health and wellness.

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University of California at San Francisco

3333 California Street, Suite 455

San Francisco, CA 94118-0612

Phone: 866/727-9577

Fax: 415/476-6552

This rehabilitation research and training center focuses on: improving access to Personal Assistance Services (PAS) by individuals with disabilities; improving the workforce to support individuals with disabilities; and understanding the complexities of the economics of PAS. This project: analyzes trends in the met and unmet needs for PAS in the United States, and the changing demographics of the PAS population, and makes national and state projects of need; investigates the relationship between need and economic status for working age and older groups; tracks and analyzes trends in PAS participants, services, and expenditures, and federal and state Olmstead-related initiatives to expand PAS; identifies state PAS policies and barriers to meeting the need for PAS; and analyzes state PAS intervention strategies and factors which impact the success of expanding PAS services. Additionally, this project develops health promotion and educational tools, supports, and interventions to improve the health of caregivers and PAS users; addresses the needs of children and their family caregivers through focused research on the impact of family caregiving on employment; and examines the needs and supports for aging minority caregivers and the amount and type of caregiving provided by family or friends.

 

Craig Hospital

3425 South Clarkson Street.

Englewood, CO 80113-2899

Phone: 303/789-8306

Fax: 303/789-8441

This project employs a combined qualitative and quantitative methodology to develop a relevant instrument to assess caregiver distressand benefit in spinal cord injury (SCI). The project uses a focus group methodology to identify areas of concern for family members providing assistance to a loved one with SCI. Detailed qualitative analysis of the focus group transcripts is used to identify themes and concepts that may be operationalized into questions for a new instrument to assess caregiver distress and benefit in SCI. Led by Craig Hospital in Englewood, Colorado, the project is a collaborative research effort with three other prominent SCI rehabilitation facilities: University of Alabama at Birmingham, Santa Clara Valley Medical Center in San Jose, California, and the Kessler Medical Rehabilitation Research and Education Center/Kessler Foundation in West Orange, New Jersey.

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10400 Connecticut Avenue, Suite 500

Kensington, MD 20895-3944

Phone: 800/896-3650, 301/942-6430

Fax: 301/942-2302

The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA is committed to improving the overall quality of life of caregiving families and minimizing the disparities between family caregivers and non-caregivers. Membership organization offers information and peer support to family caregivers and the friends, professionals, companies and institutions that support them.

 

180 Montgomery Street, Suite 900

San Francisco, CA 94104

Phone: 800/445-8106, 415/434-3388

Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing longterm care at home. FCA now offers programs at national, state and local levels to support and sustain caregivers. Its goals include public advocacy for those with financial and emotional distress, direct services to family caregivers (in California), and the national distribution of information on cargiving and the care of people with chronic disabling conditions.

 

A clickable map provides information onpublicly-funded caregiver support programs in each of the 50 states and the District of Columbia. Information on programs funded through the National Family Caregiver Support Program, Aged/Disabled Medicaid waivers, and related state-funded programs are available. Links are also available to state caregiving legislation, state reports, and data tables.

 

901 Moorefield Park Drive, Suite 100

Richmond, VA 23236

Phone: 804/327-1111

Created by FamilyCare America, Inc., NCL the largest single source of information and tools for caregivers and seniors in the country. It makes it resources available to caregivers for free through alliances with professionals, businesses and other organizations who serve seniors and their caregivers with a variety of products and services.